Tag: Joanne Corey

SoCS: writing

I miss writing.

Because of the brain fog and fatigue I’ve had over the last couple of years as a result of my extra-stetchy connective tissue from my hEDS, I can’t spend as much time writing as I would like.

Some kinds of writing, like poetry, have become almost non-existent in my life. I feel like the creative side of my brain isn’t operational the vast majority of the time – and the more analytic side is only at half-capacity, at best. Heck, I have difficulty reading literature of any kind these days. I can sometimes manage to grasp poems, if it’s in the morning and they aren’t too long. I can’t read novels because I can’t get plots and characters to stick in my head over days. I can’t even manage non-fiction books because the brain fog is too thick to remember topics over the course of days and the fatigue level is such that I can’t read very long at a sitting. I’ve been trying to keep up by reading news and commentary articles and newsletters but have been so tired lately that my inbox is overflowing with unread material.

There has been so much happening here in the US that I’ve wanted to write posts about but haven’t been able to manage, which makes me sad. I keep thinking that the next specialist visit will give us something actionable to improve my condition but, instead, it usually means more tests are needed, which means waiting for the tests to be scheduled, doing them, waiting for them to be interpreted, waiting for the specialist to see the results and interpret them – which often yields a different result than the radiology reports that land in my health portal – and get back to me with what they think is going on. Then, maybe, we get to trying a treatment that may or may not work and then onto the next option or the next specialist.

I’m grateful, though, that this year I have a specialist who was finally able to diagnose my hEDS and cerebellar ectopia and that I finally have specialists who know what to try with patients like me. Unfortunately, I might need some pretty scary treatments, like brain surgery.

So, I’m grateful and scared and exhausted and anxious and tired of all the waiting and struggling and symptoms and uncertainty.

And I miss writing and being able to make it through a day without having to spend a good chunk of it lying down and being able to take walks without having someone with me in case I lose my ability to keep my balance and going to visit family and friends and being able to concentrate and speaking without having to search for the right word in some kind of frantic brain race.

I miss the life of the mind that I took for granted as part of my identity.

And here you have an illustration of why stream of consciousness writing is so dangerous to put out there, because this is a way darker post than I thought I was going to be writing when I started out with Linda’s prompt of the word miss and decided to write about missing writing.

It is, though, on brand with Top to JC’s Mind where I usually write honestly about whatever is top of mind for me, even when that mind is more scattered and glitchy and exhausted than it used to be.

There are two big imaging studies coming up for me this week and a hugely important appointment with a specialized neurosurgeon at the end of July. Meanwhile, I’m hoping against hope to get a few significant posts written here, as opposed to the last month which has not been very substantive.

Sigh.

I miss writing.
*****
Join us for Linda’s Stream of Consciousness Saturday! Find out more here: https://lindaghill.com/2026/06/19/the-friday-reminder-and-prompt-for-socs-june-20-2026/

Write Out Loud ’26 recording!

As I wrote here, I was unable to attend the Write Out Loud ’26 event at the Fenimore Art Museum near Cooperstown, NY, last month, but I’m happy to share the newly released recording.


My poem “Nor’easter Numbers” is first on the program, read wonderfully by the fabulous Sharon Rankins-Burd. If you watch the video on YouTube and click on “more,” you can see the program and timings laid out so you can easily navigate to particular pieces. Enjoy! As always, feel free to comment.

Globe Trotter!

WordPress has informed me that I’ve unlocked a new achievement, Globe Trotter. It means that I have received views from 50+ countries.

Okay, it’s taken 12 years but still cool!

The Colbert Questionert

My family and I have been recording and watching Stephen Colbert for years, beginning with his years as a correspondent on The Daily Show, followed by his entire run on The Colbert Report and his current gig as host of The Late Show, which is having its final shows this week. While CBS said that it was for financial reasons, the perception is that it was really the result of Stephen’s jokes about Trump, especially as CBS’s parent company was negotiating a sale that needed administration approval.

My occasional blog series, JC’s Confessions, was inspired by Stephen’s Midnight Confessions from his early years at The Late Show, which was followed by a book.

Another long-running feature was Stephen asking his famous guests to answer the Colbert Questionert, which was supposed to reveal their inner selves and be “fully known.” In homage to Stephen and his talented writing team, I, a distinctly non-famous person, will share and answer the Colbert Questionert.

1. What’s the best sandwich?
Grilled cheese, made with Cabot cheddar cheese (which is white, not the bizarre orange that some cheddars are) on homemade white bread
2. What’s one thing you own that you really should throw out?
Deteriorating sheet music that I inherited from a friend of my family when I was a child
3. What is the scariest animal?
A violent person with a gun
4. Apples or oranges?
Apples, because, as Stephen often notes, you can’t put peanut butter on an orange. Also, for me and my delicate constitution, oranges are too acidic.
5. Have you ever asked someone for their autograph?
Lots of someones, as I often ask poets to sign their books for me
6. What do you think happens when we die?
I think that our soul, which can also be understood as our consciousness, continues to exist as energy. This allows us to reunite with loved ones who have passed away and to live eternally within Divine Love, which is my interpretation of heaven.
7. Favorite action movie? The Incredibles, because it gives action without blood and gore.
8. Favorite smell?
fresh-baked bread
9. Least favorite smell?
ammonia
10. Window or aisle?
I like to sit in a window seat because I loved studying geology in college. I like to see the landforms and the clouds.
11. What is your earliest memory? I remember playing outdoors with my older sister and neighbors at the house we lived in when I was three.
12. Cats or dogs?
Dogs, although we only have people in our household due to allergies (and the fact that there is enough to do just taking care of each other)
13. You get one song to listen to for the rest of your life: what is it?
“Ich bin der Welt abhanden gekommen” from Mahler’s Rückert Lieder with mezzo-soprano Janet Baker.
14. What number am I thinking of?
Of course, I can’t answer this in Stephen’s absence, but my choice would, of course, be wrong.
15. Describe the rest of your life in 5 words.
Family – Love – Creativity – Service – Thinking

I don’t know if anyone will think that my answers make me “fully known” or not, but I do love that phrase because it appears in one of my favorite Bible passages, 1 Corinithians 13. Like Stephen, I am a Catholic and I wonder if that passage was in his mind when they decided to use that term in the Colbert Questionert. I find it a comforting concept because so many problems in life seem to stem from misunderstanding among individuals and groups.

I know that Stephen is not retiring so we will hear more from him in whatever creative vehicles he chooses. I will miss, though, hearing from him on a regular basis.

Thank you, Stephen, for all the years of laughter and insight. I hope you get a chance to rest and rejuvenate and spend more time with family after all your hard work.

And, maybe, you should answer your own questionnaire, so you, too, are “fully known.”

Postscript: On the next-to-last episode, Stephen did take the Colbert Questionert himself, asked by a parade of celebrities. I came back to edit this post to reflect the questions asked that night, but I wanted to still include these questions from earlier iterations.
A. Exercise: worth it?
Personally, no, except for physical therapy. One of the things that I’ve learned about my brain and body is that I don’t really get endorphin rush from exercise. I just get even more tired and, if I push too hard, will wind up needing a day or more of minimal activity or even bedrest to recover. My version of dealing with the chronic fatigue that can come with hEDS.
B. Flat or sparkling?
Flat, because my system doesn’t do well with bubbles.
C. Most used app on your phone?
Text. I use my phone as little as possible.

100,000!

Yesterday, WordPress told me that Top of JC’s Mind/joannecorey.com has passed 100,000 views!

That’s cool!

I have to remind myself that there are also additional views of my posts because some people read my blog via email and don’t visit the site directly, so would not be counted.

Perhaps, those counterbalance the views that result from random bots. Every once in a while, I have a day where I get the message that “my stats are booming.” Those days seldom result in comments or likes, though, so it’s likely they are bots roaming around WordPress. The exception was April 17 when I suddenly got 35 new subscribers, although, presumably they are mostly bots, too.

The main factor in getting to 100,000 views is that I’ve been around since September, 2013. I’ve had a long time to accumulate views. Granted, some bloggers would be disappointed if they weren’t getting 100,000 views per month/week/day(!), but, fortunately, I’m in this for the sake of sharing and chronicling and communicating rather than as a moneymaker so I can just be grateful rather than anxious about stats.

So, thank you to all my past and current visitors!

Even the bots, as long as they are not being destructive…

new poem on Silver Birch Press

Silver Birch Press has just published my tanka, “Natives“, as part of their BUGS & INSECTS series! Many thanks to Melanie and SBP for including me in this months-long series!

I really appreciate that SBP includes author notes. Here, it’s a chance to talk a bit about native plants and pollinators.

Please feel free to comment here or on the post itself, if you are so moved. Also, you can click around and read some of the diverse work centered around bugs and insects in this series or re-visit past series. I’ve loved participating in a number of Silver Birch Press prompt series over the past several years and hope to submit to more in the future.

SoCS: Be prepared

I grew up with the motto, Be Prepared.

This was very useful because we lived in a rural setting with no houses nearby so you couldn’t go to the neighbors’ house to borrow a needed tool or recipe ingredient. The grocery store was 20 miles away so it wasn’t easy to pick up bread or milk or whatever you might have run out of, so we kept a well-stocked pantry and freezer.

Even though I live in a neighborhood now – and have for years – I still tended to keep extra supplies on hand, in order to be prepared for a change in plans or an unexpected circumstances.

Still, though, despite preparations, there are some things for which we are never quite prepared.

Recently, I’ve had some instances of re-visiting my poetry chapbook, Hearts. The poems center on my mother, especially her final years when she was living with heart failure. We knew that she was slowly dying and tried to prepare but, when the time came, it was still somewhat of a shock. I know from discussions I’ve had with others that our preparations for loss are seldom adequate.

For me, there is, though, a certain comfort in trying to prepare, even when my preparations aren’t sufficient.

I’ll keep trying…
*****
Linda’s prompt for Stream of Concsiousness Saturday this week is to base your post on a word the starts with “pre.” Join us! Find out more here: https://lindaghill.com/2026/02/20/the-friday-reminder-and-prompt-for-socs-feb-21-2026/

SoCS: Top of JC’s Mind

I started Top of JC’s Mind in September, 2013, and, sometimes, I like to take another look at some of my older posts.

It’s an eclectic blog with lots of topics and you could rummage around in old posts, too, if you like.

Sometimes, I am looking back for specific topics or events. There are also threads that weave in and out over time.

For example, I wrote a lot of comments on the eventually successful campaign to keep shale gas fracking out of New York – which had a brief, ugly reprise in the more recent effort to add CO2 fracking to our state ban. There are also renewable energy posts, including posts on heat pumps, solar panels, and EVs. We are proud to be an electrified household powered by the sun!

There are poetry posts, including posts from my residencies with the Boiler House Poets Collective at the Studios at MASS MoCA which began in fall 2015.

I’ve written quite a lot of COVID/pandemic posts. I’m humbled that one of the local historical societies has been printing those posts to place in their archives for possible research in the future.

The most poignant posts for me are the ones that involve my family. I wrote about my parents in their final years. Those posts were helpful to me at the time as a way to process what was going on but are also good to look back on from time to time.

While I’m admittedly not a great photographer, I’ve tried to include some photos. It’s handy that, during the years of Top of JC’s Mind, we have had family living in Hawai’i, and later, London. Even an amateur can take decent photos in those settings. I also like to take photos in the western Massachusetts/Southern Vermont area where I lived as a child and teen.

So, I invite you to take another look at Top of JC’s Mind.

Or a first look, if that is more applicable…
*****
Linda’s prompt for Stream of Concsiousness Saturday this week is “take another look.” Find more information on joining us for SoCS and/or Just Jot It January here: https://lindaghill.com/2026/01/23/the-friday-reminder-for-socs-jusjojan-2026-daily-prompt-for-jan-24th/

One-Liner Wednesday: organ

Joanne Corey at the Austin organ console in John M. Greene Hall, Smith College, Northampton, Massachusetts, 1981 (Photo credit: Mary Wallace Strizek)

A triple dip! Today’s One-Liner Wednesday/Just Jot It January pingback with a special tie-in to Sunday’s JusJoJan prompt “organ.”

Join us! Find out more here: https://lindaghill.com/2026/01/21/one-liner-wednesday-jusjojan26-the-21st-truer-words/

One-Liner Wednesday: Renee Nicole Good

murdered poet gifts
words crowds magnify Renee’s
voice radiates Good

Sharing again the haiku I posted Monday about Renee Nicole Good, whose death at the hands of an ICE agent in Minneapolis has horrified millions in the United States and around the world.

Please join us for Linda’s One-Liner Wednesdays and/or Just Jot It January! Find out more here: https://lindaghill.com/2026/01/14/one-liner-wednesday-jusjojan26-the-14th-decisions-decisions/