Category: family

5 years of COVID-19

(COVID Photo by Martin Sanchez on Unsplash)

The COVID-19 pandemic shutdowns began in the United States five years ago this month. I’ve written a lot of posts about it over those years and I’m proud to say that they have been added to the archives of the Newark Valley (NY) Historical Society to be preserved for future research.

To date, there has only been one case in our household, when B contracted it at a work event in November, 2023. Fortunately, T and I did not get sick.

All three of us participated in Phase III clinical trials for the Pfizer/BioNTech vaccine and have kept up to date on recommended doses as the virus has mutated into new variants over these past five years. We’ve also taken other precautions, such as masking and avoiding crowds when virus levels are high. Admittedly, it’s been harder and harder to get information about virus levels in our area as the public health emergency lapsed and reporting became optional.

I do still get some public health and long COVID newsletters that give some information. I found out today, for example, that there is a new variant, BA.3.2, in South Africa that has 50 new spike mutations. It could stay localized and fizzle out; if it out-competes other strains and spreads, it could create a wave similar to Omicron.

As far as the United States goes, I’m concerned that the vaccination rates are likely to fall even further with a vaccine skeptic now in charge of the Department of Health and Human Services. The United States has already suffered over 1.2 million deaths from COVID with millions more dealing with long-lasting health repercussions. Vaccines can help people avert more severe symptoms and decrease the chances of being infected but work best if a large proportion of the population are vaccinated. This also helps protect people who have more fragile immune systems, such as the very young, elders, and people with compromised immune systems.

I believe that information is power, but it needs to be factual information, not wishful thinking or political posturing. We can’t pretend that the virus doesn’t still kill or sicken people and that the United States is not continuing to lose hundreds of people each week due to COVID-19.

To deny the existence of COVID and/or its impact on our lives dishonors those we have lost, those who have been sickened by the virus, their loved ones, and their communities.

Take care of each other and do what you can to keep us all as healthy as possible.

diagnostic progress

I’ve posted variously over the last year about some health problems I’ve been having with a puzzling combination of symptoms, including left-side tinnitus and visual blurring, balance problems, fatigue, brain fog, and left shoulder/neck pain and stiffness.

I’ve been accruing specialists over the last year as we ruled out diagnoses for various body parts but I have always felt that my symptoms were connected because they developed in the same timeframe and seemed to interact with each other. I also, for family history reasons, suspected that there was an underlying connective tissue disorder.

Over the last few weeks, we’ve made some progress on the diagnostic front. I’ve finally been diagnosed with cervical instability, which, when not caused by trauma or Down’s syndrome, is often associated with connective tissue disorders like hypermobility spectrum disorder.

I also had a CT angiogram which resulted in a diagnosis of fibromuscular dysplasia in both internal carotid arteries. This is caused by a problem with the connective tissue within the blood vessel walls. There’s a likelihood that it is affecting other blood vessels, which may be behind some other symptoms in far-flung parts of my body.

At this point, I need to go to a major medical center for further evaluation and, I hope, some relief from symptoms. FMD is not able to be treated directly but there may be some treatments that will improve bloodflow and reduce risk of complications. Fortunately, a college friend who is on the faculty at Columbia University medical school in New York City was able to connect me with their neurology department and I will have a visit there later this month. A team approach is often needed for FMD – and connective tissue disorders, in general – so I may well wind up with a medical team in NYC which will interface with my team here at home.

Thanks to all of you who have been following along on this medical journey and sending me your well wishes and support. I’m likely to be continuing my rather sporadic posting as symptoms allow. For example, the angiogram caused some unforeseen aftereffects that knocked me out for several days and I’m still more limited than I was in terms of energy and clarity. I appreciate your continuing patience with me as I navigate this uncertain time.

“Two-Hour Delay” by Abby E. Murray

Last Sunday, I shared Rattle Poets Respond offering “The Skaters” by Dante Di Stefano.

This Sunday, editor Timothy Green has chosen “Two-Hour Delay” by Abby E. Murray, which, to me, expresses perfectly the state of mind of these harrowing times in the US. (Link will open in a new tab, so you can read it right now or listen to the audio clip of Abby reading it. Make sure to also read Abby’s note that accompanies the poem.)

The opening lines are:

It’s February                                 and already
I’ve overspent my budgeted bewilderment

for the year, most of it on deep & constant
sorrow…

It’s true.

Interestingly, both Abby’s poem this Sunday and Dante’s poem last Sunday feature the counterpoint of a young daughter, enjoying the wonderment of winter, playing against the hard reality of current events.

It is my privilege to know both Abby and Dante, who each earned PhDs from Binghamton University. When I first joined the Binghamton Poetry Project, a community outreach program founded by Nicole Santalucia, Abby was our director. I was honored when Abby agreed to write a blurb for my chapbook, Hearts. It is so beautiful that I still tear up when I read it.

Mid-poem, Abby writes:

Belief is the new disbelief. Grief, not shock,

is this year’s renewable resource, and baby,
the harvest looks plentiful.

I’m really feeling it.

Thank you, Abby, for giving voice to what it is to be dealing with our present times.

Reblog: Poem by Deborah Marshall

I had to share this heart-breaking poem from fellow Boiler House Poets Collective member Deborah Marshall in the Silver Birch Press ALL ABOUT MY MOTHER series. Anyone who has been a care-giver for a loved one with dementia will likely find resonance with this achingly real scene.

Day 15, Bed 201B, Granger 2 by Deborah Marshall (ALL ABOUT MY MOTHER Series)


This has been one of the longest-running series for Silver Birch Press. You can find my post about my own entry here.

“The Skaters” by Dante Di Stefano

I had planned to not post today, taking a rest after the long streak due to Just Jot It January, but had to share this new poem, “The Skaters” by Dante Di Stefano, which is this week’s choice for Rattle Poets Respond, an ongoing series in which poets submit work written in response to something that is currently happening in the news.

Dante Di Stefano often blends elements of his family life into his work, as he does here. I experience this poem as both heart-breaking and comforting, as it expresses so intimately what it is to be a parent. I am also amazed by Dante Di Stefano’s ability to quickly craft something beautiful. Due to the nature of Rattle Poets Respond, poets submit work anonymously that has been written in response to something that happens from Friday to Friday, so there is not a lot of time to ruminate and edit. Di Stefano’s poems have been chosen for this series multiple times, attesting to his talent.

It is my privilege to know Dante, who did his PhD at Binghamton University and lives, writes, and teaches locally. He facilitates the reading series at the Tioga Arts Council where his spouse, Christina Di Stefano, is Executive Director. He has been unfailingly kind and generous to me as I make my way as a “late-blooming” poet.

If you would like, you can hear his voice reading “The Skaters” at the link above.

Thank you, Dante, for sharing your heart with us once again.

2024/5

In late December/early January, many people look back over the year, reflect on its highs and lows, or create some kind of tally.

Sometimes, tallies are created for us, such as Words With Friends, which I have played for 13 years, helpfully telling me I made 8,875 moves in 2024. In my early years of WordPress blogging, they would send us each an annual wrap-up, which I enjoyed. Theoretically, I could put some stats together myself, but I don’t have the wherewithal to manage it.

Some of my poet/writer friends would tally their publications – and rejections – for the year. Given how 2024 went for me, the lists of both would be short, as would the list of completed poems, although I am very grateful that I managed to attend the Boiler House Poets Collective week-long residency at The Studios at MASS MoCA.

My 2024 was mostly taken up with personal and family health issues and my spouse B preparing for his retirement from IBM, which has now happened.

We begin 2025 in uncertainty. With daughter T and I still struggling to find full diagnoses and treatment, what we had imagined B’s retirement to look like is not going to be enacted, at least, not right away.

None of this is helped by the huge uncertainty about what will unfold when DT becomes US president again on Jan.20.

My father used to say “One day at a time” a lot. I am, though, by nature a planner, so I had trouble with the concept.

Now, sometimes, I feel that things are moment-to-moment or that time is somehow suspended or irrelevant.

So, yeah, 2025.

Guess I’ll strive for one day at a time…
*****
Join us for Linda’s Just Jot It January! Find out more here: https://lindaghill.com/2025/01/07/daily-prompt-jusjojan-the-7th-2025/

Happy (US) Thanksgiving!

(Photo by Pro Church Media on Unsplash)

Wishing everyone celebrating Thanksgiving today a meaningful experience. We are lucky to have my older sister and her husband here visiting for the holiday. For various reasons, we are forgoing the traditional turkey in favor of roast beef and popovers. B, however, did make the traditional apple and pumpkin pies.

B’s nod to turkey was to craft one with his knife while venting the apple pie.

Daughter E is making a more traditional Thanksgiving meal “across the pond” in London where she lives with her family. It’s nice that our dual-citizen granddaughters are growing up with the tradition of Thanksgiving from the United States, even though it’s just another autumn Thursday at school there.

Here, we are having some wet snow for the holiday. It’s been a strange fall with an unusual level of drought, relieved some lately by wet snow and rain. Not sure what will come next.

Wishing everyone some special moments today, whether you are celebrating a holiday or not.

SoCS: security blanket

I don’t remember if I had a security blanket when I was little but I could sure use one now…

Linda’s prompt for Stream of Consciousness Saturday this week is “blanket.” Join us! Find out more here: https://lindaghill.com/2024/11/15/the-friday-reminder-and-prompt-for-socs-nov-16-2024/ (Admittedly, this is a very brief excursion in stream of consciousness, but I am really struggling with brain fog and fatigue lately and I figured a short post was better than no post.)

later…

I had thought I’d write another post in my Vote for Democracy ’24 series on Wednesday.

Or Thursday.

Or today, but I’m not ready yet.

I’m usually decent at writing in close proximity to events, but not now. As it happens, we’ve had some major developments on the family health scene and most of my limited brainpower has been going there.

I’m grateful for the many people who have been writing compassionate, reflective, supportive pieces about the election results and the path forward. I appreciate the show of love and community.

I’ll join in when I’m able.

Peace,
JC

just because


B took this in our backyard last month, just as the fog was lifting. I wanted to share some rays of sunshine with all of you.