Category: family

250th Evacuation Day!

March 17th is observed by Catholics around the world – and everyone who is of Irish heritage or who just wants to join the celebration – as St. Patrick’s Day.

My late father-in-law was an elementary school principal in western Massachusetts for many years and observed March 17th as Evacuation Day, the day in 1776 when the British evacuated their soldiers, some loyalists, and their ships from Boston, ending a 332-day siege. This year marks the semiquincentennial of that event.

At school, he would announce the day over the intercom in morning announcements. As computers and dot matrix printers appeared later in his tenure as principal, he designed an Evacuation Day card.

He would also buy Evacuation Day flowers for his wife, a bit of an inside joke as she also was of Irish heritage so March 17th was St. Patrick’s Day for her. After he passed away in 2005, we took up the family tradition of Evacuation Day flowers, sending them to Grandma and also featuring them in our home.

Now, we give Evacuation Day flowers to our daughters, which is even more ironic now that one of them lives in London with daughters of her own who will, no doubt, have a different perspective on this history.

Wishing you all a great day, whether you observe St. Patrick’s Day, Evacuation Day, or just another Tuesday today!

About the photo: This is a picture of my dad, known here as Paco, taken in Ireland in 2019 when my sisters took him on his first-and-only trip there when he was 94. He was of Irish heritage and had wanted to visit but wouldn’t go without our mom who didn’t fly. The trip happened in October after her death in May and, though we couldn’t have known then, just months before COVID-19 became an international pandemic. Paco passed away in September, 2021, so it was indeed the “luck of the Irish” that he was able to see Ireland in the brief window in which it was possible.

Paco’s middle name was Patrick.

It’s Pi Day!

In honor of Pi Day (3/14), spouse B made a maple pecan pie in our special “pi” pie plate. If you can’t make it out from the photo, the rim has the value of pi printed out to a hundred or so decimal places.

Yes, we are just that geeky!

We actually have two pi pie plate because my sisters each saw them and thought of B and bought them for Christmas gifts. We use them often but lots of times the rim is covered by crust so you can’t see the numbers. Not a problem with the maple pecan pie, though!

Hoping that everyone has some pie today – or something as yummy!

One-Liner Wednesday: Hot Cross Buns

Spouse B made Lenten Hot Cross Buns with old-school dough crosses rather than icing


Join us for Linda’s One-Liner Wednesdays! Find out more here: https://lindaghill.com/2026/03/11/one-liner-wednesday-a-burning-question/

SoCS: Be prepared

I grew up with the motto, Be Prepared.

This was very useful because we lived in a rural setting with no houses nearby so you couldn’t go to the neighbors’ house to borrow a needed tool or recipe ingredient. The grocery store was 20 miles away so it wasn’t easy to pick up bread or milk or whatever you might have run out of, so we kept a well-stocked pantry and freezer.

Even though I live in a neighborhood now – and have for years – I still tended to keep extra supplies on hand, in order to be prepared for a change in plans or an unexpected circumstances.

Still, though, despite preparations, there are some things for which we are never quite prepared.

Recently, I’ve had some instances of re-visiting my poetry chapbook, Hearts. The poems center on my mother, especially her final years when she was living with heart failure. We knew that she was slowly dying and tried to prepare but, when the time came, it was still somewhat of a shock. I know from discussions I’ve had with others that our preparations for loss are seldom adequate.

For me, there is, though, a certain comfort in trying to prepare, even when my preparations aren’t sufficient.

I’ll keep trying…
*****
Linda’s prompt for Stream of Concsiousness Saturday this week is to base your post on a word the starts with “pre.” Join us! Find out more here: https://lindaghill.com/2026/02/20/the-friday-reminder-and-prompt-for-socs-feb-21-2026/

One-Liner Wednesday: Valentine’s food

For One-Liner Wednesday this week, I’m following up on my Stream of Consciousness Saturday post which mentioned the Valentine’s Day dinner B prepared for daughter T and me.

Individual beef Wellington, which looks huge because it is on B’s grandparents’ china, back when plates were a more reasonable size (not pictured: the roasted potatoes and butternut squash)
tiramisu – this is T’s piece with the cocoa, which B left off mine as I, sadly, can’t have it

SoCS: Love

Linda’s prompt for Stream of Consciousness Saturday this week is “love.” I’m assuming she chose that prompt for today because it is Valentine’s Day and love is in the air.

B is making individual beef wellingtons for dinner with tiramisu for dessert, leaving the cocoa sprinkled on top off my portion because I can’t have it. (Update: photos here https://joannecorey.com/2026/02/18/one-liner-wednesday-valentines-food/)

Meanwhile, I will be spending the day resting after yet another medical test and a physical therapy session yesterday. If I’m lucky, I’ll manage to make vigil mass this afternoon. I’m hoping that a down day today will make if possible to get through a two and a half hour Madrigal Choir rehearsal tomorrow.

In short, I’m not doing anything special for B this Valentine’s Day.

And he is perfectly okay with that.

B and I met and became friends when I was in my first year in high school and he in his second. By the wonders of our history teacher, Miss Stewart, who seated us in alphabetical order, we were near each other. Within a couple of years, we were high school sweethearts. We married a few weeks after I graduated from college and will celebrate our 44th anniversary this spring.

Our love for each other is an integral part of who we are and who we became, given that we have been growing together since our early teens.

B doesn’t need me to have a special Valentine’s Day gift for him to assure him of my love.

He knows my love for him is who I am and I know his love for me is who he is.

I will, of course, enjoy the special dinner he is making.

And the lemon blueberry scones currently in the oven for breakfast.

But I live B’s love every day and that is the real Valentine’s Day gift that is with us for life.

I hope that love finds each of you today in whatever form it may take for you.

SoCS: life chapters

I often think of my life in chapters.

They aren’t sequential or in blocks of time, though.

It’s more that they are organized topically.

For example, in my volunteer life, there are chapters around church, social justice advocacy, environmental causes, and school curriculum and committees when I was a parent.

In music, there is the church music and organ chapter, composition, and choral music, starting in high school, then Smith College both as a student and alum, decades with University Chorus at SUNY-Binghamton, and now with the Madrigal Choir of Binghamton.

In my personal life, the chapters are very long. Some as a daughter, granddaughter, and sister are life-long. Even though my parents and grandparents have all passed away, being a daughter and granddaughter is forever, as is being a sister.

Another long chapter which is ongoing is with my spouse B, who I met early in high school. We will celebrate our 44th anniversary later this year. I think that part of the reason we are who we are at this point is that we were able to grow and change together over all this time.

And then, there is my writing life, with chapters for school, what I think of as utilitarian writing like doing commentary, blogging, and poetry.

Two chapters that remain close to my heart are as a mom and, for the last 8 and a half years, a grandmother. Those chapters are the most forward-looking. I don’t think of my daughters’ and granddaughters’ stories as sequels to mine because they are their own authors but I am honored to be a chapter in their own books of life.
*****
Linda’s prompt for Stream of Consciousness Saturday this week is “chapter.” Join us! Find out more here: https://lindaghill.com/2026/02/06/the-friday-reminder-and-prompt-for-socs-feb-7-2026/

mass online

I had hoped to attend vigil mass yesterday afternoon but the level of dysautonomia, pain, and fatigue I was having made it inadvisable. It was cold and I didn’t think that I could handle the amount of walking and being upright involved, even if I went to a nearby church rather than my own church which is a further drive.

Instead, I participated in an online mass through Heart of the Nation. While a local station televises the mass on Sunday, I was able to access it online on Saturday. One of my favorite homilists was presiding and viewing online gives a bit more time so I got to hear more music than in the televised version.

Back during my mother’s illness, she used to watch mass on television when she could no longer attend in person and visitors from the church would bring her communion from time to time. Eventually, I was given a pyx so that I could bring the Eucharist to her myself. It is mentioned in this poem, first published by Wilderness House Literary Review:

In my purse

cheap pens I won’t miss if they’re lost
my wallet, heavy with too many coins
ibuprofen for headaches
a pack of tissues
hair ties for windy days
a dog-eared calendar
my license to drive
a crumpled shopping list
emergency cough drops
a pyx
my favorite mechanical pencil, extra lead
credit cards – insurance cards – loyalty cards
a laminated prayer card from my mother’s funeral

One of the blessings of the pandemic shutdowns for me was the re-discovery of online or televised mass when I couldn’t attend in person. It’s comforting to have that alternative on weekends like this one.

I may need to take it more often in the future if we can’t get better control of my symptoms.
*****
Join us for Linda’s Just Jot It January! Find out more here: https://lindaghill.com/2026/01/25/daily-prompt-jusjojan-the-25th-2026/

SoCS: Top of JC’s Mind

I started Top of JC’s Mind in September, 2013, and, sometimes, I like to take another look at some of my older posts.

It’s an eclectic blog with lots of topics and you could rummage around in old posts, too, if you like.

Sometimes, I am looking back for specific topics or events. There are also threads that weave in and out over time.

For example, I wrote a lot of comments on the eventually successful campaign to keep shale gas fracking out of New York – which had a brief, ugly reprise in the more recent effort to add CO2 fracking to our state ban. There are also renewable energy posts, including posts on heat pumps, solar panels, and EVs. We are proud to be an electrified household powered by the sun!

There are poetry posts, including posts from my residencies with the Boiler House Poets Collective at the Studios at MASS MoCA which began in fall 2015.

I’ve written quite a lot of COVID/pandemic posts. I’m humbled that one of the local historical societies has been printing those posts to place in their archives for possible research in the future.

The most poignant posts for me are the ones that involve my family. I wrote about my parents in their final years. Those posts were helpful to me at the time as a way to process what was going on but are also good to look back on from time to time.

While I’m admittedly not a great photographer, I’ve tried to include some photos. It’s handy that, during the years of Top of JC’s Mind, we have had family living in Hawai’i, and later, London. Even an amateur can take decent photos in those settings. I also like to take photos in the western Massachusetts/Southern Vermont area where I lived as a child and teen.

So, I invite you to take another look at Top of JC’s Mind.

Or a first look, if that is more applicable…
*****
Linda’s prompt for Stream of Concsiousness Saturday this week is “take another look.” Find more information on joining us for SoCS and/or Just Jot It January here: https://lindaghill.com/2026/01/23/the-friday-reminder-for-socs-jusjojan-2026-daily-prompt-for-jan-24th/

a diagnosis (finally)

While I would usually be posting on the Stream of Consciousness Saturday prompt today, I’m opting instead for doing an edited Just Jot It January post.

Okay, this is going to be more than a “jot” but will be something that I feel compelled to give an update to the usual crowd of SoCS participants.

Since March, 2024, I’ve been having a growing array of odd symptoms – I won’t bore you with the whole list – that have been interfering with my ability to function. The brain fog and fatigue have been especially problematic.

I’ve posted variously about these symptoms and their impact on my life. Along the way, I’ve been diagnosed with a number of conditions that affect a certain body part or system but have always felt that these different symptoms were related.

This week, I finally have an answer. I’ve been diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS). hEDS is an inherited connective tissue disorder. Because we have connective tissues throughout our bodies, it impacts many different parts and systems of the body. Each individual with hEDS has their own unique combination of symptoms which may change over time. While hEDS follows an autosomal dominant inheritance pattern, the specific genes underlying it have not yet been identified. Because there is currently no test that detects hEDS, it tends to be missed, especially because there is no medical specialty dedicated to connective tissues.

Just in case you were wondering how a 65-year-old gets an initial diagnois of a genetic disorder. My (embarrassingly large) number of medical practitioners have spent the last almost two years ruling out various diagnoses or diagnosing component parties of hEDS without putting all the pieces together. I’ve learned from patient advocacy groups that there are other people who were not diagnosed until their fifties, sixties, or even older.

I actually was pretty sure I had either hEDS or the related condition, hypermobility spectrum disorder (HSD), 19 months ago. A close family member was facing an unusual medical condition that required surgery and her doctor realized that her connective tissues were not responding in a typical way. She suggested that there might be a connective tissue disorder present and advised seeing a geneticist physician. In assembling a full family history and researching hEDS/HSD with my family member, I felt that my body made sense for the first time.

I was excited and told my primary care doctor, but she felt we had to rule out every other possible cause of my symptoms first. Even when my family member was diagnosed with hEDS last June and the genetic connection was clear, my medical team was still not making the diagnosis.

That changed when I was finally able to see a nurse-practitioner who specializes in integrative/supportive medicine. With my records, family history, symptoms, and physical exam, she was able to diagnose me with hEDS and, importantly, to order additional tests to help pinpoint the cause of my current symptoms. She also knows where to send me for treatment, which will be especially important if I need to have surgery.

hEDS affects more women than men, so, no surprise, the symptoms tend to be written off as stress- or hormone-induced. I particularly remember having to explain to a doctor that I could tell the difference between brain fog and writer’s block. I also faced skepticism that I could be this old without any medical professionals realizing I have a genetic disorder, but, as others have pointed out, that should be a reflection on them, not me. Education about inherited connective tissue disorders has been lacking in medical education but I am hopeful that new research will break through and raise awareness so that it’s easier for people with hEDS/HSD to be diagnosed and treated appropriately much earlier in their lives.

I am trying to do my part by sharing my story and accurate information. As my treatment plan develops, I’ll post about it.

I must say, though, that the people who have been most helpful to me have been my physical therapists. Although my lead therapist realized that I have a connective tissue disorder and has been helping me to strengthen muscles and improve my posture, along with heat, massage, and stretching, she isn’t allowed to make medical diagnoses. She is also happy that I finally have an official hEDS diagnosis. The hope is that the additional tests I will now have will give us more data on how best to address my symptoms.

Obviously, a genetic disorder like this can’t be cured, but we should be able to improve at least some of my symptoms. For now, it feels good to have validation that there are reasons why my body reacts as it does. No more doctors implying that it’s all in my head or that I just need to reduce stress. Maybe some of them will even be moved to learn more about inherited connective tissue disorders.

They may even find that there are a lot more of us than they realized…
*****
For more information on joining in with Stream of Consciousness Saturday and/or Just Jot It January, please visit Linda’s blog here: https://lindaghill.com/2026/01/16/the-friday-reminder-for-socs-jusjojan-2026-daily-prompt-for-jan-17th/