back to church

Yesterday, for the first time in over a year, I attended mass in person.

If you had told me prior to the pandemic that I would ever go a year without going to church, I would not have believed it. I grew up Catholic and going to mass for Sundays and holydays was an important part of our faith practice. I was in church as a teen more than most because I became our small country church’s only organist in my second year of high school. I spent many years in music and liturgical ministries and, although I hadn’t been active in them in recent years, I still considered taking part in mass and receiving the Eucharist a vital part of my faith life.

Last March, when the severity of COVID was first becoming apparent, I decided not to go to mass for fear of exposing my father, one week before New York State went into lockdown and the churches temporarily closed. I began participating via televised mass as my mother had done when she was ill. Over time, churches here resumed services, first outdoors or broadcast to congregants in their cars in the parking lot. Later, indoor services were permitted with distancing, masking, temperature checks, pre-registration, and other measures in place, although the bishops have kept the dispensation from in-person attendance in place.

Because being part of a large group of people who are speaking and singing is inherently more risky than being at home or in a grocery store, I had made a personal decision not to attend mass in person until I was fully vaccinated. Last week, two weeks after my second dose of the Pfizer vaccine, I called the church to make a reservation to attend the Saturday vigil mass yesterday.

I arrived early, knowing that there would be a check-in process and that we would need to maintain spacing. I was masked, of course, and gave my name to the volunteer at a table, who found my name and contact information on her list. They keep the information on file so they can call if a positive test is reported. There was a temperature check and the distribution of a leaflet with the day’s music. I was allowed to choose my own seat among the pews, although every other row was blocked off by purple cords draped around the end. I sat near the music ministers, so that I could watch my friend play the organ and see the cantor who would be leading the singing.

If I had to choose one word for the experience, it would be stark. This is partly a function of it being Lent, which is a penitential season. There are no flowers and the sanctuary is kept as simple as possible. What was striking to me, though, was the space between all the ministers. The priest, deacon, two lectors, and single altar server were in chairs scattered around the altar and ambo, which is necessary for viral reasons. It amplified my sense of separation from them and from the rest of the congregation. Only people from the same household can sit in a group, so many of us were sitting alone.

I felt most like I was part of the assembly when we were praying aloud together. Although we were masked and there were far fewer of us than our pre-pandemic numbers, our voices carried well and we could hear one another, ironically helped by the acoustics of the space without so many bodies to absorb the sound. This was, however, a double-edged sword. During the prelude, I was annoyed by a couple behind me discussing home improvement projects, no doubt unaware how well their masked voices carried in the space.

As often happens, there were emotional moments for me during the liturgy, although not when I had expected them. As part of the prelude, my friend improvised on the Irish hymn tune St. Columba, which is often used with the text “The King of Love My Shepherd Is”. It is one of my favorite tunes. Back in the days when I could play the organ and was practicing, it was one of the hymns I would sing as a personal prayer. I was very grateful to hear it yesterday.

When we prayed the Lord’s Prayer together, I was particularly drawn to the last phrase, “deliver us from evil.” I am still pondering the full implications of being drawn to that at this time. Like most Christians, I have prayed this prayer thousands of times. It is a testament to its strength that it reveals different aspects of faith as our circumstances change.

The third moment was that I choked up as we started to sing the Lamb of God. This simple text, which is placed in the liturgy shortly before communion, has long been my favorite prayer of the mass ordinary. Long ago, I set it in a choral anthem paired with a text from Isaiah. Again, a prayer that I have recited or sung thousands of times but that was somehow connecting with me in a new way.

Strangely, the thing that I expected to be very emotional was not and perhaps goes back to my feeling of starkness. In order to maintain distancing, communion was not distributed at the usual time. Instead, we prayed the concluding rite and then received communion. The priest and the deacon went to positions at the end of the far aisles and the congregants, keeping six feet of distance between them, filed up to receive the host, step away, briefly lower their mask to consume the host, then immediately process to the doors by a different route and exit, all while the communion hymn was being sung. Because I was near the front of the church, that meant exiting during the hymn without an opportunity to join in that prayer. Intellectually and from the public health viewpoint, this procedure for communion makes perfect sense. It keeps people from congregating in the building or around the exits and minimizes the chance of spreading the virus. From a liturgical perspective, though, it feels stark. The word Eucharist means thanksgiving and the word communion has the same roots as the word community; this more isolating experience feels counter to that. As someone who has study music and liturgy, it also was very difficult for me to leave while there was still sung prayer ongoing.

I was grateful to be able to attend in person but I don’t think that I will try to do it every week yet. Due to the cleaning protocols involved, there are only two masses per weekend; with fewer masses and reduced capacity, I don’t want to deprive other people from being there by taking up space myself on a regular basis. I do hope to go once during Holy Week, Easter Vigil if possible or Holy Thursday if the Vigil is in high demand.

Otherwise, I will continue to participate from home until our area progresses to the point where we can gather safely in large numbers again, when we can exchange a sign of peace, when things will not be so stark.

When we do get to that point, there will be another, more complex decision to make, which is how much of the politics and abuses of power in the church itself I can continue to tolerate. The clergy of the church continue to grapple with its own history and legacy of crimes, abuse, and sin, or worse, some grapple and some continue to deny. Meanwhile, lay people are not given the opportunity to fully use their gifts in service to the people and the church.

It’s exhausting.

The pandemic has blunted the effect of having this struggle before me every week. I haven’t decided yet if I can take it on so consistently again. I used to go to mass every week, even when I cried because of the pain. I did it because I couldn’t imagine being separated from the Eucharist. Because of the pandemic, I now know that spiritual communion is a reality, that I can feel close to Christ and to creation and all people, even when I’m not able to attend mass in person.

I don’t know what I will choose to do.

Another aspect of life in which I dwell in mystery.

SoCS: the last year

I had planned to post about the pandemic anniversary today, so it was fortuitous that Linda took the occasion to have us write about our past year. She also gave us permission to edit if we chose, so this post will be only stream-of-conscious-ish. I’m hoping to only need to do light editing.

So, compared to most other people in the US, I have been fortunate over this pandemic year. My spouse B has been working from home so we didn’t take a financial hit. He and I and daughter T have been safe in our home. My state, New York, was initially hit very hard by the pandemic, although not as much so in my home region of the Southern Tier. While we did have a period of time as a local COVID “hot spot,” we followed the precautions on masking, avoiding gatherings, handwashing, etc. and stayed safe.

This is not to say that we didn’t have to make changes in our lives. T’s job search has been on indefinite hold. Grocery shopping and meal planning became a major endeavor for me, due to shortages and restrictions. Some of my poetry activities moved online, but the year hasn’t been as productive as I had hoped. The Boiler House Poets Collective annual residency at MASS MoCA was cancelled due to COVID, although I did craft my own writing retreat in North Adams in late summer which turned out to be a perfect time, given the sooner than expected fall surge. (Additional posts from that time are here and here.)

There are two big personal impacts for me as a result of the pandemic. The first is the separation from daughter E and her family, who live in London, UK. We visited in December, 2019, with plans for several 2020 trips, including a visit to meet our new grandchild, and a plan for them to visit us here in the States in December 2020. None of that happened, due to COVID. While we have been in touch virtually, we have all been largely confined to our respective homes. It’s been hard watching from a distance as they dealt with likely cases of COVID in their household at a time when there wasn’t even testing available unless one needed hospitalization. We missed granddaughter ABC’s third birthday and the birth of granddaughter JG. We missed ABC starting nursery school, which has been variously in person and virtual depending on how viciously the virus was spreading in London at any given time. JG is now seven months old and we have no idea when we will be able to visit. She may be a toddler by the time we get to meet in person.

The second personal difficulty has been trying to care for my almost-96-year-old father, known here as Paco. Before the pandemic, we visited him every day in his apartment in the independent living building of his senior community. His memory was poor, but we were able to keep him safe and on an even keel. Once the pandemic began, though, we needed to limit contact, so we reverted to handling most things by phone with screened staff handling some tasks that had to be in person. This proved to be difficult but when Paco developed a medical problem that required a few days in the hospital, it became impossible for him to be safe in his apartment. In December, he moved to the health care building, first for three weeks of rehab in the skilled unit and then permanently to the assisted living unit. This is where he needs to be at this point, but due to state COVID rules, it was very difficult to visit in person. I am happy to report, though, that yesterday and today we had our first visits to his new apartment; before that, we had to meet in the visitors room or do window visits where we spoke by phone on either side of a window. We still have to mask and distance, but we could at least organize and tidy his rooms for him.

The greatest difficulty that is more universal is the sorrow at the immense cost the pandemic has exacted. So much illness. So much death. So many without even the most basic essentials for a secure existence. So much social isolation. So many who risked their own health to meet the needs of others. In the United States, the bewildering politicization of the crisis.

As we have been commemorating this first anniversary of the pandemic, though, I am feeling hopeful. We are about seven and a half weeks into the Biden administration and vaccine distribution has seen a big boost. Although the number of cases, hospitalizations, and deaths is still much too high, it is lower than it has been in months. In New York State, we are able to continue our gradual, science-and-metrics-driven increase in public activities. I went to church in person for the first time in a year today. It feels like we are making real progress toward ending the pandemic.

Real hope after a year of fear.

I’m very grateful for the vaccines and the people who are being diligent in observing public health measures. I’m grateful that B, T, and I were able to be of public service as participants in the Pfizer vaccine trial, which I’ve written about frequently here at TJCM.

I admit the fear isn’t totally gone. It’s upsetting to see people who are ignoring public health advice still. Especially with so many variants of the virus active and so many people unwilling to be vaccinated, it’s possible the virus will start to surge again.

Still, for the first time, the hope outweighs the fear in my mind.

Please, everyone, be careful. Stay safe. Protect yourself and your neighbors. We can end the pandemic after this awful year.

Together.

*****
Linda’s prompt this week was to write about our experiences over this last pandemic year, stream of consciousness style or not, or “day/week/month/year.” I chose the first option. Join us! Find out more here: https://lindaghill.com/2021/03/12/the-friday-reminder-and-prompt-for-socs-march-13-2021/

Governor Cuomo, continued

I wrote here about the developing situation with Andrew Cuomo, our governor here in New York State, where I live in Broome County, far from both New York City and Albany, our capital. In the week and half since I wrote, things have become increasingly contentious, both on the reporting of nursing home death issue and the sexual harassment/bullying issue.

The nursing home death reporting issue parameters are largely unchanged. The administration reported deaths where they happened, whether in a hospital, nursing home, or elsewhere, such as a private residence. Some people wanted to know how many of the hospital deaths were people who had come to the hospital from nursing homes; they wanted the term “nursing home deaths” to refer to people who had likely contracted the virus in a nursing home, regardless of where they died. The newest wrinkle in this is that it appears some of the governor’s top aides edited a report over the summer in such a way as to not reveal how many of the hospital deaths were people who had come from nursing homes at a time when the governor was writing a book on his leadership during the pandemic.

In reaction to all this, the legislature has rescinded the broad authority to take executive action that it had granted to the governor last spring. This is their right to do, of course, but I would feel better if they committed to staying in session past June. Getting things through the New York State legislature is often a long, drawn-out affair and there are times with the pandemic when things change quickly and new policies need to be enacted as expeditiously as possible. The governor can continue to extend existing executive orders.

I am grateful that the existing orders can still stand because, by and large, they have worked well in keeping as many New Yorkers safe as practicable. While the initial outbreak in New York was horrible, the policies the governor enacted in conjunction with public health, medical, scientific, and legal experts were adopted by the public and brought the infection rate down well below the national average. Although there have been spikes, for example over the holiday season when many people travelled and gathered in groups against the state and public health recommendations, New York has not suffered the fate of other states that didn’t implement mask mandates, distancing requirements, gathering size restrictions, etc. or that lifted restrictions too quickly. By being thoughtful and incremental in re-opening and by gathering, analyzing, and adjusting in response to data, most New York businesses and schools are open and are expanding hours as our vaccination rates go up and infection rates go down. New York needs to continue on its science- and data-driven path to keep from suffering the spikes we have seen in other states that were less thoughtful in their plans. Governor Cuomo made mistakes during the past year, but he took responsibility for them and changed policies to correct problems. His leadership mattered and I will always be grateful for what he did because he helped as many New Yorkers as he could to survive a devastating year.

I think New Yorkers need to remember that Governor Cuomo is also a regional and national leader. He spearheaded an effort in the Northeast for states to cooperate on policies and on procuring supplies after the prior federal administration decided not to have a national strategy. In 2020, he was vice chair of the National Governors Association; in 2021, he is chair. This gives him even more opportunity to advocate for policies to help everyone in the US in these trying times. In a few days, it is likely that federal aid to state and local governments will finally be enacted as part of the American Rescue Plan, an initiative that Cuomo has been championing since last spring.

I admit that I am somewhat perplexed that people are surprised by Cuomo’s personal behavior. Any casual observer of New York politics or regular viewer of his pandemic press conferences has seen him being combative and displaying his sense of humor, which ranges from dry to caustic. His sense of what is appropriate to say in public is – um, let’s say – less circumspect than one would expect. He seems especially unable to understand younger people’s sensibilities. For example, when his three 20-something-year-old daughters and one of their boyfriends were living with him last year, he said any number of embarrassing things regarding them. I don’t think he really understands current mores on what is appropriate to say or do in work settings, which is why I think his apologies following the young women’s stories of feeling uncomfortable with his behavior are credible. He is as clueless as Joe Biden who faced criticism for touching and whispering in the ears of women while on the campaign trail or George W. Bush who tried to give German Chancellor Angela Merkel a shoulder rub.

I think that the independent investigation that is ongoing is very important to gather evidence on stories of sexual harassment and hostile work environment. If there is evidence of impeachable acts by the governor, then that should take place. Unlike a corporate executive, the governor is elected by voters, not a board of directors, so there is no relevant authority to fire him or force him to resign. While some state legislators have gone on record calling on Gov. Cuomo to resign because these investigations are a distraction, the governor is carrying on with his duties, adjusting the pandemic policies as conditions warrant and getting ready for budget negotiations with the legislature. Unlike most states, New York’s budget is supposed to be passed by April first, so, once the American Rescue Plan is signed into law, there will be a short window in which to finalize and pass the state budget. Although Lieutenant Governor Kathy Hochul has been involved in the pandemic response, especially in her home region of western New York, it would be much more disruptive to the state budget process to have Gov. Cuomo step down at this time.

While I admire Governor Cuomo’s leadership through the pandemic, I do not admire him as a person. I find him to be arrogant, overbearing, and a boor. Unlike his father, the late Governor Mario Cuomo, who was principled and articulate, Andrew has always been a bare-knuckles brawler and bully as a politician. Despite being a Democrat, during his early years as governor, he governed more like what used to be a moderate Republican. He and then New York City Mayor Michael Bloomberg were willing to inflict the health and environmental consequences of fracking on our area, as long as the watershed for New York City water supplies was kept free of drilling. (The eventual fracking ban in New York was thanks to Dr. Zucker of the Health Department and later passed into law once the Democrats had the majority of both houses of the legislature.) It wasn’t until it was clear that the national electorate was becoming more progressive and the Democrats controlled both houses of the legislature that Governor Cuomo started to govern and talk like a Democrat.

Because past Republican candidates for governor have been unqualified and put forward ideas which I oppose and because I didn’t like or trust Andrew Cuomo, I have been voting for the Green Party candidate for governor, whose platform aligns most closely with my own. Granted, in heavily Democratic New York, it was unlikely that my choice to vote third-party would have any real bearing on the outcome of the elections, but I wanted to make clear here that my admiration of the governor’s handling of the pandemic was not a reflection of my being a fan of him personally. Likewise, my observations of his personality and behavior are not coming from a place of partisanship.

At this point, my main motivation is pragmatism. The next couple of months are critical in the course of the pandemic. As national health experts and the Biden administration are pointing out repeatedly, we need to be cautious in ending pandemic protection measures until we have a much higher level of protection among the general public. Texas and a number of states have, as they did in previous waves, lifted restrictions too soon. Governor Cuomo will continue to follow the science to keep us from having a large spike in cases. He is also setting up vaccine sites among underserved populations, trying to address the health and social inequities that caused people of color and those with low income to be hit hardest by the pandemic. I don’t think the New York State legislature is nimble enough to address these issues and I’m not sure if Cuomo’s prior executive actions would stay in force if Lt. Gov. Hochul were to become governor.

Also, the budget negotiations will be very difficult. In New York, for a number of complicated historical reasons, the budget gets hammered out largely by the governor, the speaker of the Assembly, and the majority leader of the Senate. The budget also includes a lot of non-budgetary legislation; one hot topic in the last several fiscal years has been the legalization of recreational marijuana. I don’t think it would be fair to expect Hochul to be thrown into the midst of that process with the deadline coming up in three weeks.

I have often written about how the stress of our governmental function adds to my personal stressors. After the November election, I had hoped that, by this time, the governmental stress might have eased more than it actually has. With the aftermath of the insurrection and the state of the Republican party on the national level and the upheavals with Governor Cuomo, my hopes were not fully realized.

But, hey, what’s life without stress?

I’ll never know.

more good vaccine news

An update to my last post on coronavirus vaccines in the United States:
The Johnson & Johnson vaccine did receive emergency use authorization over the weekend and is currently being distributed. Because the company had manufactured some doses in advance through Operation Warp Speed, there will be some large shipments going out followed by a lag as Johnson & Johnson ramps up their manufacturing operations.

President Biden announced on Tuesday that another large pharmaceutical company with vaccine expertise, Merck, will be helping Johnson & Johnson to manufacture its vaccine. Merck ended a couple of vaccine trials it was conducting due to ineffectiveness and will be aiding the country in manufacturing its rival’s vaccine under the Defense Production Act. This Act is also being used to increase production of other needed items, such as vials.

Unlike the Pfizer/BioNTech and Moderna mRNA vaccines, the J&J vaccine is a more conventional vaccine, using inactive adenovirus to carry the vaccine into the body and activate the immune system. It only requires one dose and can be stored at refrigerator temperatures, so it is much easier to distribute to more rural areas.

While President Biden had previously said that any adult who wanted to be vaccinated would be able to be by the end of July, he now expects that to be possible by the end of May. This would allow most of us to resume what we have been calling “normal life,” although I think that some changes from our old ways of doing things will probably be in evidence indefinitely.

However, there are some big ifs. The first is that individuals would need to almost universally accept the vaccine to prevent it spreading in the community and to minimize the impact of new, possibly more dangerous variants. This would need to happen in every state – and in every country, if unrestricted international travel is allowed to resume. The second is that people would need to continue masking, distancing, limiting gathering size, etc. until most of the adults in the community were immunized or could be rapid-tested to show they were not likely currently infectious. New York is currently piloting holding sporting events using technology to screen for immunization/negative tests to allow higher occupancy for fans.

Another consideration is teens and children. Currently, only the Pfizer vaccine is authorized for use in 16- and 17-year-olds; it is currently being tested in 12-15-year-olds with plans to test in younger children after that. Other companies are also now beginning to study their vaccines in children and teens. Wide adoption of the vaccine among adults is the quickest route to protecting children, given that widespread vaccine use is unlikely for them until 2022.

The wild card continues to be how long-lasting vaccine effects are and how well they prevent serious illness from current and future variants. To that end, spouse B and daughter T are having blood draws this week to evaluate how their immunity is holding up as part of the Pfizer Phase III trial. They received their immunizations in August 2020 and will continue as part of the study into 2022. It’s also possible that Pfizer will be piloting the use of booster shots or of new vaccine formulations to better deal with variants, using the subjects already enrolled in Phase III. They have begun some of this research with Phase I/II participants.

Other vaccine researchers are continuing to study boosters and new vaccines, as well as longevity of immunity. Part of the story about Merck helping to produce the J&J vaccine and other similar partnerships around the world is that the extra doses may be needed as boosters in the future. If not, the surplus vaccines can be distributed through the COVAX initiative internationally to reach underserved populations.

All in all, it’s a hopeful time, but only if people are informed, thoughtful, and community-minded. Please, observe safety measures, get vaccinated when it is your turn, and be kind. We can end the pandemic sooner if we all work together.

Governor Cuomo

During the pandemic, I have listened to dozens and dozens of press briefings with New York Governor Andrew Cuomo. I appreciated his updates on COVID, the latest medical findings, and what New York was doing to address the illness and all the other issues that arose from it. I live in upstate New York, so the information he provided was especially relevant to me, but there were many around the United States and even abroad who tuned in.

In recent weeks, there have been legislators and press members who have been critical of the governor and his administration’s handling of the reporting of deaths in relation to nursing homes. The state reported deaths by where they occurred; people who died in hospitals were reported as hospital deaths, even if they had been nursing home residents prior to hospital admission. This was the state’s consistent practice and one which was straightforward and easy to compile from death certificates. All COVID deaths in the state were reported, categorized by place of death.

The problem arose because legislators and the press wanted to know how many nursing home residents later died in hospitals and how many formerly hospitalized patients died in nursing homes. This information is more difficult to compile and the governor’s staff, who worked seven days a week for months on end, did not have time to comb through all the records to assemble a report. Unfortunately, this was perceived as a cover-up of something nefarious and things have gotten totally out of hand with accusations flying everywhere.

I am annoyed at those in the legislature who are upset with the governor over this. When they requested the information they were not in session. Like many states, the New York legislature only convenes part of the year, usually January through June. If the legislature wanted this information, they could have offered to have the legislative staff compile it, rather than expecting the executive staff to add it to their already long list of duties.

There has also been questioning of the state policy to release COVID patients to skilled nursing facilities after hospitalization, especially in spring 2020 when the virus was so widespread in New York. This was based on federal policy. It got patients who had recovered sufficiently out of the hospital, putting them in a more comfortable, less risky environment while freeing up hospital space for more critically ill patients. Although these discharged patients were likely no longer contagious, the nursing homes had to be equipped to place them in isolation. Because I was listening to Governor Cuomo’s press conference every day, I knew that, contrary to some reporting at the time, nursing homes were not “forced” to take patients; they only accepted them if they were equipped to do so. Somehow, this morphed into stories that COVID was introduced into nursing homes by these recovering patients. In truth, COVID entered the nursing homes through staff who were living, shopping, etc. in the local community.

I am not an uninterested bystander in this case. My father lives in a senior facility which has been operating under COVID precautions for almost a year now. Despite that, they have lost at least six residents to COVID and have had more infections from which residents were able to recover. The cases originated from the outside community, not from a resident discharged from the hospital. The staff of the facility is tested at least weekly and screened for symptoms daily, but, as we know, the coronavirus is virulent before symptoms and before it shows up as positive in a test, so staff have unknowingly exposed residents, their families and co-workers.

Somehow, it has become easier to just blame Governor Cuomo. The legislature is threatening to revoke the emergency powers it granted to the governor to handle the pandemic, which is their right to do. However, if they do that, they had better be prepared to remain in session and react quickly to changing circumstances with disease variants, vaccinations, etc. The New York state legislature is not known for being agile – or even functional a great deal of the time – so they had better think carefully before they vote. It’s a lot easier to complain than it is to govern.

There have also been complaints of the governor bullying people and recently of sexual harassment. I am not commenting on those accusations at all as I have no basis to judge their veracity. I did want to address the reports on deaths and nursing homes because those are matters of public record and were clear to me as they were unfolding. Suffering the loss of a loved one is difficult enough without having questions about the circumstances of their death circulated in the press.

good news, bad news, and uncertainty

Yesterday, I got my second dose of the Pfizer/BioNTech coronavirus vaccine as part of their ongoing Phase III trial. As I have written about previously, spouse B, daughter T, and I are all participants but they both received the vaccine last August, while I was in the placebo group. After the vaccine received emergency use authorization, Pfizer unmasked the study so that placebo group folks could receive the vaccine as well, which I gladly did.

B and T both had a day after their second vaccination that they didn’t feel very well, so I planned today as a down day for me. I do have a sore arm, headache, some body aches, fatigue, and a low-grade fever, but ibuprofen and rest are helping somewhat. Only a small minority of people have this level of side effects, but I am more than willing to not feel well for a day in order to have as much protection as I can from the severe form of COVID-19. While the science is not yet clear if the vaccine prevents asymptomatic or mild disease, the data show that moderate and severe cases that lead to hospitalization and/or death are rare.

I am grateful that Paco was among the first at the Health Center in his senior residential facility to receive the vaccine. Two weeks from now, when I will be considered to have peak immunity, it will ease my mind when I am allowed to meet with him indoors to know we are both fully vaccinated. We will still need to wear our masks and keep some distance, but it will feel safer than it has over this past year.

More good news on the vaccine front is that Pfizer and Moderna have been able to ship more doses of their vaccines than they had previously and that the Biden administration has improved distribution in conjunction with the states and local pharmacies and health centers. Pfizer has applied for permission to store its vaccine at regular, rather than ultra-cold, freezer temperatures for up to two weeks, which will make distribution easier. Another positive development is that the Johnson & Johnson vaccine candidate may receive emergency use authorization as early as this weekend. It is a one-dose vaccine that can be stored in the refrigerator, which will make distribution in rural areas and neighborhoods without good transportation options much more effective.

The worry, though, is that more variants of the virus are appearing. Some of them are more easily transmitted and may cause more severe disease. It’s not clear how well some of the vaccines work against some of these variants. It’s also not always apparent which variants will become widespread. For example, a new variant has been identified in New York City, but no one knows if it will become dominant, cause greater sickness, or be prevented by the vaccine.

To combat this, both Pfizer and Moderna are looking at changing their mRNA vaccines to account for new variants, as well as studying if a third dose – or even an annual booster – might be necessary to tame the coronavirus and keep it at bay. It’s part of the reason that it is so important for the Phase III trials to continue collecting data, so we can keep immunity levels in the populations as high as possible.

For now, I’m resting, cuddled under a black fleece throw that the clinical research center gave me, with their name embroidered on it, of course. While study participants do receive a stipend, they also occasionally receive little gifts and it’s nice to have this throw to keep me warm today. The best thing, though, is knowing that the vaccines are helping people and that, despite the uncertainties, we are gaining ground in the battle to end the pandemic.

There is still a long way to go and I beg people to continue to wear masks, keep appropriate distance, wash their hands, and avoid large gatherings. Get whatever vaccine is available to you when it is your turn. Check on vulnerable people in your community to see if they need help to stay safe. Support efforts to get the vaccine to vulnerable people around the world.

It takes all of us working together to end the pandemic and rebuild our communities.

Grim milestone

It has just been announced that the United States has reached 500,000 deaths from COVID-19.

A half a million deaths among the 28 million confirmed cases. About 30% of those infected continue to have symptoms for weeks/months.

All of this in about a year’s time.

I had been watching a recording of mass for the first Sunday of Lent. When it finished, I tuned to a news channel. One of the frequent medical contributors, herself a physician, was speaking about the deaths and was struggling to keep from crying. The host noted how appropriate it was to react emotionally, as she herself was.

Such enormous loss. So much suffering. A reminder that, despite medical advances, we are nearing the death toll of the 1918 flu pandemic.

My eyes are filling with tears as I write this, both from the huge losses in our country and the world and from the losses of each one. Just recently added to the list a friend of my sister’s, the father of B’s co-worker, a resident in the apartments of Paco’s senior community.

Even with the vaccines becoming available, there will be many more illnesses and deaths. There will be uncertainty from the new variants’ effects, how long immunity will last after infection or vaccination, how people will behave as recommendations and policies change.

But today is overwhelmingly sad.

Again.

Valentine’s Day

The usual greeting for today would be “Happy Valentine’s Day!”

Not this year.

I’m having a difficult time using “happy” as an adjective after the last week.

My family has been struggling with caretaking issues for Paco, complicated by the pandemic. I’ve spent this weekend feeling as though I want to cry, but not quite being able to let myself do it.

It’s the opposite of “happy.”

The United States is also dealing with the first day after the second impeachment trial of our former president. The trial was sobering, as it drove home the extent of death, injury, and damage done during the insurrection and how very close the vice president and members of Congress came to being injured or killed. Somehow, even though more than 67 senators said that DT was responsible for inciting insurrection, only 57 voted to convict falling short of the two-thirds majority needed for conviction. There are likely to be legal repercussions for the former president coming through the judicial system, possibly both federal and state. Meanwhile, he is likely to seek revenge against those Republican members of Congress who voted for impeachment or conviction by advocating that their state parties censure them, by advertising against them, and by funding primary opponents.

Let me be clear that even if DT had been found guilty in the Senate trial, it would not have been an occasion of happiness. It is impossible to feel happy in the face of so much suffering, pain, and fear.

I am trying to find comfort in the message of Valentine’s Day that love is strong, enduring, and the most important aspect of our lives.

May it be so.

May it overcome our present situation.

Dealing with dementia

AARP recently published a gut-wrenching, heart-warming article entitled Tony Bennett’s Battle with Alzheimer’s.

Alzheimer’s runs in my father’s family. Paco’s father and all three of his siblings who survived into their seventies struggled with it. Because of his history, Paco enrolled in a long-term medical study on the effects of medications as possible preventatives for symptoms of the disease, which, unfortunately, did not find any effective medications.

As Paco aged well beyond the onset age of his afflicted family members without symptoms, we were relieved, as it looked like he might have avoided those particular family genes. People did always say that he took after his mother’s side of the family.

There are, however, other types of dementia, the risks of which increase with age. Paco, who will turn 96 next month, is suffering from some unnamed type of dementia. We are grateful that, while the memory loss is problematic, he has retained his generally cheerful disposition, sparing us all the personality changes that were so jarring in Paco’s father and siblings.

He has been having memory loss and cognitive problems for several years, which we had been managing with daily visits, phone calls, notes, pill organizers, and staff help. Things got immensely more complicated when COVID limited our in-person visits and disrupted Paco’s daily routine. It also made a possible move to the assisted living unit where his care could be better addressed more difficult, as family visits were nearly impossible for months.

When Paco became ill and was hospitalized in December, the decision to move out of his independent living apartment was made for us. There was no way that he could be safe without 24/7 staff availability, which he now has in the assisted living unit, where he has his own living room, kitchenette, bedroom, and bathroom along with three daily meals plus snacks, a nurse to manage and deliver his medications, aides to assist with activities, and the company of the other residents, all of whom have now been vaccinated against COVID-19 and most of whom he knew because they also started out in Independent Living in their senior community. Unfortunately, in-person visiting of people outside the unit is severely restricted, although I’m hoping that increasing vaccination rates and warmer weather permitting outdoor visits will ease the situation in the coming months.

Because I genuinely do try to address issues that are on the top of my mind here, it’s been difficult not to write about Paco’s dementia more directly over these last years. For a good chunk of that time, I avoided it because Paco followed my posts via email and I was afraid posting about it would further confuse or upset him. Now, he is well beyond being able to navigate email and websites, so I don’t have that worry – and the few people who read my blog and know Paco in real life already know the situation.

In truth, I’ve also had difficulty articulating my thoughts and feelings around this. Although my family dealt with cognitive decline with both my mother and father-in-law when they were terminally ill, Paco’s long, slow loss of memory has been even more excruciating. While I can adjust to the loss of short-term memory that results in answering the same question multiple times in a short phone conversation, I have a harder time dealing with the loss of long-time skills and words. When he can be looking at a dinner plate with his favorite food but not remember what it is. When he forgets the name of someone he has known for decades. When he, who was always meticulous in following his finances, can no longer add numbers.

It’s painful. Every time. And hard to express in words. Even in poetry.

My consolation is that it is seldom upsetting to him. By some grace, he is handling things with equanimity with only occasional moments of frustration.

He keeps reminding me of his favorite saying, “We’ll take it one day at a time.”

JC’s Confessions #17

In the first few seasons of The Late Show, Stephen Colbert did a recurring skit, now a best-selling book, called Midnight Confessions, in which he “confesses” to his audience with the disclaimer that he isn’t sure these things are really sins but that he does “feel bad about them.” While Stephen and his writers are famously funny, I am not, so my JC’s Confessions will be somewhat more serious reflections, but they will be things that I feel bad about. Stephen’s audience always forgives him at the end of the segment; I’m not expecting that – and these aren’t really sins – but comments are always welcome.

JC

Today is Super Bowl Sunday, which means that is it the championship of American football.

And I don’t care.

I’m not planning to watch the game or the halftime show or the commercials, which have become an attraction of their own.

I don’t enjoy watching football games. They are very slow; one hour of actual playing time takes at least three hours to accomplish. I am not attracted to watching heavily padded men run around and knock each other down and sometimes sustain injuries.

This year, the Super Bowl is being looked at as a few hours of national unity in the midst of division and I hope that that is true. Personally, I don’t need a game to make me feel like an American. After the attempted insurrection of January 6th, my level of commitment to the country has never been higher.

The sad thing will be that, after the game, the anticipated national unity will revert to what it was yesterday and will be on full display for the rest of the week as the Senate trial over the former president proceeds.

It’s also possible that millions of people will defy public health warnings and meet with people outside their households for Super Bowl parties, which might cause another COVID-19 spike, with attendant hospitalizations and deaths, in the coming weeks.

That would be the saddest Super Bowl result ever.