Tag: #SoCS

SoCS: travel

When B retired, we had planned to travel more.

More trips to London to see the UK branch of the family.

More mid-week getaways to the Finger Lakes or New England, avoiding the busier weekends and high seasons, now that B didn’t have to work Monday through Friday. Visits to friends and relatives.

We have been doing more travelling, but not in the way we had anticipated.

Instead, we have been doing a lot of medical travelling. A couple of trips to NYC to see the interventional radiologist and do some specialized testing. A trip to Providence, RI at the end of last month to meet with a specialized neurosurgeon. We will return there this fall for surgery. I might need to find an out-of-town nephrologist…

We are hoping that, by next spring, I may be recovered enough to travel for fun again.

It will give me something to dream about as I’m recovering…
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Linda’s prompt for Stream of Concsiousness Saturday this week is “travel.” Join us! Find out more here: https://lindaghill.com/2026/08/07/the-friday-reminder-and-prompt-for-socs-august-8-2026/

SoCS: tornado?

I live in the Southern Tier of New York State and, like many places on earth, we’ve had weather weirding going on as a result of climate change, caused primarily by the burning of fossil fuels. (Yes, even in Stream of Consciousness, I need to make sure I am clear on the science I present on my blog!)

This summer, we’ve had lots of big temperature swings. We’ve had lines of thunderstorms that have had high winds. That isn’t unusual for us but what is unusual is the level of damage we are seeing.

Sometimes, it is straight line winds but this year we have had an unusual number of tornados. On the weather report on television a few days, if I’m remembering correctly, we had had 12 confirmed tornados in the state so far this year, well above our average of 5. (I’m not sure if those are the correct figures as I may have misremembered, so don’t quote me on them without checking first.)

Fortunately, the tornados near us have been small and on the weaker side of the F scale they use to grade tornados. Still, they have broken trees and damaged buildings in their path.

There have been some other areas where there was similar damage but caused by straight line winds. The chief meteoraligist from channel 12 was able to go out with the National Weather Service personnel on investigation of a possible tornado. They were explaining how they tell the difference between tornados and straight line winds by looking at the debris pattern. With a tornado, the trees will fall in different directions, whereas with straight line winds the trees will fall in the same direction. I’m sure there are other factors that they observe to make their determinations, especially the radar signatures during the storm, but they always look at the debris patterns before making a final determination.

There are so many people in the US and around the world suffering from weather-related disasters these days. I’m living in a place that has been luck this year compared to so many other places. For me, all these weather events are reminders that we need to move as quickly as possible away from fossil fuels to try to keep further increases of these disasters at bay.

Let’s go!
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Linda’s prompt for Stream of Consciosness Saturday this week is “wind.” Join us! Find out more here: https://lindaghill.com/2026/07/24/the-friday-reminder-and-prompt-for-socs-july-25-2026/

SoCS: in a brain fog

Sometimes, I remember what I used to know and be able to do.

Sometimes, I can’t.

The brain fog from the cerebellar ectopia is perhaps being made worse by my decline in kidney function.

Or maybe by the summer weather.

Hard to say.

It’s scary, though, especially because it’s been going on for over two years now. There is hope for untangling all the underlying factors and treating them – or, at least, some of them – but probably no guarantee of getting back all my lost functionality.

Sometimes, I manage to be hopeful in a realistic sort of way.

Sometimes, not so much.

Today, not so much.
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Linda’s prompt for Stream of Consciosness Saturday this week is to begin the post with “Sometimes.” Join us! Find out more here: https://lindaghill.com/2026/07/17/the-friday-reminder-and-prompt-for-socs-july-18-2026/

SoCS: houseguests

It’s fairly unusual for use to have houseguests but we did this week.

B’s brother and spouse stayed with us overnight as they headed to a family vacation in Maine.

Now, it looks like we may have guests again in a couple of weeks when B’s college roommate heads through on the way to a vacation spot with his spouse.

Sometimes, it’s handy to be located near the intersection of three major interstate routes!
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Linda’s prompt for Stream of Consciousness Saturday this week is “guest.” Join us! Find out more here: https://lindaghill.com/2026/06/12/the-friday-reminder-and-prompt-for-socs-june-13-2026/

SoCS: sweet taste

My favorite foods are sweet.

I know that humans’ first taste preference is for sweetness. It’s why breast milk is so sweet.

Most people, though, go on to develop preferences for additional flavors. I, though, am not very tolerant of foods that are sour or bitter. Strong flavors are often physically painful for me and I’ve learned that something that most people perceive as mild are often overwhelming for me. This is especially true for hot/spicy foods, like peppers. I also don’t drink coffee or tea, which are just too bitter for me.

I wonder if this taste preference for sweet and intolerance for sour and bitter is a natural defense. One of the conditions that I have is interstitial cystitis, also known as painful bladder syndrome. (It’s probably also related to my hEDS and mast cell activation disorder, but I digress.) One of the ways to help reduce IC flares is to reduce acidic foods as much as possible. Most sour or bitter foods are also high in acid, so maybe my intolerance of those flavors is a self-defense mechanism.

By the way, salty foods are also bad for people with IC so I eat low-salt, as well. I don’t find salty foods physically painful, though, unless it is really, really, really salty, which feels like burning in my mouth.

I’m such a delicate flower!

And sweet! 😉
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Linda’s prompt for Stream of Consciousness Saturday this week is “sweet.” Join us! Find out more here: https://lindaghill.com/2026/05/15/the-friday-reminder-and-prompt-for-socs-may-16-2026/

SoCS: contrast

One of the many things about which I have to be careful is the use of contrast with CT or MRI scans.

We think the reason is that my kidney function is kind of flaky and the contrast agents are hard on kidneys.

The wild card is that my kidneys may be stressed because of a vascular problem related to my hEDS. I have an appointment with a specialist in NYC later this month to investigate.

Stay tuned…
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Linda’s prompt for Stream of Consciousness Saturday this week is “contrast.” Join us! Find out more here: https://lindaghill.com/2026/05/08/the-friday-reminder-and-prompt-for-socs-may-9-2026/

SoCS: No Kings!

Linda’s prompt for Stream of Consciousness Saturday this week is “portrait.”

The photo above is a new portrait of me today, dressed in honor of the third No Kings! Day held in the United States in Donald Trump’s second term.

There are over 3,300 marches, rallies, demonstrations, or other events planned across the country with a few being held in other countries in solidarity.

Due to my health issues, I won’t be able to be at any of them in person, so I am declaring my solidarity here on my blog.

I’m hoping to watch some of the coverage on television. This is the largest yet of the No Kings protests against the rising autocracy we are experiencing here in the US with Trump and his administration. The situation becomes more dire by the day, especially with the Iran war.

Of course, there are also the ongoing problems across many issues both domestically and internationally. The flagship protest for No Kings today is in Minneapolis/St. Paul, Minnesota, where an alleged immigration crackdown early this year led to terror, including the deaths of two US citizen observers who were trying to assist their immigrant neighbors and other citizen observers.

There are also many organizations that are standing up for our Constitution, laws, ethics, values, and humanity and rights. Special shout-out to CREW, Citizens for Responsibility and Ethics in Washington. They do a lot of legal work in trying to call attention to and file suits about the abuses of power in the nation’s capital. I ordered this shirt from them – in yellow, which is one of the colors associated with No Kings.

I also appreciate how the No Kings events are held. They are peaceful and designed for there to be safety and fun for participants. Some people even wear fun costumes, like inflatable animals.

Even while people are having fun, though, the cause is very serious.

Presidents are not Kings!

SoCS: JC’s Confessions #35

reading difficulties

While this post will be stream of consciousness for Linda’s Stream of Consciousness Saturday on the prompt “easy/hard,” it is also part of my occasional series JC’s Confessions, so I will open with the usual non-SoC opening for that series.

In the first few seasons of The Late Show, Stephen Colbert did a recurring skit, then a best-selling book, called Midnight Confessions, in which he “confesses” to his audience with the disclaimer that he isn’t sure these things are really sins but that he does “feel bad about them.” While Stephen and his writers are famously funny, I am not, so my JC’s Confessions will be somewhat more serious reflections, but they will be things that I feel bad about. Stephen’s audience always forgives him at the end of the segment; I’m not expecting that – and these aren’t really sins – but comments are always welcome.

Reading, which is something that was usually easy for me, is now often hard to do.

As someone who loves reading and who is trying to be a writer and poet, that’s a hard thing to admit.

This change is mostly related to what has recently been diagnosed as hypermobile Ehlers-Danlos syndrome (hEDS), an inherited connective tissue disorder that affects collagen. Because we have connective tissue throughout our bodies, many different body parts and systems are affected and the symptoms and their locations vary over time.

For these last couple of years, I’ve been having a lot of problems with my brain and with fatigue.

I often have brain fog, which makes it difficult to concentrate. This makes it hard to read anything that is long, like books. I do better with short things, so I do a lot of my reading these days in the forms of emails, so, given what is going on, I read commentary on political topics and environmental problems and some Catholic church/social justice news that lands in my inbox.

You would think that poems would be perfect for my length limitations, but, sadly, this isn’t the case. I’ve largely lost contact with the creative side of my thinking, making it hard for me to read poetry most of the time, as I am not able to really appreciate the art of the poet. I hadn’t realized how much of my own creativity is wrapped up in reading someone else’s work. I do still manage to do a bit of reading of poems, especially my poet-friends’ work, but it’s frustrating and sad for me, knowing that I can’t fully appreciate their artistry.

I also have severe limits on how long I can read, write, or concentrate. I’m writing this in the morning and hope to draft one other practical letter I need to write, but that will probably be about it for the day because I will be very tired afterward. In order to have energy to go to vigil mass at 4:00, I’ll most likely spend the early afternoon lying down and resting.

It’s really hard to deal with these limitations on my brain power and energy.

There are also some other problems caused by my hEDS that interfere with my reading. I’m having a couple of problems with my eyes. I have some level of visual disturbance going on, especially with my left eye, which causes some blurring that isn’t able to be corrected with glasses. The problem isn’t with the eye itself but with the brain in processing it – at least that is the current theory. It may be related to dysautonomia, where the regulation of all those things that our bodies ordinarily do without our thinking about them goes a bit haywire. On rare occasions, I can concentrate hard enough on what I am looking at that I can get the blurriness to clear, although only for a short amount of time and at risk of ramping up the fatigue.

The other connective tissue-related eye problem is dry eye, which I treat with prescription drops, artificial tears, and taking flaxseed oil. These help but don’t eliminate the problem, which, on top of everything else, makes reading, especially onscreen, more tiring.

Now that we know about the hEDS, we may be better able to address some of the problems underlying this struggle I’m having with reading.

Or not.

I have a bunch of referrals to new specialists pending. I’m most anxious to find help for the brain fog/fatigue symptoms so that I can think and feel like myself again.

Meanwhile, I feel sad – and, sometimes, guilty – that I can’t manage to read my friends’ work or keep up with the torrent of news and commentary that I would like to do.

I try to give myself grace, but it’s hard.

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You are invited to join us for Linda’s Stream of Consciousness Saturdays. Find out more here: https://lindaghill.com/2026/03/20/the-friday-reminder-and-prompt-for-socs-march-21-2026/

SoCS: Be prepared

I grew up with the motto, Be Prepared.

This was very useful because we lived in a rural setting with no houses nearby so you couldn’t go to the neighbors’ house to borrow a needed tool or recipe ingredient. The grocery store was 20 miles away so it wasn’t easy to pick up bread or milk or whatever you might have run out of, so we kept a well-stocked pantry and freezer.

Even though I live in a neighborhood now – and have for years – I still tended to keep extra supplies on hand, in order to be prepared for a change in plans or an unexpected circumstances.

Still, though, despite preparations, there are some things for which we are never quite prepared.

Recently, I’ve had some instances of re-visiting my poetry chapbook, Hearts. The poems center on my mother, especially her final years when she was living with heart failure. We knew that she was slowly dying and tried to prepare but, when the time came, it was still somewhat of a shock. I know from discussions I’ve had with others that our preparations for loss are seldom adequate.

For me, there is, though, a certain comfort in trying to prepare, even when my preparations aren’t sufficient.

I’ll keep trying…
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Linda’s prompt for Stream of Concsiousness Saturday this week is to base your post on a word the starts with “pre.” Join us! Find out more here: https://lindaghill.com/2026/02/20/the-friday-reminder-and-prompt-for-socs-feb-21-2026/

SoCS: life chapters

I often think of my life in chapters.

They aren’t sequential or in blocks of time, though.

It’s more that they are organized topically.

For example, in my volunteer life, there are chapters around church, social justice advocacy, environmental causes, and school curriculum and committees when I was a parent.

In music, there is the church music and organ chapter, composition, and choral music, starting in high school, then Smith College both as a student and alum, decades with University Chorus at SUNY-Binghamton, and now with the Madrigal Choir of Binghamton.

In my personal life, the chapters are very long. Some as a daughter, granddaughter, and sister are life-long. Even though my parents and grandparents have all passed away, being a daughter and granddaughter is forever, as is being a sister.

Another long chapter which is ongoing is with my spouse B, who I met early in high school. We will celebrate our 44th anniversary later this year. I think that part of the reason we are who we are at this point is that we were able to grow and change together over all this time.

And then, there is my writing life, with chapters for school, what I think of as utilitarian writing like doing commentary, blogging, and poetry.

Two chapters that remain close to my heart are as a mom and, for the last 8 and a half years, a grandmother. Those chapters are the most forward-looking. I don’t think of my daughters’ and granddaughters’ stories as sequels to mine because they are their own authors but I am honored to be a chapter in their own books of life.
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Linda’s prompt for Stream of Consciousness Saturday this week is “chapter.” Join us! Find out more here: https://lindaghill.com/2026/02/06/the-friday-reminder-and-prompt-for-socs-feb-7-2026/