When I saw that Linda’s prompt for Stream of Consciousness Saturday this week was “up/down”, I knew that I needed to write a follow-up to last week’s SoCS in which I talked about my father (Paco) and his recent fall, hospitalization, and move to a rehab facility.
When I wrote last Saturday, it seemed that, though there was a long way to go, things were trending up.
Everything changed on Sunday when new complications arose. For various reasons, I will not even attempt to elaborate.
Let’s just say it has been a very “down” week.
We are working hard at untangling a mass of symptoms and trying to keep him safe and comfortable, but it’s an uphill battle. I know he is 96 and so, very vulnerable and prone to complicating factors but it is still so hard to deal with.
And to watch.
I know intellectually that I am doing all that is possible for me to help him and his care team, but my heart aches because I can’t make it better.
We have no idea what the outcome will be. It’s not just one day at a time, which is Paco’s favorite saying. It’s one hour at a time. One moment. One more early morning phone call telling me that he fell again during the night.
There are up moments here and there. When Paco easily remembers my name. When he gets to enjoy a slice of blueberry pie for dessert at lunch. When he manages to make a little joke with his aides.
I had planned to go to vigil mass today at a friend’s church, but was too tired to make the drive, so I went to a nearby church instead. I was blessed to see Sister A. there. She had been one of the stalwart visitors during my mother’s final illness, a span that stretched over two years. Because of the pandemic and other circumstances, I had not seen her in months. I was able to fill her in on Paco’s condition and she assured me that she has been lifting him up in prayer.
After such a “down” week, that assurance was a much-needed balm.
Last week was rough as I wrote about for Stream of Consciousness Saturday yesterday.
Today is Father’s Day in the United States. I was able to speak briefly with my dad this morning, but he was pretty confused about handling the phone and they were about to change one of his dressings. There aren’t visiting hours until Tuesday evening, so there is no chance to see him. We did drop off a card yesterday and he has gifts and cards already from my sisters.
He can’t really remember that it’s Father’s Day anyway…
Meanwhile, it is also Father’s Day for B here at our house but I’m having trouble focusing enough to plan dinner or much of anything else. It’s taking effort just to make my eyes focus to write this.
I did sleep quite a bit last night after very little sleep the night before.
Somewhere in the midst of all of this, we went out to dinner for our 39th wedding anniversary and opened some cards. Originally, we were going to go away for a couple of days. We still might, once I get through the initial care conference for Paco on Tuesday. I need to write notes and questions to prepare for that. Oh, and also get ready to deal with all the insurance folks.
No, this is, unfortunately, not going to be a post about what’s on the Top 40.
I have been scarce/non-existent here at Top of JC’s Mind for the last week because my 96-year-old dad, known here as Paco, fell in his assisted living unit last Saturday. B and I had visited him in the 1-1:30 visiting slot, but he fell about 3:00. We think he was in the kitchenette but aren’t sure. Although he hit the floor pretty hard, he managed to get himself up and over to the couch where he called for help.
He has had a few falls before, but he hit much harder this time. His left side took the force of the fall. He was sent by ambulance to the local hospital where the extent of his injuries was revealed and he was admitted with a bump and cut on his head – luckily no concussion – bruises and contusion on his left arm and elbow, deep bruising on his left hip – luckily no break – a cracked left rib, and two wing fractures of back vertebrae.
The fall, pain, unfamiliar surroundings, etc. also worsened his cognitive condition. Paco already is suffering from dementia and this fall completely unmoored him. On Wednesday, he was stable enough to transfer to a rehab unit. We are hoping that his cognition will improve as he heals and gets stronger. It’s a much calmer and more stable environment than being in the hospital.
Tomorrow is Father’s Day in the United States and it’s hard because we won’t be able to see Paco as visiting in the rehab facility is extremely limited.
The other hit that our family is trying to absorb is that we just got word that a member of our extended family has been diagnosed with metastatic cancer. She is only thirty. She is strong and fighting but everyone is devastated.
One of the changes with the rules in New York State and with my father’s assisted living home is that I can now sign him out and take him for a drive. Previously, I could only take him to medical appointments.
My father, who is known here as Paco, loved to drive. He drove quite a bit when he worked for New England Power Company for 43 years and, given that our town was twenty miles from a grocery store, other stores, our grandparents and other relatives, the movie theater, and just about anything else that wasn’t work-related, he drove quite a bit on evenings and weekends, too. (My mom also drove, especially taking us to piano lessons and my sister’s dance lessons, but, if the five of us were going somewhere together, Paco always drove.)
In those days, it wasn’t unusual to “go for a drive” as a form of recreation. Given that we lived in the Massachusetts/Vermont border area, there was beautiful scenery in any direction you chose to drive. And hills. And what to us was normal but in retrospect were narrow, winding, and largely unmarked roads. It didn’t matter. Paco was used to it and was a very good driver with a very good sense of direction.
Paco had said that he would stop driving when he turned 90. That turned out to be not quite true. I think he stopped when he was 92. By then, my mother was entering her final battle with congestive heart failure and Paco was staying with her in their apartment nearly all the time. Their senior community offered transportation for the occasional trip to the grocery store or for medical appointments and I was nearby and there every day and could drive for errands or deliver things to them. They decided to sell their car and Paco replaced his driver’s license with an official state ID.
The IDs have a longer renewal term than driver’s licenses do, so his current ID is good until he is 103. He’s currently 96. He says he doesn’t think he will make it to 100.
We’ll see.
Paco is famous among family for always saying “One day at a time.”
In late May, I spent a few days on a private writing retreat back in North Adams, Massachusetts. I grew up in the area and it is the subject of my poetry collection work-in-progress, so it is helpful to me to be back there to work on it. (I wrote about it here for Stream of Consciousness Saturday, so even more rambling than I am when I have the luxury of editing myself.)
Part of the reason it is helpful to be back there is that I’m relieved of most of the caretaking/errands/planning/phoning/corresponding that take up a lot of my brain when I am at home. As if to make up for my being away for a bit, my return was greeted with an avalanche of problems that I may, finally, be at the point of seeing light at the end of the tunnel.
It’s exhausting.
I will not bore you with any details other than to say that anyone who has ever had to deal with a complex issue with a US insurance company has some inkling of what it has been like times three.
The update on the manuscript is that it is in the hands of my poet-friends with an eye toward doing a full review sometime in the next few weeks. I was fortunate that I had returned from North Adams with the poems basically done and ordered. I powered through writing the foreword and end notes before June hit so I was able to pivot to dealing with bureaucracy.
Fingers crossed that personal life will calm down in time for the manuscript review and for a couple of weeks for revision time so that I can send the manuscript out for July submission calls. Tupelo Press just helpfully reminded me that they will be having an open submission period for manuscripts in July. After attending the inaugural Tupelo Press/Studios at MASS MoCA residency week in 2015, I promised that I would send them work. I didn’t think it would be this many years before I would have the manuscript completed, but I am looking forward to finally keeping that promise. I feel especially obligated to send this to them because so many of the poems intersect with MASS MoCA, my time there, and the art.
I will, of course, be sending the manuscript to other publishers and contests because one needs to cast as wide a net as possible to find the right fit between the press and the poet.
“Anyone who closes his eyes to the past is blind to the present. Whoever refuses to remember the inhumanity is prone to new risk of infection.”
~~~ Richard von Weizsäcker, President of West Germany, in 1985 marking the 40th anniversary of the end of World War II (copied from an article in the Washington Post)
The above inadvertently artsy shot with sunbeams is of roses growing in our back yard. This rose is a daughter of a rosebush that grew near my mother’s childhood home in Hoosac Tunnel, Massachsuetts. You can read more of the backstory in this post which itself includes a personal essay from before I started blogging.
This rosebush is the subject of the one poem that appears in both my chapbook and collection manuscripts, which I can’t share here because it is currently unpublished. It tells the story of the revival of this daughter bush from near death and ends during my mother’s final illness.
We have just passed the second anniversary of her death. The rose bush apparently liked the snowy winter and slowly unfolding spring this year and has more blossoms than I have ever seen. It has also grown very tall, as you can see in the photo below. For reference, I’m 5′ 1.5″ (1.56 meters), so the rose bush is probably close to seven feet (2.1 meters) high.
with
Because this is an heirloom close-to-wild rose rather than a hybrid, it has a very strong scent. With so many blossoms this year, the smell is heavenly.
Yesterday, when I read that Linda’s prompt for Stream of Consciousness Saturday this week was “yarn,” the very first thing I thought of was my friend Merrill Oliver Douglas’s chapbook Parking Meters into Mermaids. The title poem is about yarn bombing. For someone who may not be familiar with the term, yarn bombing is when someone puts yarn, usually knitted, on unusual objects, like parking meters, or tree trunks, or lampposts. It’s a fun and quirky form of public art.
Things have been pretty quiet here at Top of JC’s Mind for the past few days because I was back in North Adams on a solo writing retreat to work on my poetry collection.
I’m happy to report that I have the bulk of the manuscript assembled, including a few pieces that I wrote this week. There is only one blank page with just a title; I’m hoping to get that poem written and integrated into the manuscript over the holiday weekend. I also need to write a foreword and a notes and acknowledgements section at the end. When I have the draft complete, I will ask my local poetry circle, the Grapevine Group, to do a group review/critique for me, with the goal of having it ready to submit by mid-July.
This collection has been in development for a looooong time. In November, 2015, I took a leap of faith and applied to attend a week-long workshop/residency at the Massachusetts Museum of Contemporary Art, a collaboration between The Studios at MASS MoCA, which had, at the time, only been in operation for a few weeks, and Tupelo Press under the direction of Jeffrey Levine. I was accepted, even though I was a relatively new poet at that point. Had it not been in that particular place, I would not have even applied, but I grew up in the North Adams area and had hopes that a chapbook might grow out of the experience, given the intersection of my personal and family history with the current, very different reality there. Case in point: MASS MoCA occupies the complex that housed Sprague Electric when I was growing up but that started out as Arnold Print Works that made textiles. (If you are interested in how the week went, you can check my blog archive for Nov. 2015, as I blogged every day of the residency.)
Short version of the story is that I was in way over my head, but was saved from going under by my fellow poets. We all bonded so well that we have returned to MASS MoCA every year (except for 2020 due to the pandemic) for a reunion residency as the Boiler House Poets Collective.
So, two things happened to my initial idea of writing a chapbook about my family and the North Adams area. I realized pretty quickly that a chapbook would be too short, so it would need to be a collection. Also, life intervened in the form of a long and ongoing period of inter-generational caregiving, which made the time required to devote myself to the project scarce.
There have been two other attempts at this collection, both of which failed miserably in review. I learned a lot from the failures – at least, I hope I have – and this new iteration of the manuscript has a (I hope) more compelling focus.
We’ll see how manuscript review goes…
There are over fifty poems in the collection and over seventy pages, so there is room for cuts if needed. Most publishers expect collections to be between fifty and one hundred pages, so there is some space for adjustment.
While members of the Grapevine Group have seen a lot of the individual poems, this will be the first time they have seen the manuscript. The two prior iterations of the collection were with Boiler House Poets Collective, back before Grapevine started doing manuscript reviews within the group. The exception is my friend Jessica, who is a member of both groups. It will be especially interesting to see her reaction to this newest iteration.
After Grapevine review and edits, I may see if any other BHPC poets want to weigh in – or maybe even before, if any of them are especially keen on the concept/subject to my begging/gluttons for punishment/very bored.
At any rate, come mid-summer, I’m hoping to start doing submissions with the collection. Then, in the fall and winter, the rejections will start rolling in, where they can join the growing list of rejections for my chapbook manuscript in my submission database.
Eventually, one of them may make it into print. The chapbook has been both a semi-finalist and finalist in contests. So, someday?
This version of the collection is definitely stronger than the two prior attempts. So, maybe, someday?
If it happens, you will definitely be able to read about it at Top of JC’s Mind, which will probably be around even though it is cheugy. I just learned that word…
Or, if the chapbook or collection gets accepted for publication, you may just be able to hear me scream, even if you are not close by. 😉
As I announced in this post, I am spending a few days back in North Adams to work on my poetry collection.
I went to MASS MoCA today and was pleased to be in a good poetry flow! I drafted three poems that will make their way into the manuscript and a fourth that will be a possibility for submission to journals.
I also ate ice cream twice – a dish of ginger ice cream from Lickety Split in MASS MoCA and a mocha sundae from Triple Scoop, a nearby ice cream shop. Mocha is very important here. There are two poems about it in the collection already.
Dashing off this post and then back to my poems from today, getting the drafts into my computer and editing a bit…
Joanne Corey 