Tag: care

Come Home to Smith!

Smith College, my alma mater, is celebrating its 150th anniversary this year with a number of events. I travelled to our Northampton, Massachsuetts campus for the “Come Home to Smith” events on November 1st. The campus was beautiful as always and it was a privilege to be back on campus with other alums and current students, as well as family members who were visiting as it was also Family Weekend.

It was my privilege to also attend the first-ever event of the Smith VOICES (Variety of Opinions, Interests, Cohorts, and Experiences are Supported) initiative, organized around the theme of “Joyful Care.” I enjoyed fascinating presentations on wellness for individuals and communities, offered by alums and staff. I appreciated the opportunity to interact with other alums from across the age spectrum and from many different backgrounds and communities.

I especially enjoyed the opportunity to learn new things, reflect, and deepen my understanding. Smith is a champion for liberal arts education, encouraging both breadth and depth of learning and I cherish being part of that tradition. While I didn’t have as much time and energy to wander around campus, I had to stop and learn about this research garden, tucked along the pathway between Wright Hall and Chapin House:


I also enjoyed spending time in some renovated spaces on campus. The opening of VOICES was in Alumnae House in the same room where we held our wedding reception in 1982. Later presentations were in Neilson Library. The photo below was taken in the Browsing Room and shows the official portrait of Jill Kerr Conway, the first woman president of Smith, who was president when I was a student.


To cap the Come Home to Smith activities, current president Sarah Willie-LeBreton addressed the alums and answered questions with insight and warmth. I heard from several alums and staff members how vital President Sarah’s leadership has been in these stressful times for higher education and for society in general. I also love how everyone calls her “President Sarah” with true affection. This was my first opportunity to hear her speak in person. She was astute, thoughtful, and joyful, even when touching on challenges that we are facing.

I ended the day with the Montage concert, which brought together musical groups now active on campus, over half of which were not in existence when I was a student. My favorite new-to-me group was the Wailing Banshees, Smith’s Celtic music ensemble. I loved seeing that the handbell choir, which was very small in my day, has grown to enable ringing five octaves. A newer tradition that has developed is ending with an audience participation piece. We joined in with “Let There Be Peace on Earth” with the Glee Club and Orchestra, which, I admit, made me teary.

In her will, Sophia Smith provided the funds to build and maintain a college for women that would provide an education equal to that available to men. The will states, “It is my wish that the institution be so conducted, that during all coming time it shall do the most good to the greatest number. I would have it a perennial blessing to the country and the world.” I’m grateful that Smith College continues to be a blessing and that it grows and changes in ways that honor Sophia Smith’s wishes. Having previously made their financial aid packages loan-free, Smith recently announced the Next 150 Pledge , which will make Smith tuition-free for families with incomes up to $150,000.

I’m proud to be part of the Smith College family and hope that we will continue as a “perennial blessing” for the next 150 years and beyond!

One-Liner Wednesday: RBG

Fight for the things you care about, but do it in a way that will lead others to join you.

Ruth Bader Ginsburg

Join us for Linda’s One-Liner Wednesdays! Find out more here: https://lindaghill.com/2024/05/01/one-liner-wednesday-sprung/

(grand)childcare

(Photo: ABC’s bear wearing a Binghamton Rumble Ponies cap)

Spouse B, daughter T, and I are in London this week visiting daughter E, son-in-law L, and granddaughters ABC and JG for half-term break. This first half of the week, both E and L are working, so our main goal is taking care of ABC and JG so they can do that.

The last time we were together in person was April when they came to our home in the US. Although we do video calls, they can’t really capture the changes that happen. JG, now 3 and attending full-day nursery school is chatting up a storm! She loves making puzzles, zooming around our rental house near their home, and following the lead of 6-year-old ABC, who likes or tolerates it most of the time. ABC, now in year 2 at school, is reading well and a master of make-believe. She can make up songs and lyrics on the spot, taking after her musically-and-literary-accomplished parents. ABC also enjoys dance and art.

I love watching B being Grandpa, playing games, reading stories, preparing meals and snacks, and dozing off during naptime. T is an involved auntie, playing endless games of hide-and-seek and whatever make-believe ABC has invented and giving gentle hugs, in deference to her still-healing shoulder.

My favorite thing is just being here as family. With the ocean between us, it’s a rare gift to snuggle on the couch, especially with JG who was born during the early part of the pandemic and whom we didn’t get to meet in person until she was a year old. Such a different grandparenting experience than with ABC who lived with us in the US until she was two.

For JG, I’m just Nana. ABC, though, remembers her Great-Nana, who passed away in 2019.

I miss my parents and wish I could be as good a grandparent as they were with E and T.

JC’s Confessions #24

In the first few seasons of The Late Show, Stephen Colbert did a recurring skit, then a best-selling book, called Midnight Confessions, in which he “confesses” to his audience with the disclaimer that he isn’t sure these things are really sins but that he does “feel bad about them.” While Stephen and his writers are famously funny, I am not, so my JC’s Confessions will be somewhat more serious reflections, but they will be things that I feel bad about. Stephen’s audience always forgives him at the end of the segment; I’m not expecting that – and these aren’t really sins – but comments are always welcome.

JC

Over the many years of caregiving and volunteering I have done, people have often advised (admonished) me to “take care of myself.”

I don’t think it is something that I do very well.

I do try. I eat well (usually) and sleep (generally not so well, but not for lack of trying). I do my physical therapy exercises most days and speak with my counselor on a regular basis. (I love getting massages but the pandemic and other complications have interfered with what used to be a regular part of my self-care plan.)

I admit that the amount of stress, grief, and loss has been high for a lot of years. I would sometimes joke in recent years that it was too late for whatever stressor to give me gray hairs, although I notice that my eyebrows are beginning to turn silver and that my facial lines seem to be more indicative of sadness, unless I am actively smiling. (Or maybe this is straight-up aging, rather than stress-induced?)

(Hmmm…wonder if my extensive use of parentheses in this post is a form of denial, distancing, or hedging?)

But here’s the thing. When people want you to “take care of yourself,” the subtext is often to put yourself first, which is not my nature as an HSP (Highly Sensitive Person). I will always care about what people close to me are experiencing and try to do whatever is in my power (and sometimes attempt what is not really in my power) to help. I also feel compelled to serve my neighbors, whether near or far, which, given the state of the US and the world, is a huge task, but I try to shoulder my tiny sliver of it as best I can.

It’s a lot.

I can hear some people’s brains clicking with (totally valid) thoughts about boundaries and such…

And maybe I’ll manage that wisdom if I am gifted with enough years.

Or maybe I will always be “guilty” of prioritizing the needs of others before my own.

Or maybe that is just who I authentically am.

SoCS: again with the complications

My life is beyond my control.

The latest wrinkle is that, just as we had worked through the latest set of medical complications with Paco and thought we could arrange another visit with the UK branch of the family before they return to London next week, there were not one but two breakthrough COVID cases discovered in the nursing home staff and the unit is closed to visitors, probably for two weeks.

Because Paco is considered a compassionate care case, we still have limited visitation, but visits need PPE, including N95 masks, and are restricted to no more than two people for about an hour per visit.

Not conducive to visits with a one-year-old and a four-year-old.

We were blessed with an outdoor visit last week and have some pictures to prove it.

That will have to do because I have no control over the situation.

Just hoping that Paco will be able to stay medically stable while we get through this period. He is fully vaccinated, of course, and everyone will be tested multiple times during the lockdown. Fortunately, he was not in close contact with the staff members who tested positive and who were doing the right thing by being fully vaccinated but the delta variant is even more formidable than the original form of the virus.

So, we’ll just keep on doing everything we can.

Even when it’s not ever enough.

I guess “enough” is not a valid concept here.

Even when the best we can do is not close to the best we had hoped for.
*****
Linda’s prompt for Stream of Consciousness Saturday this week is to begin a post with My. Join us! Find out more here: https://lindaghill.com/2021/08/27/the-friday-reminder-and-prompt-for-socs-aug-28-2021/

SoCS: blogging mode

A few days ago, I posted about going into a new blogging mode.

I shouldn’t have.

While I did manage one post in line with my new mode, a complication has arisen with Paco’s health. I’ve had very little sleep and no real idea of what today will bring.

This is where I would usually say something like “stay tuned” but I have no idea if it will be a few hours or a few days or longer before I have an opportunity to post again – about Paco or anything else.

I’ll be heading over to the nursing home as soon as we get to a reasonable hour – unless the phone rings before a reasonable hour arrives…

*****
Linda’s prompt for Stream of Consciousness Saturday this week is “ode or a one or two syllable word that rhymes with ode.” Join us! Find out more here: https://lindaghill.com/2021/08/20/the-friday-reminder-and-prompt-for-socs-aug-21-2021/

an update and a plan

I have been posting less than usual over the last couple of months as we have been dealing with health difficulties with my father, known here as Paco. He had a couple of falls in June, resulting in some cracked bones, which have been healing well while he has been in a rehab program. Unfortunately, he also suffers from dementia, which has worsened, and from a number of other health conditions, which are not unexpected in a 96-year-old but which have necessitated remaining in a nursing home rather than being able to move back to the assisted living floor where he lived previously.

It has taken a lot of time with in-person visiting and inordinate amounts of time dealing with paperwork and red tape. My sisters have been coming into town to help, but I am still not finding time to write as much as I would like.

On Monday, I’m happy to report that the UK contingent of our family – our daughter E, her spouse L, and their two children 4-year-old ABC and just turned 1-year-old JG – arrived from London for a two week visit. It is our first opportunity to meet JG in person. She is adjusting to our actually being flesh-and-blood people rather than images on a screen. It’s amazing that she is able to deal with being a different place with different people after being in lockdown so much of her life, especially when you consider it took two large airports, a plane, and the longest car ride of her life to get here. Also, five hours worth of jetlag. It’s also amazing how much ABC remembers from when she lived with us, given that this is her first time back here since she moved to the UK in October 2019.

Because of the delta variant’s prevalence, we haven’t ventured much from the house over these last days and probably won’t be taking the children to many indoor spaces, given that they are too young to have been vaccinated. We do plan a visit to Paco later this week. When the weather is better, we will also be able to go to the parks and take rides on the carousels for which Broome County is known.

My younger sister is here visiting and helping with Paco and my older sister and her spouse will arrive next week for a few days. My plan is to carve out a bit of time for some posts which will update topics about which I frequently post; I’m hoping to be brief, which is always a challenge for me!

Let’s see if I manage to follow through with this plan…

SoCS: luck

I’m not sure I believe in luck anymore.

Or maybe I only believe in luck, given that no amount of thought, planning, and preparation seems adequate?

Hard to say…

Was it lucky that Paco, after literally months of not being able to even remember how to even answer his phone, suddenly remembered how yesterday?

I thought that maybe he was recovering some brain function that we thought had been permanently lost in his falls in June.

Or was it unlucky because he called me at 12:45 AM to ask about a dental appointment that was on his calendar that he didn’t remember going to?

I called the aide station and asked for them to remove the receivers from his room. I also hoped that he would go to sleep. It was odd that he was awake at that hour because he hadn’t slept much during the day, either, and lately he has been napping extensively and sleeping all night.

At 1:45 AM, my phone rang again. It was Paco, calling to tell me that his phone wasn’t working. The aide hadn’t realized that there were two wireless handsets and Paco had found the second one, most likely the one on the homebase that was hidden behind his television.

I called the aide station to ask them to get the second handset out of there, which they presumably did, but I, who had only slept maybe an hour before the first call came in and not since, still couldn’t go back to sleep so I got up and did a bit of correspondence and finally went to sleep sometime after 3:30.

Of course, I was awake by 7.

On Saturday morning, the nursing home has a singalong at 10:00. Singalongs are by far Paco’s favorite activity, so I had planned to stay at home this morning and spend a few hours finishing touch-ups and a cover letter to submit my poetry collection to a press for consideration, but I don’t know if I have enough brain to do it.

Stream of consciousness blogging is one thing; editing poetry and following detailed submission instructions is another. I’m not sure my brain can handle the second.

It’s too bad I don’t drink coffee.

Or tea.

Or anything with caffeine.

Or that my body doesn’t seem to have the same effects from caffeine that most people do.

So, if I’m lucky, at some point this weekend, I’ll have enough brainpower to get the manuscript sent out.

If I’m really lucky, Paco will retain his phone calling ability while regaining his sense of night and day, which seemed to have failed him yesterday even as his phone skills reappeared.

But, yeah, it’s not really about luck, is it?

It’s about dementia and its progression and my worry and the taxing of my coping skills after so many years of caregiving for a succession of people with myriad needs.

Luck has little, or maybe even nothing, to do with it.
*****
Linda’s prompt for Stream of Consciousness Saturday this week is “luck.” Join us! Find out more here: https://lindaghill.com/2021/08/13/the-friday-reminder-and-prompt-for-socs-aug-14-2021/


SoCS: a week

What a topsy-turvy week it has been with my dad!

I can’t bear to go through the details but I will say that things appear to be on an upswing at the moment with some hope for stability on the horizon.

There will be a rare event to end the week, though, as B and I will be attending the wedding of two of my poet-friends this afternoon.

Best wishes to the happy couple!

*****
Linda’s prompt for Stream of Consciousness Saturday this week is “wee”. Join us! Find out more here: https://lindaghill.com/2021/08/06/the-friday-reminder-and-prompt-for-socs-aug-7-2021/

Paco update

Linda’s prompt for Stream of Consciousness Saturday last week was to base the post around a word that contained -igh. My thought was to write a post beginning with “Sigh” about my father’s continuing health struggles, following up on two previous SoCS posts.

The day after I wrote the post linked above, Paco’s condition deteriorated and I made the decision to send him to the emergency room. After the initial check-in, I was allowed to be with him. The ER team was very thorough and found that he was dehydrated and had three new fractures in his lumbar vertebrae. After some IV fluids, he went back to the rehab facility by ambulance at 3 AM.

I caught a nap and was very grateful to learn that my older sister had moved up a planned visit and would arrive that afternoon. She spent a lot of time with Paco on compassionate care visits while I worked out a lot of logistics. It turned out that a rehab room opened up within his senior community; the place where he currently was in rehab was a sister facility in a nearby city. Paco was set to move back on Friday and I spent a lot of time packing up things in his assisted living unit, some to send up to his rehab room there and some to bring back to our house as we had decided to give up his place in assisted, as we know he won’t be well enough to return there any time soon – and may never recover to that point.

The plan on Friday had been that our family would finish clearing out his place in assisted and help Paco to get settled into rehab, but we arrived to find that someone in the assisted wing had tested positive for COVID, so it had to go into lockdown. Fortunately, this didn’t affect Paco’s move and he arrived safely via medivan. I signed yet another cache of documents and was allowed a short visit to help him get settled.

Unfortunately, our hard-won rights to expanded compassionate care visits got lost in the bureaucracy with the impending holiday weekend adding another layer of complications with so many staff away on vacation. I was able to get permission for some extra visiting time over the weekend but face another round of changing personnel, location, rules, etc. this coming week.

Meanwhile, Paco is confused and exhausted. The silver lining is that his pain level is generally low.

The big question mark remains how much recovery is possible in regards to daily living functions. I don’t know if the rehab team will be able to make a valid prediction or not.

It may be a situation of wait and watch and work and hope and pray and see where we end up.