Ugh! I’ve been putting off writing a health update post, hoping to get to a more definitive place before sharing but it’s taking long enough that I figured I better try.
Regular readers may recall that I started having trouble with tinnitus on my left side a few months back and wrote more about it on Mother’s Day. An MRI had been scheduled for June 21 with a hearing test to follow the next week.
Unfortunately, I was accumulating more symptoms on my left side, some visual difficulties in my left eye though the eye itself was fine, pressure or headache behind that eye, discomfort on the left side of my neck, intermittent tingling behind my left ear, a tendency to get lightheaded and feel off-balance, fatigue, and difficulty concentrating, perhaps caused by having to divert conscious attention to things like vision and equilibrium that are usually unconscious. I had been to my primary care provider several times but they needed the information from the MRI before we could proceed further, so the plan was that, if my symptoms worsened, I would go to the emergency room at our local hospital.
In early June, things did get worse. The most alarming part was that the tingling on the side of my head started spreading into my face and toward my neck and became almost constant. I also was having increased problems with my thought processes slowing down as I spent more and more brainpower remembering to move my head and body slowly so that I could keep my balance.
So, B took me to the hospital emergency department, arriving a bit before 9 AM. It was very busy, partially a result (we found out later) of difficulties at a neighboring hospital due to a cyber attack. It was so busy that I spent the first six hours based in the waiting room, going out for various tests and then being returned there. They did a brain CT relatively quickly to make sure I wasn’t having a stroke or some other acute thing. The results came back as “grossly normal” with some aspects being labelled as “grossly unremarkable,” which quickly became a favorite phrase for me, thus, the title of this post.
The waiting room became so crowded that they asked non-patients to leave shortly before noon, unless they were needed for patient care, such as parents of children or people who were acting as translators. So, B had to leave me; he waited at the hospital for most of the afternoon but eventually headed for home.
Mid-afternoon, there was finally a space in the treatment area for me, albeit on a gurney in the hallway, and the decision was made that I needed an MRI – which I already knew because I had one scheduled – but it was too late in the day to fit me in. I got to eat supper and eventually was moved to a room with hospital beds where several of us were on observation for the night.
Or so I thought.
Around 3 AM, I was moved upstairs to a unit that houses neurology patients. Somehow, they seemed to have missed all the stuff that happened in the ER and I had to prove to them that I wasn’t having a stroke all over again. I did have the MRI with contrast in the morning, which also proved to be grossly normal. This was, of course, good news in that it ruled out any tumors in my brain or sinuses, as well as other brain diseases or strokes. However, it didn’t tell us what was causing my symptoms.
The most useful thing that happened was a consultation with physical therapy. Dianne detected that my eyes weren’t tracking as well as they should be. She also did an evaluation for inner ear problems, where crystals in the inner ear loosen and migrate and cause eye and balance symptoms. While I don’t have the most common form of benign paroxysmal positional vertigo, I may have a variation of it with the crystals in a different part of the inner ear canal affected.
The maneuvers that Dianne did with my head and neck during the evaluation did help relieve some of my symptoms. The constant discomfort on the left side of my neck went away and I could move my head more easily. The tingling on the side of my head, which by then was constant, disappeared. Dianne recommended that I see a physical therapist who specializes in vestibular therapy and I have an appointment scheduled for next week. She also gave me an eye exercise to do at home in the meantime and some tips on posture. Additionally, a neck X-ray revealed some arthritis, which will be useful knowledge for the physical therapist.
I was discharged from the hospital that evening. There are supposed to be appointments for follow-up with a neurologist and a referral to an ear, nose, and throat specialist but I haven’t heard when those will be. The tinnitus is still constant and I may or may not have answers about that from my hearing test next week.
Over these last couple of weeks since my hospital visit, the severity of symptoms overall has been creeping higher. The current heat dome that is parked over us here in the Northeast US hasn’t been helpful; I’ve been feeling worse despite staying in our geothermal-heat-pump-cooled home as much as possible.
I’m looking forward to my vestibular therapy appointment on Wednesday, hoping that their experience will make more sense of my situation and maybe even arrive at a diagnosis that will explain some of my symptoms. It’s possible that there is more than one condition going on. For example, the tinnitus could have a cause not related to the possible inner ear issue.
Meanwhile, I’ve had to clear most of my usual activities from my schedule. My lack of concentration is making reading and writing more challenging, which is a shame, given that that is what I usually spend most of my time doing. I will try to do a quick update late next week after my vestibular therapy appointment and hearing test.
Hoping for some good news to share.
Other than being grossly unremarkable.
Joanne Corey 