Category: musings

presidential contrasts

Vote for Democary #58

(Photo by Lucas Sankey on Unsplash)

Donald Trump has been corrupt for a long time but, in his second administration, they don’t even try to hide it. The crypto schemes. Donors getting big contracts from the government, sometimes without any competitive bidding. The president promoting companies in which he is invested. The tearing down of the East Wing without proper authority and using taxpayer funds to build a ballroom after saying it would be privately funded. Not spending funds that Congress had authorized, such as ending USAID, which has resulted in untold deaths when critical health and nutrition programs overseas were cut. The president and his family profiting from his presidency so that they are over a billion dollars richer. Deporting people without due process. Lying over and over about individuals, groups, and countries. Starting a war without authorization or public support. Investigating people without cause. Ignoring court orders. Filing a bogus lawsuit to try to wrangle a deal to create a $1.776 billion slush fund to dole out to supporters along with an agreement that any past tax malfeasance from Trump, his family, and his businesses could not be investigated. I could go on, but you get the idea.

In contrast, last week saw the official opening of the Obama Presidential Center on the South Side of Chicago. While most presidents have a library, President Obama chose to create a community center with a park, public spaces for a variety of activities, a museum, and a public library branch stocked with some of the President’s favorite books. There will also be a digital archive of presidential papers, replacing the prior practice of having them all on paper. The opening ceremony on June 18, 2026 was a joyous celebration with music and inspirational speeches, including from Barack and Michelle Obama. The Center opened for visitors the next day, which is a national holiday commemorating Juneteenth, the day in 1865 when Black people who had been enslaved in Galveston Bay, Texas, learned that they had been freed by Lincoln’s Final Emancipation Proclamation of Jan. 1, 1863.

It was heartening to see people from across the country and the world come together to celebrate being in community, upholding the common good, and nurturing present and future generations. It was also a reminder, with our nation’s 250th birthday only days away, that we can make progress as “We the People” toward “a more perfect union,” despite the current administration’s malfeasance.

It’s time for all people of good will to stand up for each other, especially for those most vulnerable, and reject those who would supress or divide us.

Together, we can do it.

SoCS: writing

I miss writing.

Because of the brain fog and fatigue I’ve had over the last couple of years as a result of my extra-stetchy connective tissue from my hEDS, I can’t spend as much time writing as I would like.

Some kinds of writing, like poetry, have become almost non-existent in my life. I feel like the creative side of my brain isn’t operational the vast majority of the time – and the more analytic side is only at half-capacity, at best. Heck, I have difficulty reading literature of any kind these days. I can sometimes manage to grasp poems, if it’s in the morning and they aren’t too long. I can’t read novels because I can’t get plots and characters to stick in my head over days. I can’t even manage non-fiction books because the brain fog is too thick to remember topics over the course of days and the fatigue level is such that I can’t read very long at a sitting. I’ve been trying to keep up by reading news and commentary articles and newsletters but have been so tired lately that my inbox is overflowing with unread material.

There has been so much happening here in the US that I’ve wanted to write posts about but haven’t been able to manage, which makes me sad. I keep thinking that the next specialist visit will give us something actionable to improve my condition but, instead, it usually means more tests are needed, which means waiting for the tests to be scheduled, doing them, waiting for them to be interpreted, waiting for the specialist to see the results and interpret them – which often yields a different result than the radiology reports that land in my health portal – and get back to me with what they think is going on. Then, maybe, we get to trying a treatment that may or may not work and then onto the next option or the next specialist.

I’m grateful, though, that this year I have a specialist who was finally able to diagnose my hEDS and cerebellar ectopia and that I finally have specialists who know what to try with patients like me. Unfortunately, I might need some pretty scary treatments, like brain surgery.

So, I’m grateful and scared and exhausted and anxious and tired of all the waiting and struggling and symptoms and uncertainty.

And I miss writing and being able to make it through a day without having to spend a good chunk of it lying down and being able to take walks without having someone with me in case I lose my ability to keep my balance and going to visit family and friends and being able to concentrate and speaking without having to search for the right word in some kind of frantic brain race.

I miss the life of the mind that I took for granted as part of my identity.

And here you have an illustration of why stream of consciousness writing is so dangerous to put out there, because this is a way darker post than I thought I was going to be writing when I started out with Linda’s prompt of the word miss and decided to write about missing writing.

It is, though, on brand with Top to JC’s Mind where I usually write honestly about whatever is top of mind for me, even when that mind is more scattered and glitchy and exhausted than it used to be.

There are two big imaging studies coming up for me this week and a hugely important appointment with a specialized neurosurgeon at the end of July. Meanwhile, I’m hoping against hope to get a few significant posts written here, as opposed to the last month which has not been very substantive.

Sigh.

I miss writing.
*****
Join us for Linda’s Stream of Consciousness Saturday! Find out more here: https://lindaghill.com/2026/06/19/the-friday-reminder-and-prompt-for-socs-june-20-2026/

SoCS: houseguests

It’s fairly unusual for use to have houseguests but we did this week.

B’s brother and spouse stayed with us overnight as they headed to a family vacation in Maine.

Now, it looks like we may have guests again in a couple of weeks when B’s college roommate heads through on the way to a vacation spot with his spouse.

Sometimes, it’s handy to be located near the intersection of three major interstate routes!
*****
Linda’s prompt for Stream of Consciousness Saturday this week is “guest.” Join us! Find out more here: https://lindaghill.com/2026/06/12/the-friday-reminder-and-prompt-for-socs-june-13-2026/

One-Liner Wednesday: more fatigue

I’ve had a major uptick in my fatigue level so I haven’t been able to manage writing the couple dozen of posts that I wish I had over the last few weeks, but my health care team is working on a new batch of tests, a med change, and probably an additional diagnosis that may eventually lead to improvement, so stay tuned…

Join us for Linda’s One-Liner Wednesdays! Find out more here: https://lindaghill.com/2026/06/10/one-liner-wednesday-you-know-youre-tired/

One-Liner Wednesday: ditto

My reaction to Linda’s One-Liner Wednesday post today is “ditto.”

Bolt 70,000

Our 2017 Chevy Bolt just passed 70,000 miles (about 113,000 kilometers). We still love driving it and hope to keep it for years to come.

With gas prices as expensive as they are these days, it’s especially nice to be driving an electric vehicle. Bonus: we own solar panels in a community solar farm, so charging at home is very inexpensive.

I’m just hoping that, when we do decide to replace our Bolt, we will have lots of EVs from which to choose. EVs are winning increasing market share in most of the rest of the world, so the United States will be playing catch-up after the damage the Trump administration has done to the EV industry.

Smith blackout poetry ’26

For the past several years, the Boutelle-Day Poetry Center at my alma mater, Smith College, has offered a Blackout Poetry Project to the Smith community, including alums. In the blackout poetry style, one takes a page of pre-existing text and crosses out words or letters to create a poem. The pages are then sometimes embellished with color or other visual art elements. I have participated in prior years, such as the year when the theme was Emily Dashes, using the poems of Emily Dickinson.

This year’s theme is Monster Mash, creating blackout poetry using pages from Mary Wollstonecraft Shelley’s Frankenstein. As you can imagine, the work is quite dark in tone, so I decided to take page 22, which was sent to me from the Center, and transform it into a brighter message.

As it may be difficult to read from the photo, the words I chose to highlight are:
arouse a multitude
excite good people
restore life
a new promise

My visual artist friends will, I’m sure, forgive my rudimentary collage but I felt that we are all in need of a bit of sunshine today.

Write Out Loud ’26 recording!

As I wrote here, I was unable to attend the Write Out Loud ’26 event at the Fenimore Art Museum near Cooperstown, NY, last month, but I’m happy to share the newly released recording.


My poem “Nor’easter Numbers” is first on the program, read wonderfully by the fabulous Sharon Rankins-Burd. If you watch the video on YouTube and click on “more,” you can see the program and timings laid out so you can easily navigate to particular pieces. Enjoy! As always, feel free to comment.

Globe Trotter!

WordPress has informed me that I’ve unlocked a new achievement, Globe Trotter. It means that I have received views from 50+ countries.

Okay, it’s taken 12 years but still cool!

One-Liner Wednesday: EDS shirt

May is Awareness Month for Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder so I got a shirt!

Join us for Linda’s One-Liner Wednesdays! Find out more here: https://lindaghill.com/2026/05/20/one-liner-wednesday-summer/