When I saw the specialized neurosurgeon last week, after posting here for positive vibes, they asked what my three most troublesome symptoms are and I answered, “Brain fog, fatigue, and balance problems;” they told me that surgery for Chiari malformation should help all three, so I will have that, probably in late October.
This update is brought to you as part of Linda’s One-Liner Wednesdays series. Join us! Find out more here: https://lindaghill.com/2026/08/05/one-liner-wednesday-the-kicker/
Tomorrow (Thursday), I will have an initial consultation with a specialized neurosurgeon in Rhode Island who may be able to address some of my health issues and would appreciate any prayers or good vibes you feel moved to offer. ❤
Join us for Linda’s One-Liner Wednesdays! Find out more here: https://lindaghill.com/2026/07/29/one-liner-wednesday-nothing/
Just proving that I made it through the reading event at the Broome County (NY) Arts Council last night.
Things went well with poems, a short story in translation, music, paintings, and a film, all represented.
Thanks to Connie, Ann, and all the BCAC staff for making the America 250 exhibition and event possible. Thanks also to fellow poet Samantha Terrell who sent me this photo that her husband took while I was reading.
(Graphic credit: WSKG Public Media)
WSKG, our local public broadcaster serving the Southern Tier of New York and Northern Tier of Pennsylvania, sponsored a call for poets in our region as we observe the semiquincentennial of the United States of America.
The call asked for poems addressing one or more of these themes:
Looking Back: history, founding ideals, and untold stories
Right Now: modern America, democracy today, and lived experience
Looking Forward: hopes for future generations.
They received 163 submissions from 25 counties, which I thought was a very impressive showing from our region’s poets!
You can read the ten winning entries here and listen to recordings of their work, nine as of July 2nd, here. (The link to the recordings may not be a permalink, but should work through July, 2026, at least.)
All the submissions were compiled into an anthology. At over 200 pages, it shows the breadth of talent from our region.
For my entry, I combined all three themes around the concept of women’s rights. I intentional wrote two 13-line stanzas, in honor of the 13 colonies that became states. Because I chose to only use the first names of the people I referenced, I also included an explanatory note.
We Work and Wait
by Joanne Corey
Remember the ladies, Abigail
wrote John before the Declaration
but after Sojourner, Elizabeth, Susan
and their sisters of the First Wave
Betty, Gloria, Angela
and their sisters of the Second Wave
Judith, Rebecca, Amy
and their sisters of the Third Wave
Tarana, Wendy, Jessica
and their siblings of the Fourth Wave
and the passage of 250 years
women still work toward
their full independence.
When Shirley ran in ‘72
my girl-self thought soon
but as Wave after Wave
crashed against that
highest, hardest glass ceiling
it inexplicably held.
Will it be my daughters
or my granddaughters
who see the First Ms.
President, the Second
Third, Fourth? So many
they don’t think
to keep count.
Note: People referenced in this poem in order of appearance: Abigail Adams, John Adams, Sojourner Truth, Elizabeth Cady Stanton, Susan B. Anthony, Betty Friedan, Gloria Steinem, Angela Davis, Judith Butler, Rebecca Walker, Amy Richards, Tarana Burke, Wendy Davis, Jessica Valenti, Shirley Chisholm. Quote from Hillary Rodham Clinton’s 2016 concession speech.
I’m grateful to WSKG for this project and the opportunity to respond creatively and share poems with the community. I hope you engage with the arts, whether as a creator or an interactor, at this critical moment in United States history.
I miss writing.
Because of the brain fog and fatigue I’ve had over the last couple of years as a result of my extra-stetchy connective tissue from my hEDS, I can’t spend as much time writing as I would like.
Some kinds of writing, like poetry, have become almost non-existent in my life. I feel like the creative side of my brain isn’t operational the vast majority of the time – and the more analytic side is only at half-capacity, at best. Heck, I have difficulty reading literature of any kind these days. I can sometimes manage to grasp poems, if it’s in the morning and they aren’t too long. I can’t read novels because I can’t get plots and characters to stick in my head over days. I can’t even manage non-fiction books because the brain fog is too thick to remember topics over the course of days and the fatigue level is such that I can’t read very long at a sitting. I’ve been trying to keep up by reading news and commentary articles and newsletters but have been so tired lately that my inbox is overflowing with unread material.
There has been so much happening here in the US that I’ve wanted to write posts about but haven’t been able to manage, which makes me sad. I keep thinking that the next specialist visit will give us something actionable to improve my condition but, instead, it usually means more tests are needed, which means waiting for the tests to be scheduled, doing them, waiting for them to be interpreted, waiting for the specialist to see the results and interpret them – which often yields a different result than the radiology reports that land in my health portal – and get back to me with what they think is going on. Then, maybe, we get to trying a treatment that may or may not work and then onto the next option or the next specialist.
I’m grateful, though, that this year I have a specialist who was finally able to diagnose my hEDS and cerebellar ectopia and that I finally have specialists who know what to try with patients like me. Unfortunately, I might need some pretty scary treatments, like brain surgery.
So, I’m grateful and scared and exhausted and anxious and tired of all the waiting and struggling and symptoms and uncertainty.
And I miss writing and being able to make it through a day without having to spend a good chunk of it lying down and being able to take walks without having someone with me in case I lose my ability to keep my balance and going to visit family and friends and being able to concentrate and speaking without having to search for the right word in some kind of frantic brain race.
I miss the life of the mind that I took for granted as part of my identity.
And here you have an illustration of why stream of consciousness writing is so dangerous to put out there, because this is a way darker post than I thought I was going to be writing when I started out with Linda’s prompt of the word miss and decided to write about missing writing.
It is, though, on brand with Top to JC’s Mind where I usually write honestly about whatever is top of mind for me, even when that mind is more scattered and glitchy and exhausted than it used to be.
There are two big imaging studies coming up for me this week and a hugely important appointment with a specialized neurosurgeon at the end of July. Meanwhile, I’m hoping against hope to get a few significant posts written here, as opposed to the last month which has not been very substantive.
Sigh.
I miss writing.
*****
Join us for Linda’s Stream of Consciousness Saturday! Find out more here: https://lindaghill.com/2026/06/19/the-friday-reminder-and-prompt-for-socs-june-20-2026/
As I wrote here, I was unable to attend the Write Out Loud ’26 event at the Fenimore Art Museum near Cooperstown, NY, last month, but I’m happy to share the newly released recording.
My poem “Nor’easter Numbers” is first on the program, read wonderfully by the fabulous Sharon Rankins-Burd. If you watch the video on YouTube and click on “more,” you can see the program and timings laid out so you can easily navigate to particular pieces. Enjoy! As always, feel free to comment.
WordPress has informed me that I’ve unlocked a new achievement, Globe Trotter. It means that I have received views from 50+ countries.
Okay, it’s taken 12 years but still cool!
My family and I have been recording and watching Stephen Colbert for years, beginning with his years as a correspondent on The Daily Show, followed by his entire run on The Colbert Report and his current gig as host of The Late Show, which is having its final shows this week. While CBS said that it was for financial reasons, the perception is that it was really the result of Stephen’s jokes about Trump, especially as CBS’s parent company was negotiating a sale that needed administration approval.
My occasional blog series, JC’s Confessions, was inspired by Stephen’s Midnight Confessions from his early years at The Late Show, which was followed by a book.
Another long-running feature was Stephen asking his famous guests to answer the Colbert Questionert, which was supposed to reveal their inner selves and be “fully known.” In homage to Stephen and his talented writing team, I, a distinctly non-famous person, will share and answer the Colbert Questionert.
1. What’s the best sandwich?
Grilled cheese, made with Cabot cheddar cheese (which is white, not the bizarre orange that some cheddars are) on homemade white bread
2. What’s one thing you own that you really should throw out?
Deteriorating sheet music that I inherited from a friend of my family when I was a child
3. What is the scariest animal?
A violent person with a gun
4. Apples or oranges?
Apples, because, as Stephen often notes, you can’t put peanut butter on an orange. Also, for me and my delicate constitution, oranges are too acidic.
5. Have you ever asked someone for their autograph?
Lots of someones, as I often ask poets to sign their books for me
6. What do you think happens when we die?
I think that our soul, which can also be understood as our consciousness, continues to exist as energy. This allows us to reunite with loved ones who have passed away and to live eternally within Divine Love, which is my interpretation of heaven.
7. Favorite action movie? The Incredibles, because it gives action without blood and gore.
8. Favorite smell?
fresh-baked bread
9. Least favorite smell?
ammonia
10. Window or aisle?
I like to sit in a window seat because I loved studying geology in college. I like to see the landforms and the clouds.
11. What is your earliest memory? I remember playing outdoors with my older sister and neighbors at the house we lived in when I was three.
12. Cats or dogs?
Dogs, although we only have people in our household due to allergies (and the fact that there is enough to do just taking care of each other)
13. You get one song to listen to for the rest of your life: what is it?
“Ich bin der Welt abhanden gekommen” from Mahler’s Rückert Lieder with mezzo-soprano Janet Baker.
14. What number am I thinking of?
Of course, I can’t answer this in Stephen’s absence, but my choice would, of course, be wrong.
15. Describe the rest of your life in 5 words.
Family – Love – Creativity – Service – Thinking
I don’t know if anyone will think that my answers make me “fully known” or not, but I do love that phrase because it appears in one of my favorite Bible passages, 1 Corinithians 13. Like Stephen, I am a Catholic and I wonder if that passage was in his mind when they decided to use that term in the Colbert Questionert. I find it a comforting concept because so many problems in life seem to stem from misunderstanding among individuals and groups.
I know that Stephen is not retiring so we will hear more from him in whatever creative vehicles he chooses. I will miss, though, hearing from him on a regular basis.
Thank you, Stephen, for all the years of laughter and insight. I hope you get a chance to rest and rejuvenate and spend more time with family after all your hard work.
And, maybe, you should answer your own questionnaire, so you, too, are “fully known.”
Postscript: On the next-to-last episode, Stephen did take the Colbert Questionert himself, asked by a parade of celebrities. I came back to edit this post to reflect the questions asked that night, but I wanted to still include these questions from earlier iterations.
A. Exercise: worth it?
Personally, no, except for physical therapy. One of the things that I’ve learned about my brain and body is that I don’t really get endorphin rush from exercise. I just get even more tired and, if I push too hard, will wind up needing a day or more of minimal activity or even bedrest to recover. My version of dealing with the chronic fatigue that can come with hEDS.
B. Flat or sparkling?
Flat, because my system doesn’t do well with bubbles.
C. Most used app on your phone?
Text. I use my phone as little as possible.
Yesterday, WordPress told me that Top of JC’s Mind/joannecorey.com has passed 100,000 views!
That’s cool!
I have to remind myself that there are also additional views of my posts because some people read my blog via email and don’t visit the site directly, so would not be counted.
Perhaps, those counterbalance the views that result from random bots. Every once in a while, I have a day where I get the message that “my stats are booming.” Those days seldom result in comments or likes, though, so it’s likely they are bots roaming around WordPress. The exception was April 17 when I suddenly got 35 new subscribers, although, presumably they are mostly bots, too.
The main factor in getting to 100,000 views is that I’ve been around since September, 2013. I’ve had a long time to accumulate views. Granted, some bloggers would be disappointed if they weren’t getting 100,000 views per month/week/day(!), but, fortunately, I’m in this for the sake of sharing and chronicling and communicating rather than as a moneymaker so I can just be grateful rather than anxious about stats.
So, thank you to all my past and current visitors!
Even the bots, as long as they are not being destructive…
Silver Birch Press has just published my tanka, “Natives“, as part of their BUGS & INSECTS series! Many thanks to Melanie and SBP for including me in this months-long series!
I really appreciate that SBP includes author notes. Here, it’s a chance to talk a bit about native plants and pollinators.
Please feel free to comment here or on the post itself, if you are so moved. Also, you can click around and read some of the diverse work centered around bugs and insects in this series or re-visit past series. I’ve loved participating in a number of Silver Birch Press prompt series over the past several years and hope to submit to more in the future.
Joanne Corey 