While this post will be stream of consciousness for Linda’s Stream of Consciousness Saturday on the prompt “easy/hard,” it is also part of my occasional series JC’s Confessions, so I will open with the usual non-SoC opening for that series.
In the first few seasons of The Late Show, Stephen Colbert did a recurring skit, then a best-selling book, called Midnight Confessions, in which he “confesses” to his audience with the disclaimer that he isn’t sure these things are really sins but that he does “feel bad about them.” While Stephen and his writers are famously funny, I am not, so my JC’s Confessions will be somewhat more serious reflections, but they will be things that I feel bad about. Stephen’s audience always forgives him at the end of the segment; I’m not expecting that – and these aren’t really sins – but comments are always welcome.
Reading, which is something that was usually easy for me, is now often hard to do.
As someone who loves reading and who is trying to be a writer and poet, that’s a hard thing to admit.
This change is mostly related to what has recently been diagnosed as hypermobile Ehlers-Danlos syndrome (hEDS), an inherited connective tissue disorder that affects collagen. Because we have connective tissue throughout our bodies, many different body parts and systems are affected and the symptoms and their locations vary over time.
For these last couple of years, I’ve been having a lot of problems with my brain and with fatigue.
I often have brain fog, which makes it difficult to concentrate. This makes it hard to read anything that is long, like books. I do better with short things, so I do a lot of my reading these days in the forms of emails, so, given what is going on, I read commentary on political topics and environmental problems and some Catholic church/social justice news that lands in my inbox.
You would think that poems would be perfect for my length limitations, but, sadly, this isn’t the case. I’ve largely lost contact with the creative side of my thinking, making it hard for me to read poetry most of the time, as I am not able to really appreciate the art of the poet. I hadn’t realized how much of my own creativity is wrapped up in reading someone else’s work. I do still manage to do a bit of reading of poems, especially my poet-friends’ work, but it’s frustrating and sad for me, knowing that I can’t fully appreciate their artistry.
I also have severe limits on how long I can read, write, or concentrate. I’m writing this in the morning and hope to draft one other practical letter I need to write, but that will probably be about it for the day because I will be very tired afterward. In order to have energy to go to vigil mass at 4:00, I’ll most likely spend the early afternoon lying down and resting.
It’s really hard to deal with these limitations on my brain power and energy.
There are also some other problems caused by my hEDS that interfere with my reading. I’m having a couple of problems with my eyes. I have some level of visual disturbance going on, especially with my left eye, which causes some blurring that isn’t able to be corrected with glasses. The problem isn’t with the eye itself but with the brain in processing it – at least that is the current theory. It may be related to dysautonomia, where the regulation of all those things that our bodies ordinarily do without our thinking about them goes a bit haywire. On rare occasions, I can concentrate hard enough on what I am looking at that I can get the blurriness to clear, although only for a short amount of time and at risk of ramping up the fatigue.
The other connective tissue-related eye problem is dry eye, which I treat with prescription drops, artificial tears, and taking flaxseed oil. These help but don’t eliminate the problem, which, on top of everything else, makes reading, especially onscreen, more tiring.
Now that we know about the hEDS, we may be better able to address some of the problems underlying this struggle I’m having with reading.
Or not.
I have a bunch of referrals to new specialists pending. I’m most anxious to find help for the brain fog/fatigue symptoms so that I can think and feel like myself again.
Meanwhile, I feel sad – and, sometimes, guilty – that I can’t manage to read my friends’ work or keep up with the torrent of news and commentary that I would like to do.
I try to give myself grace, but it’s hard.
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You are invited to join us for Linda’s Stream of Consciousness Saturdays. Find out more here: https://lindaghill.com/2026/03/20/the-friday-reminder-and-prompt-for-socs-march-21-2026/
Joanne Corey 