Blog – Top of JC’s Mind

SoCS: hope

I have long said that hope is the virtue that I struggle with.

Or maybe it is that I struggle with the intersection of hope and reality.

I do try to keep my hopes realistic, not veering off into fantasy, but lately, it seems, even my realistic hopes get dashed on a regular basis.

On a personal level, my biggest struggle to maintain hope has been with my father’s health condition after a fall four weeks ago. I keep hoping that the medical team will be able to figure out what is causing his increased confusion, disorientation, and fatigue, so that we can make him more comfortable, but we don’t seem to be able to. I am not hoping for a miracle. Paco is 96 and has several underlying health conditions. I know the time we have left with him is limited. I just want to help make things as comfortable and stress-free as possible. I didn’t think this was an unrealistic hope, but perhaps it is.

Even with this personal struggle, there is always an awareness of what is going around us here in the US. I had hoped that, with several effective vaccines widely available, we could tamp down the pandemic, including the newer and more contagious variants. Instead, we are seeing some areas with very low vaccination rates experiencing spikes in COVID cases. Another realistic hope dashed.

Equally or perhaps even more alarming is the increasingly bizarre behavior of the Republican party. I had hoped that, after what even Republican election officials knew was a fair election, and especially after the horror of the January 6th insurrection and attack on the Capitol, the Republicans would fulfill their Constitutional duties and govern, at this point as the minority party. But they are not. In states that have a Republican legislature, especially if there is a Republican governor, too, we are seeing rafts of legislation that try to suppress votes of people who are less likely to choose Republican candidates. This isn’t just another dashed hope. It feels dystopian.

Of course, some hopes are more mundane. I had hoped to get an SoCS post written before I fell asleep and I have managed that.

I hope that Paco will have a decent day tomorrow.

And a decent week.

I hope that isn’t too much to hope for.

*****
Linda’s prompt for Stream of Consciousness Saturday this week is “hope.” Join us! Find out more here: https://lindaghill.com/2021/07/09/the-friday-reminder-and-prompt-for-socs-july-10-2021/

Paco update

Linda’s prompt for Stream of Consciousness Saturday last week was to base the post around a word that contained -igh. My thought was to write a post beginning with “Sigh” about my father’s continuing health struggles, following up on two previous SoCS posts.

The day after I wrote the post linked above, Paco’s condition deteriorated and I made the decision to send him to the emergency room. After the initial check-in, I was allowed to be with him. The ER team was very thorough and found that he was dehydrated and had three new fractures in his lumbar vertebrae. After some IV fluids, he went back to the rehab facility by ambulance at 3 AM.

I caught a nap and was very grateful to learn that my older sister had moved up a planned visit and would arrive that afternoon. She spent a lot of time with Paco on compassionate care visits while I worked out a lot of logistics. It turned out that a rehab room opened up within his senior community; the place where he currently was in rehab was a sister facility in a nearby city. Paco was set to move back on Friday and I spent a lot of time packing up things in his assisted living unit, some to send up to his rehab room there and some to bring back to our house as we had decided to give up his place in assisted, as we know he won’t be well enough to return there any time soon – and may never recover to that point.

The plan on Friday had been that our family would finish clearing out his place in assisted and help Paco to get settled into rehab, but we arrived to find that someone in the assisted wing had tested positive for COVID, so it had to go into lockdown. Fortunately, this didn’t affect Paco’s move and he arrived safely via medivan. I signed yet another cache of documents and was allowed a short visit to help him get settled.

Unfortunately, our hard-won rights to expanded compassionate care visits got lost in the bureaucracy with the impending holiday weekend adding another layer of complications with so many staff away on vacation. I was able to get permission for some extra visiting time over the weekend but face another round of changing personnel, location, rules, etc. this coming week.

Meanwhile, Paco is confused and exhausted. The silver lining is that his pain level is generally low.

The big question mark remains how much recovery is possible in regards to daily living functions. I don’t know if the rehab team will be able to make a valid prediction or not.

It may be a situation of wait and watch and work and hope and pray and see where we end up.

One-Liner Wednesday: a helpful hint

Helpful Hint: A good, multi-layered cloth mask makes an excellent eye shield if you need to try to sleep under bright lights. (discovered during an emergency room visit with Paco Sunday night/Monday morning)
*****
Join us for Linda’s One-Liner Wednesdays! Find out more here: https://lindaghill.com/2021/06/30/one-liner-wednesday-laying-down-on-the-job/

SoCS: ups and (mostly) downs

When I saw that Linda’s prompt for Stream of Consciousness Saturday this week was “up/down”, I knew that I needed to write a follow-up to last week’s SoCS in which I talked about my father (Paco) and his recent fall, hospitalization, and move to a rehab facility.

When I wrote last Saturday, it seemed that, though there was a long way to go, things were trending up.

Everything changed on Sunday when new complications arose. For various reasons, I will not even attempt to elaborate.

Let’s just say it has been a very “down” week.

We are working hard at untangling a mass of symptoms and trying to keep him safe and comfortable, but it’s an uphill battle. I know he is 96 and so, very vulnerable and prone to complicating factors but it is still so hard to deal with.

And to watch.

I know intellectually that I am doing all that is possible for me to help him and his care team, but my heart aches because I can’t make it better.

We have no idea what the outcome will be. It’s not just one day at a time, which is Paco’s favorite saying. It’s one hour at a time. One moment. One more early morning phone call telling me that he fell again during the night.

There are up moments here and there. When Paco easily remembers my name. When he gets to enjoy a slice of blueberry pie for dessert at lunch. When he manages to make a little joke with his aides.

I had planned to go to vigil mass today at a friend’s church, but was too tired to make the drive, so I went to a nearby church instead. I was blessed to see Sister A. there. She had been one of the stalwart visitors during my mother’s final illness, a span that stretched over two years. Because of the pandemic and other circumstances, I had not seen her in months. I was able to fill her in on Paco’s condition and she assured me that she has been lifting him up in prayer.

After such a “down” week, that assurance was a much-needed balm.

*****
Join us for Linda’s Stream of Consciousness Saturday! Find out more here: https://lindaghill.com/2021/06/25/the-friday-reminder-and-prompt-for-socs-june-26-2021/

broken

I think I might be broken.

Last week was rough as I wrote about for Stream of Consciousness Saturday yesterday.

Today is Father’s Day in the United States. I was able to speak briefly with my dad this morning, but he was pretty confused about handling the phone and they were about to change one of his dressings. There aren’t visiting hours until Tuesday evening, so there is no chance to see him. We did drop off a card yesterday and he has gifts and cards already from my sisters.

He can’t really remember that it’s Father’s Day anyway…

Meanwhile, it is also Father’s Day for B here at our house but I’m having trouble focusing enough to plan dinner or much of anything else. It’s taking effort just to make my eyes focus to write this.

I did sleep quite a bit last night after very little sleep the night before.

Somewhere in the midst of all of this, we went out to dinner for our 39th wedding anniversary and opened some cards. Originally, we were going to go away for a couple of days. We still might, once I get through the initial care conference for Paco on Tuesday. I need to write notes and questions to prepare for that. Oh, and also get ready to deal with all the insurance folks.

Maybe tomorrow.

Maybe I won’t feel so broken then.

SoCS: and the hits just keep on coming…

No, this is, unfortunately, not going to be a post about what’s on the Top 40.

I have been scarce/non-existent here at Top of JC’s Mind for the last week because my 96-year-old dad, known here as Paco, fell in his assisted living unit last Saturday. B and I had visited him in the 1-1:30 visiting slot, but he fell about 3:00. We think he was in the kitchenette but aren’t sure. Although he hit the floor pretty hard, he managed to get himself up and over to the couch where he called for help.

He has had a few falls before, but he hit much harder this time. His left side took the force of the fall. He was sent by ambulance to the local hospital where the extent of his injuries was revealed and he was admitted with a bump and cut on his head – luckily no concussion – bruises and contusion on his left arm and elbow, deep bruising on his left hip – luckily no break – a cracked left rib, and two wing fractures of back vertebrae.

The fall, pain, unfamiliar surroundings, etc. also worsened his cognitive condition. Paco already is suffering from dementia and this fall completely unmoored him. On Wednesday, he was stable enough to transfer to a rehab unit. We are hoping that his cognition will improve as he heals and gets stronger. It’s a much calmer and more stable environment than being in the hospital.

Tomorrow is Father’s Day in the United States and it’s hard because we won’t be able to see Paco as visiting in the rehab facility is extremely limited.

The other hit that our family is trying to absorb is that we just got word that a member of our extended family has been diagnosed with metastatic cancer. She is only thirty. She is strong and fighting but everyone is devastated.

And the hits just keep on coming…

*****
Linda’s prompt for Stream of Consciousness Saturday this week is “hat/het/hit/hot/hut.” Join us! Find out more here: https://lindaghill.com/2021/06/18/the-friday-reminder-and-prompt-for-socs-june-19-2021/

SoCS: going out for a drive

One of the changes with the rules in New York State and with my father’s assisted living home is that I can now sign him out and take him for a drive. Previously, I could only take him to medical appointments.

My father, who is known here as Paco, loved to drive. He drove quite a bit when he worked for New England Power Company for 43 years and, given that our town was twenty miles from a grocery store, other stores, our grandparents and other relatives, the movie theater, and just about anything else that wasn’t work-related, he drove quite a bit on evenings and weekends, too. (My mom also drove, especially taking us to piano lessons and my sister’s dance lessons, but, if the five of us were going somewhere together, Paco always drove.)

In those days, it wasn’t unusual to “go for a drive” as a form of recreation. Given that we lived in the Massachusetts/Vermont border area, there was beautiful scenery in any direction you chose to drive. And hills. And what to us was normal but in retrospect were narrow, winding, and largely unmarked roads. It didn’t matter. Paco was used to it and was a very good driver with a very good sense of direction.

Paco had said that he would stop driving when he turned 90. That turned out to be not quite true. I think he stopped when he was 92. By then, my mother was entering her final battle with congestive heart failure and Paco was staying with her in their apartment nearly all the time. Their senior community offered transportation for the occasional trip to the grocery store or for medical appointments and I was nearby and there every day and could drive for errands or deliver things to them. They decided to sell their car and Paco replaced his driver’s license with an official state ID.

The IDs have a longer renewal term than driver’s licenses do, so his current ID is good until he is 103. He’s currently 96. He says he doesn’t think he will make it to 100.

We’ll see.

Paco is famous among family for always saying “One day at a time.”

It’s all any of us can do.
*****
Linda’s prompt for Stream of Consciousness Saturday this week is “drive.” Join us! Find out more here: https://lindaghill.com/2021/06/11/the-friday-reminder-and-prompt-for-socs-june-12-2021/

digging out

In late May, I spent a few days on a private writing retreat back in North Adams, Massachusetts. I grew up in the area and it is the subject of my poetry collection work-in-progress, so it is helpful to me to be back there to work on it. (I wrote about it here for Stream of Consciousness Saturday, so even more rambling than I am when I have the luxury of editing myself.)

Part of the reason it is helpful to be back there is that I’m relieved of most of the caretaking/errands/planning/phoning/corresponding that take up a lot of my brain when I am at home. As if to make up for my being away for a bit, my return was greeted with an avalanche of problems that I may, finally, be at the point of seeing light at the end of the tunnel.

It’s exhausting.

I will not bore you with any details other than to say that anyone who has ever had to deal with a complex issue with a US insurance company has some inkling of what it has been like times three.

The update on the manuscript is that it is in the hands of my poet-friends with an eye toward doing a full review sometime in the next few weeks. I was fortunate that I had returned from North Adams with the poems basically done and ordered. I powered through writing the foreword and end notes before June hit so I was able to pivot to dealing with bureaucracy.

Fingers crossed that personal life will calm down in time for the manuscript review and for a couple of weeks for revision time so that I can send the manuscript out for July submission calls. Tupelo Press just helpfully reminded me that they will be having an open submission period for manuscripts in July. After attending the inaugural Tupelo Press/Studios at MASS MoCA residency week in 2015, I promised that I would send them work. I didn’t think it would be this many years before I would have the manuscript completed, but I am looking forward to finally keeping that promise. I feel especially obligated to send this to them because so many of the poems intersect with MASS MoCA, my time there, and the art.

I will, of course, be sending the manuscript to other publishers and contests because one needs to cast as wide a net as possible to find the right fit between the press and the poet.

One hopes.

Fingers crossed.

One-Liner Wednesday: remembering the past

“Anyone who closes his eyes to the past is blind to the present. Whoever refuses to remember the inhumanity is prone to new risk of infection.”

~~~ Richard von Weizsäcker, President of West Germany, in 1985 marking the 40th anniversary of the end of World War II (copied from an article in the Washington Post)

Join us for Linda’s One-Liner Wednesdays! Find out more here: https://lindaghill.com/2021/06/09/one-liner-wednesday-late-to-the-party/

so many roses!

rose

The above inadvertently artsy shot with sunbeams is of roses growing in our back yard. This rose is a daughter of a rosebush that grew near my mother’s childhood home in Hoosac Tunnel, Massachsuetts. You can read more of the backstory in this post which itself includes a personal essay from before I started blogging.

This rosebush is the subject of the one poem that appears in both my chapbook and collection manuscripts, which I can’t share here because it is currently unpublished. It tells the story of the revival of this daughter bush from near death and ends during my mother’s final illness.

We have just passed the second anniversary of her death. The rose bush apparently liked the snowy winter and slowly unfolding spring this year and has more blossoms than I have ever seen. It has also grown very tall, as you can see in the photo below. For reference, I’m 5′ 1.5″ (1.56 meters), so the rose bush is probably close to seven feet (2.1 meters) high.

with

Because this is an heirloom close-to-wild rose rather than a hybrid, it has a very strong scent. With so many blossoms this year, the smell is heavenly.

Nana would have loved it.