When I saw the specialized neurosurgeon last week, after posting here for positive vibes, they asked what my three most troublesome symptoms are and I answered, “Brain fog, fatigue, and balance problems;” they told me that surgery for Chiari malformation should help all three, so I will have that, probably in late October.
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Joanne Corey 
That sounds like good news with relief on the way.
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Yes! After two and a half years, there’s finally hope that my most troublesome symptoms will improve. The recovery timeline will be 3-6 months, though, because my brain has been coping with cerebrospinal fluid problems all this time and will need time to heal and re-adjust.
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this sounds promising
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It is! It seems a bit odd to say, “Yay! Brain surgery!” but when the alternative is continuing symptoms because my cerebrospinal fluid is not able to circulate properly, I’m ready to go with this very experienced and expert neurosurgeon.
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i understand –
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❤
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Good news! Lots of surgeries coming up this autumn — you, my mom, my friend’s knee replacement.
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Hoping all of us will make it through successfully with as little pain as possible. I think I will be number one for recovery time! 😉
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All three! That is wonderful! How long you’ve been working just to find out what is causing the issues, and now a plan comes into view. I’ve got my fingers crossed and prayers rising for you.
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Thanks, Ellen! It feels strange to say, “Yay, brain surgery!” but I am relieved to finally have an actionable diagnosis and plan.
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Yay! This is hopeful! 🙂 Your persistence is paying off. The illustration of the cerebellar tonsils in the article was interesting.
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One of the confusing things about my diagnostic journey is the number of times that health professionals looked at my imaging and missed what was obvious to someone who understood what to look for. It makes me appreciate the specialists all the more, although I wish there was more training for the rest so that diagnosis and treatment happens in a more timely way.
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