Recently, a doctor told me I might have to give up on finding a diagnosis for my medical problems, but I’m not giving up.
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Joanne Corey 
That’s not very professional of him, is it? As well as being unhelpful. I’m so sorry you’re going through this.
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Thanks, Devon. At least, I don’t have to see him ever again. Some little part of me wants to send an update to all these doctors who have been dismissing me after I have a diagnosis in place so they realize that they don’t know as much as they think they do. It probably wouldn’t matter, though.
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I’m so sorry. Tracking down the source of symptoms can be such a difficult process and more draining when you have to advocate for yourself with your doctor. Sending you all the good vibes.
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Thanks so much, Laura. ❤
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Be healed, Joanne. Skip the diagnosis.
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Thanks, Frank. It seems that the underlying cause is genetic, so actual healing would take a miracle. The problem is that, without a diagnosis, it’s hard to get insurance to cover what I need to manage my symptoms.
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I’m sorry you’re continuing to go through this and what a terrible thing for the doctor to say
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Thanks, Beth. I’m more determined than ever! Today, I had a call with the nurse case-manager assigned by my insurer, who is helping me get through this maze.
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That is a strange thing for a doctor to say. I can only hope he or she had good intentions, though it lacks empathy. Please continue to take the best care of yourself you can while you persist in your search.
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I’ll keep working on it, JoAnna. I must say I was surprised by the remark – and it’s sticking with me – but I was particularly disturbed because that hospital system is supposed to be known for their collaborative approach to care. I could see saying I can’t help you but not that I can’t give you any idea of who might be able to.
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I wonder if it would be healthy to let the doctor know your thoughts and feelings, though maybe you already did. If not, that’s okay, too. They’re supposed to make referrals.
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This was a new specialist so will wind up being a one-off. I’ve so far avoided doing the survey that was sent out from the hospital because I am seeing other specialists with them and don’t want to rile things up.
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Good idea to hold off on the survey then. You’re doing a good job with a challenging situation.
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❤ Thanks, JoAnna. I appreciate your input.
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Such a blanket pronouncement coming from a specialist. “I don’t know, so you may just have to give up.” A touch of arrogance in that, it seems. I’m so glad you have someone helping you with the insurance maze.
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I’m learning how narrow specialists become in their viewpoint. It’s almost as if they forget about the rest of the body. I know they learned about all the body systems in med school, though…
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