SoCS: still behind

If I looked back through my ten plus years of posts here, I’m sure I would find plenty that talk about my being behind on posting and lots of other things.

Even though I’ve tried to pair down on my commitments, I never seem to be caught up.

Dealing with my health over these last ten months, things have gotten way worse. I feel like I am only handling about a third of what I used to do – and, some days, not even that.

I’ve cut out a lot of tasks, assuming I would get back to them when I was better.

Now, I wonder if these cuts will be permanent…

At some point, if I re-define what I should be doing, maybe I won’t be behind anymore.

That would be novel…
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Linda’s prompt for Stream of Consciousness Saturday this week is “in front/behind.” This post also is part of Just Jot It January. Find out more here: https://lindaghill.com/2025/01/03/the-friday-reminder-for-socs-jusjojan-2025-daily-prompt-for-jan-4th/

Next step

Following up from yesterday’s post, my specialist appointment is resulting in an order for the next step toward diagnosis, an angiogram to evaluate the blood vessels in my neck.

I’m not sure how long it will take to get on the schedule but I’ll let you know when I have more information.
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Join us for Linda’s Just Jot It January! Find out more here: https://lindaghill.com/2025/01/03/daily-prompt-jusjojan-the-3rd-2025/

Another run at Just Jot It January

So, despite all odds, I’m making another run at posting every day in January, courtesy of Linda’s Just Jot It January or #JusJoJan.

This is the 11th year Linda has hosted this initiative. I participated for the first time in 2015. While it’s not required to post every day, I usually manage it.

I admit that I try to stash away a few posts to throw in when I don’t have time and/or brain on a given day.

I have an appointment with a vascular neurologist later today, which may or may not help with the brain part of the equation.

Linda does offer prompts for the day on her blog, which many people find useful. I tend to do my own thing, other than her continuing One-Liner Wednesday and Stream of Consciousness Saturday series.

Please join us, once, twice, or up to 31 times!
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To join Just Jot It January, visit here: https://lindaghill.com/2025/01/02/daily-prompt-jusjojan-the-2nd-2025/

One-Liner Wednesday: Just Jot It January 2025

Linda G. Hill of Life in Progress is bringing us Just Jot It January for the 11th year and you are all invited to join by linking your January posts to her blog each day!

To participate in One-Liner Wednesday and/or Just Jot It January, visit here: https://lindaghill.com/2025/01/01/one-liner-wednesday-jusjojan25-the-1st-happy-new-year/

SoCS: my year

My year has been a mess.

(It’s probably dangerous to write about it in stream of consciousness but here goes…)

2024 has been largely spent trying to untangle personal and family health situations. In March, I developed a constellation of symptoms, including left side tinnitus and visual blurring, left side neck pain and stiffness, numbness/tingling most prominently on the left side of my head, balance problems, and brain fog and fatigue.

There has followed a bunch of tests, specialists, and physical therapy – with weeks and months of waiting – and a lot of ruling out of diagnoses, but no answers yet.

Given family history and my own research and trying to pull together all the scraps of information I get from my care team, I think I have a decent guess on diagnosis but it doesn’t really matter unless I can find a doctor willing to look at the whole situation instead of their own specialized body part.

Meanwhile, I’ve lost almost a whole year of poetry work. My creative brain isn’t functioning most days. Sometimes, I get a window first thing in the morning but often not. I’m spending most afternoons in bed because of the fatigue and because it is difficult to hold my head up without support for extended periods. If I push through and do too much on a day, I’m likely to pay for it by being largely non-functional for a day or two or three or a week afterward.

I’m also lacking in my ability to remember and keep track of things. My critical thinking skills are slowed down, too. I try to do tasks that involve a lot of thought early in the day to have the best chance of remembering and piecing things together.

It’s sad and terrifying and frustrating.

I feel like a lot of who I know myself to be is missing and I don’t know if or when it will be back.

A recent test seems to show poor blood flow in one of the arteries that supplies my brain. I’m hoping that this might give us a treatable thing to work on but I’m currently waiting for the appointment with the specialist who can interpret the test. There will probably be more tests before we get to the diagnosis/treatment part.

I don’t know if 2025 will bring my brain back or if I will be facing further deterioration.

I’ll try to let you know…
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Linda’s prompt for Stream of Consciousness Saturday this week is “my year.” Join us! Find out more here: https://lindaghill.com/2024/12/27/the-friday-reminder-and-prompt-for-socs-dec-28-2024/

One-Liner Wednesday: White Christmas

Growing up in rural New England, white Christmases were a given, but now, with climate change, they are a special treat here in the Northeast. Wherever you are and whatever holidays you celebrate at this time of year, I wish you peace, love, joy, and safety.

This greeting is brought to you as part of Linda’s One-Liner Wednesdays. Join us! Find out more here: https://lindaghill.com/2024/12/25/one-liner-wednesday-happy-holidays/

No CO2 Fracking in NY!

I’m pleased to report that, over the weekend, New York Governor Kathy Hochul finally signed the bill adding carbon dioxide to the existing ban on hydraulic fracturing (fracking) in the state. We recently observed the tenth anniversary of the ban.

You can read more about the bill and how important it is to keeping us safe here.

A huge thank you to State Senator Lea Webb, sponsor of the bill in the Senate, and Assemblymember Anna Kelles, sponsor in the Assembly. Thanks also to Donna Lupardo, my Assemblymember, who was a co-sponsor. I will always be grateful to the large coalition of scientists, experts, Indigenous Nations, environmental organizations, and concerned individuals who have been at work for years on this issue for the good of our health, our environment, and our climate.

Broome County, where I live, would have been among the first targeted with this dangerous experiment to use supercritical carbon dioxide to extract methane. I’m grateful that our state will remain frack-free!

SoCS: Well-wishes

With so many celebrations going on in this season, with Solstice, Chanukah, Christmas, Kwanzaa, New Year’s, and I’m sure even more holidays and observances, there are many well-wishes being exchanged.

We need them.

All of them.

This year, with so much going on around the world, so much death and destruction, so many willing to scapegoat or disparage anyone who isn’t like them, we need to concentrate on wishing each other well.

Not just words splashed onto a greeting card.

Actually, wishing each other well and meaning it.

Then, we need to act like it.

Choose Love.

Choose Peace.

Choose sharing.

Choose service.

I wish all of you well as we finish 2024 and move into 2025.
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Linda’s prompt for Stream of Consciousness Saturday this week is “wish.” Join us! Find out more here: https://lindaghill.com/2024/12/20/the-friday-reminder-and-prompt-for-socs-dec-21-2024/

One-Liner Wednesday: Welcome, John Vaida!

The Madrigal Choir of Binghamton is thrilled to announce that John M. Vaida will be our next artistic director, beginning in January, 2025, with his first concert with us scheduled for March 30th.

This celebratory announcement is brought to you as part of Linda’s One-Liner Wednesdays. Join us! Find out more here: https://lindaghill.com/2024/12/18/one-liner-wednesday-such-a-great-idea/

Celebrating ten years of the New York fracking ban

Ten years ago today, New York State announced an administrative ban on high-volume hydraulic fracturing (fracking) in the state. (in 2021, the legislature made it a law.)

To celebrate, Food & Water Watch, one of the lead organizations in fighting fracking, has compiled a free, commemorative e-book, which you can download here.

A large coalition of organizations, environmentalists, indigenous nations, scientists, engineers, and concerned citizens had spent years advocating for a ban, helped by many of our Pennsylvania neighbors who were suffering from the harms of fracking in their communities. There had been rallies, commentary in the press and at hearings, educational events, scientific papers and lectures, and showing up at public appearances by then-Governor Andrew Cuomo leading up to the ban, which occurred when the Dr. Howard Zucker, the Health Commissioner, said that fracking was too dangerous for New Yorkers’ health, ending what had been a very fraught battle over the SGEIS (Supplemental Generic Environmental Impact Statement) that would have allowed fracking without need for site-specific studies.

Yes, that sounds very wonky but we were lucky to have lawyers and other experts in the coalition who could break everything down for us into understandable, actionable bits.

My role in the efforts to ban fracking was as a member of the Rapid Response Team. We would receive links to articles about fracking in the media and write comments to bolster the truth and challenge misinformation. It was intense at times but it meant a lot when I would be at a rally or event and people from other parts of the state would recognize my name from comments I had written. It was good to know that my little part was helpful to the cause.

When the announcement came from Albany ten years ago, there was rejoicing from all parts of the coalition and a celebration here in Binghamton, which had been the epicenter of both the pro- and anti-fracking efforts. Unfortunately, I couldn’t attend because I was sick with shingles. I was very grateful, though, and as excited as I could manage to be.

We aren’t having a party on this tenth anniversary but we are all awaiting Governor Kathy Hochul signing a bill that will add carbon dioxide to the existing fracking ban. The bill was passed in March and we have been urging her to sign it ever since.

Many bills get signed in December so it could be any day now, although I’m hoping it will be today.

It would be a fitting tenth anniversary commemoration and a reminder to the nation that New York says NO to fracking!

Update: On Dec. 21, Governor Hochul finally signed the bill. You can read the press release from coalition members here.