SoCS: ups and (mostly) downs

When I saw that Linda’s prompt for Stream of Consciousness Saturday this week was “up/down”, I knew that I needed to write a follow-up to last week’s SoCS in which I talked about my father (Paco) and his recent fall, hospitalization, and move to a rehab facility.

When I wrote last Saturday, it seemed that, though there was a long way to go, things were trending up.

Everything changed on Sunday when new complications arose. For various reasons, I will not even attempt to elaborate.

Let’s just say it has been a very “down” week.

We are working hard at untangling a mass of symptoms and trying to keep him safe and comfortable, but it’s an uphill battle. I know he is 96 and so, very vulnerable and prone to complicating factors but it is still so hard to deal with.

And to watch.

I know intellectually that I am doing all that is possible for me to help him and his care team, but my heart aches because I can’t make it better.

We have no idea what the outcome will be. It’s not just one day at a time, which is Paco’s favorite saying. It’s one hour at a time. One moment. One more early morning phone call telling me that he fell again during the night.

There are up moments here and there. When Paco easily remembers my name. When he gets to enjoy a slice of blueberry pie for dessert at lunch. When he manages to make a little joke with his aides.

I had planned to go to vigil mass today at a friend’s church, but was too tired to make the drive, so I went to a nearby church instead. I was blessed to see Sister A. there. She had been one of the stalwart visitors during my mother’s final illness, a span that stretched over two years. Because of the pandemic and other circumstances, I had not seen her in months. I was able to fill her in on Paco’s condition and she assured me that she has been lifting him up in prayer.

After such a “down” week, that assurance was a much-needed balm.

*****
Join us for Linda’s Stream of Consciousness Saturday! Find out more here: https://lindaghill.com/2021/06/25/the-friday-reminder-and-prompt-for-socs-june-26-2021/

broken

I think I might be broken.

Last week was rough as I wrote about for Stream of Consciousness Saturday yesterday.

Today is Father’s Day in the United States. I was able to speak briefly with my dad this morning, but he was pretty confused about handling the phone and they were about to change one of his dressings. There aren’t visiting hours until Tuesday evening, so there is no chance to see him. We did drop off a card yesterday and he has gifts and cards already from my sisters.

He can’t really remember that it’s Father’s Day anyway…

Meanwhile, it is also Father’s Day for B here at our house but I’m having trouble focusing enough to plan dinner or much of anything else. It’s taking effort just to make my eyes focus to write this.

I did sleep quite a bit last night after very little sleep the night before.

Somewhere in the midst of all of this, we went out to dinner for our 39th wedding anniversary and opened some cards. Originally, we were going to go away for a couple of days. We still might, once I get through the initial care conference for Paco on Tuesday. I need to write notes and questions to prepare for that. Oh, and also get ready to deal with all the insurance folks.

Maybe tomorrow.

Maybe I won’t feel so broken then.

SoCS: and the hits just keep on coming…

No, this is, unfortunately, not going to be a post about what’s on the Top 40.

I have been scarce/non-existent here at Top of JC’s Mind for the last week because my 96-year-old dad, known here as Paco, fell in his assisted living unit last Saturday. B and I had visited him in the 1-1:30 visiting slot, but he fell about 3:00. We think he was in the kitchenette but aren’t sure. Although he hit the floor pretty hard, he managed to get himself up and over to the couch where he called for help.

He has had a few falls before, but he hit much harder this time. His left side took the force of the fall. He was sent by ambulance to the local hospital where the extent of his injuries was revealed and he was admitted with a bump and cut on his head – luckily no concussion – bruises and contusion on his left arm and elbow, deep bruising on his left hip – luckily no break – a cracked left rib, and two wing fractures of back vertebrae.

The fall, pain, unfamiliar surroundings, etc. also worsened his cognitive condition. Paco already is suffering from dementia and this fall completely unmoored him. On Wednesday, he was stable enough to transfer to a rehab unit. We are hoping that his cognition will improve as he heals and gets stronger. It’s a much calmer and more stable environment than being in the hospital.

Tomorrow is Father’s Day in the United States and it’s hard because we won’t be able to see Paco as visiting in the rehab facility is extremely limited.

The other hit that our family is trying to absorb is that we just got word that a member of our extended family has been diagnosed with metastatic cancer. She is only thirty. She is strong and fighting but everyone is devastated.

And the hits just keep on coming…

*****
Linda’s prompt for Stream of Consciousness Saturday this week is “hat/het/hit/hot/hut.” Join us! Find out more here: https://lindaghill.com/2021/06/18/the-friday-reminder-and-prompt-for-socs-june-19-2021/

SoCS: going out for a drive

One of the changes with the rules in New York State and with my father’s assisted living home is that I can now sign him out and take him for a drive. Previously, I could only take him to medical appointments.

My father, who is known here as Paco, loved to drive. He drove quite a bit when he worked for New England Power Company for 43 years and, given that our town was twenty miles from a grocery store, other stores, our grandparents and other relatives, the movie theater, and just about anything else that wasn’t work-related, he drove quite a bit on evenings and weekends, too. (My mom also drove, especially taking us to piano lessons and my sister’s dance lessons, but, if the five of us were going somewhere together, Paco always drove.)

In those days, it wasn’t unusual to “go for a drive” as a form of recreation. Given that we lived in the Massachusetts/Vermont border area, there was beautiful scenery in any direction you chose to drive. And hills. And what to us was normal but in retrospect were narrow, winding, and largely unmarked roads. It didn’t matter. Paco was used to it and was a very good driver with a very good sense of direction.

Paco had said that he would stop driving when he turned 90. That turned out to be not quite true. I think he stopped when he was 92. By then, my mother was entering her final battle with congestive heart failure and Paco was staying with her in their apartment nearly all the time. Their senior community offered transportation for the occasional trip to the grocery store or for medical appointments and I was nearby and there every day and could drive for errands or deliver things to them. They decided to sell their car and Paco replaced his driver’s license with an official state ID.

The IDs have a longer renewal term than driver’s licenses do, so his current ID is good until he is 103. He’s currently 96. He says he doesn’t think he will make it to 100.

We’ll see.

Paco is famous among family for always saying “One day at a time.”

It’s all any of us can do.
*****
Linda’s prompt for Stream of Consciousness Saturday this week is “drive.” Join us! Find out more here: https://lindaghill.com/2021/06/11/the-friday-reminder-and-prompt-for-socs-june-12-2021/

digging out

In late May, I spent a few days on a private writing retreat back in North Adams, Massachusetts. I grew up in the area and it is the subject of my poetry collection work-in-progress, so it is helpful to me to be back there to work on it. (I wrote about it here for Stream of Consciousness Saturday, so even more rambling than I am when I have the luxury of editing myself.)

Part of the reason it is helpful to be back there is that I’m relieved of most of the caretaking/errands/planning/phoning/corresponding that take up a lot of my brain when I am at home. As if to make up for my being away for a bit, my return was greeted with an avalanche of problems that I may, finally, be at the point of seeing light at the end of the tunnel.

It’s exhausting.

I will not bore you with any details other than to say that anyone who has ever had to deal with a complex issue with a US insurance company has some inkling of what it has been like times three.

The update on the manuscript is that it is in the hands of my poet-friends with an eye toward doing a full review sometime in the next few weeks. I was fortunate that I had returned from North Adams with the poems basically done and ordered. I powered through writing the foreword and end notes before June hit so I was able to pivot to dealing with bureaucracy.

Fingers crossed that personal life will calm down in time for the manuscript review and for a couple of weeks for revision time so that I can send the manuscript out for July submission calls. Tupelo Press just helpfully reminded me that they will be having an open submission period for manuscripts in July. After attending the inaugural Tupelo Press/Studios at MASS MoCA residency week in 2015, I promised that I would send them work. I didn’t think it would be this many years before I would have the manuscript completed, but I am looking forward to finally keeping that promise. I feel especially obligated to send this to them because so many of the poems intersect with MASS MoCA, my time there, and the art.

I will, of course, be sending the manuscript to other publishers and contests because one needs to cast as wide a net as possible to find the right fit between the press and the poet.

One hopes.

Fingers crossed.

One-Liner Wednesday: remembering the past

“Anyone who closes his eyes to the past is blind to the present. Whoever refuses to remember the inhumanity is prone to new risk of infection.”

~~~ Richard von Weizsäcker, President of West Germany, in 1985 marking the 40th anniversary of the end of World War II (copied from an article in the Washington Post)

Join us for Linda’s One-Liner Wednesdays! Find out more here: https://lindaghill.com/2021/06/09/one-liner-wednesday-late-to-the-party/

so many roses!

rose

The above inadvertently artsy shot with sunbeams is of roses growing in our back yard. This rose is a daughter of a rosebush that grew near my mother’s childhood home in Hoosac Tunnel, Massachsuetts. You can read more of the backstory in this post which itself includes a personal essay from before I started blogging.

This rosebush is the subject of the one poem that appears in both my chapbook and collection manuscripts, which I can’t share here because it is currently unpublished. It tells the story of the revival of this daughter bush from near death and ends during my mother’s final illness.

We have just passed the second anniversary of her death. The rose bush apparently liked the snowy winter and slowly unfolding spring this year and has more blossoms than I have ever seen. It has also grown very tall, as you can see in the photo below. For reference, I’m 5′ 1.5″ (1.56 meters), so the rose bush is probably close to seven feet (2.1 meters) high.

with

Because this is an heirloom close-to-wild rose rather than a hybrid, it has a very strong scent. With so many blossoms this year, the smell is heavenly.

Nana would have loved it.

Granddaughter congratulations

Congratulations to granddaughter ABC who is turning four years old! She is a few weeks away from completing nursery school and will be entering Reception, the UK equivalent of US kindergarten, in September. She is reveling in the return to full-time in-person school, loves the parks and the garden, is learning to read, has a vivid imagination, inherited her parents’ musicality, and loves being a big sister, at least most of the time.

Congratulations also to granddaughter JG, who at not quite ten months old, is walking on her own. Watching the videos of her toddling reminds me of her mother, my firstborn E, who also stuck her tongue out when she was first walking on her own. I’m not sure if it is a sign of concentration or if it somehow helps with balance, but it certainly seems to be an inherited inclination. Also, adorable.

When we visited London in December 2019, we had planned to return in the spring, perhaps for Easter, and then for ABC’s third birthday, and in late summer for the birth of the new baby. E and her family planned to come visit us in the US for Christmas.

Due to the pandemic, none of that happened.

So, here we are, all fully vaccinated in upstate New York, but still not cleared for travel to the UK, missing another birthday. We’ve missed the entirety of JG’s babe-in-arms phase as she is now officially a toddler. And we still don’t know when we will be able to travel to the UK. They have been planning another easing of restrictions in mid-June, but now the even more virulent strain from India is spreading in the UK, so…

We don’t know about travel in person.

We do know that our love reaches them, even if our arms cannot.

SoCS: yarn bombing

Yesterday, when I read that Linda’s prompt for Stream of Consciousness Saturday this week was “yarn,” the very first thing I thought of was my friend Merrill Oliver Douglas’s chapbook Parking Meters into Mermaids. The title poem is about yarn bombing. For someone who may not be familiar with the term, yarn bombing is when someone puts yarn, usually knitted, on unusual objects, like parking meters, or tree trunks, or lampposts. It’s a fun and quirky form of public art.

While that poem is about yarn bombing, the chapbook itself follows a woman’s life through the decades. Check it out!
*****
Join us for Linda’s Stream of Consciousness Saturday! Find out more here: https://lindaghill.com/2021/06/04/the-friday-reminder-and-prompt-for-socs-june-5-2021/

Trinity Sunday 2021

Today is the Sunday after Pentecost which is celebrated in the Roman Catholic tradition as Trinity Sunday. It is also the name day of a close family member, so it holds additional significance for me.

While I had attended mass in person a few times during Lent and Holy Week after I was fully vaccinated, I had not attended since because space was so limited and advance reservations were required. Now, though, with the new guidance from the CDC and our diocese, fully vaccinated people may attend unmasked and capacity restrictions have been eased, so I decided to attend to celebrate Trinity Sunday in person instead of via broadcast.

We still had temperature checks as we entered, but the ropes that had blocked every other pew have been removed. People still maintained some distance from each other, especially important for families with children too young to be vaccinated or teens who haven’t had time to complete their vaccination series yet. Some adults were masked because they haven’t yet been fully vaccinated or because they chose to wear masks because they are medically vulnerable or feel safer masked while indoors in close quarters. People are also masked when fulfilling certain roles in the liturgy, such as distributing communion. It was nice to see the octet able to stand unmasked in pairs singing the same voice part, rather than scattered about by household as they had to be under full pandemic protocol.

This week, we still used the pandemic protocol of distributing communion after the concluding rite, so that people were distanced as they exited immediately after receiving, avoiding large crowds in the gathering space. Next week, though, when we celebrate Corpus Christi, communion will be distributed at the normal time before the concluding rite, so we will get to have a proper closing hymn again. Our bishop has also rescinded the dispensation of the obligation to attend mass in person as of next week, although, as always, people who are too frail or medically vulnerable are exempt.

I’m not sure what will happen. Many churches, including the one I attend, cut back on the number of masses each weekend due to cleaning protocols. Will there now be too many people trying to fit into fewer masses? Will some people who have been accustomed to participating virtually continue to do so because it feels safer or easier or more convenient?

I admit that, for me, being back in person is difficult and saddening. Perhaps, it will be less so as we are able to resume talking to other congregants; it’s lonelier to me being in the midst of people with whom I can’t interact than being alone participating in mass via television. The bigger problem, though, is my discomfort with many of the clergy and bishops in the United States over the last several years. Too many of them are mired in clericalism that fails to acknowledge the decades/centuries of abuse, misogyny, racism, and injustice in which the hierarchy was either perpetrating or complicit. Too many of them are more enamored with their personal power over others than with following the servant-leadership of Christ. Somehow, for me, it feels safer with a priest on a screen than a priest in the same room, even a large room like a church.

I was just looking back at this post, which I wrote after my first Lenten mass in person. At the end of it, I write about the struggles of living through a lot of pain to remain in the church and questioning if I can go back to being confronted with that every week.

The answer may well become evident in the coming weeks.

Postscript: One of the online resources that I use is catholicwomenpreach.org. Their Trinity Sunday 2021 homily is powerful. If this was the preaching I heard in person at mass, it would be a cause for joy rather than pain.