Remembrances on Sunday

Today would have been my friend Angie‘s 65th birthday and I just sent a contribution to her memorial fund. In the brief note that I sent to her family, I noted that I can’t imagine that Angie would have “retired” because she was all about love and service and would not have stopped doing that. I am honoring her memory today and remembering her family and friends who have been without her physical presence for over ten years.

As it happens, two of my college friends lost their mothers this month, one unexpectedly and one after a long period of illness, so I am sending thoughts and prayers out to Sally and Tricia, their moms, and their families.

Two friends are dealing with a sudden medical emergency with their loved ones. One’s husband’s life was saved by emergency open heart surgery. The other’s asymptomatic brother was diagnosed with stage four colon cancer at his first screening colonoscopy at age 50. Both men are facing a long road to recovery and I am holding them and their whole families in thought and prayer as well.

Yesterday, I attended vigil mass at St. Joseph’s, which was the long-time church home of my friend Marcia, whom we lost to ovarian cancer several years ago.  Last month was ovarian cancer awareness month, with several big fundraising events. There has been some progress in detection and treatment since Marcia died and I hope that the advances will help her descendants to lead long, healthy lives.

It’s a quiet Sunday morning. Soon, B and I will head up to Good Shepherd Village to visit Grandma, Nana, and Paco with an extra measure of thankfulness.

Candles of Hope

People who often visit Top of JC’s Mind know that I tend to write excited, squealing posts any time a poem gets accepted and again when it is actually published.

This past spring, however, I did not post when the Candles of Hope anthology, to which I am a contributor, became available in print.

It’s complicated.

The subtitle of the anthology is “A Collection of Cancer Poetry” and it was edited by Wendy Lawrence of GWL Publishing to raise funds for Topic of Cancer, a UK charity.

The poem I submitted can be found here.  I had written it late one night and posted it without giving any thought that it might one day be published in print. Wendy had put out a call for poems about cancer for the anthology several months later and my poem was accepted. Last October, when I was writing the note that accompanies the poem in the anthology, I was happy to report that K was in remission.

This spring, as the book was released, we found out that K was having a recurrence.

I couldn’t bring myself to publicly celebrate a publication, knowing that K was facing difficult treatment decisions, especially as the chemo that achieved the remission last year very nearly killed her.

I decided to share the news and the link today because K, while still under treatment, seems to be doing quite well. She is able to be out and about and able to attend some events at church.

I would like to ask everyone who reads this to send prayers, healing thoughts, good energy, or whatever fits with your own belief system for K.

With thanks,
JC

Reblog: fighting childhood cancer

Mytwosentences 109.

From one of my favorite blogs. Edward can say a lot with two sentences and a photo.

Ten years later

2005 was a difficult year. I lost a great and good friend, my long-time church community, and my father-in-law all within a few months.

Today is the first of the major tenth anniversary dates. Ten years ago today, which was Good Friday that year, my friend Angie died from cancer, leaving behind a husband, two sons, a daughter, her mother and siblings, extended family, and many, many, many friends.

I’ve written about Angie before, including here, so I won’t go on too long about her awesomeness. Her legacy includes not only her wonderful family and friends but also a charity fund that gives scholarships, supports cancer patients and their families, and supports The Discovery Center, our local children’s museum, which Angie blessed with her artwork. There is an art gallery, memorial tree, and butterfly house dedicated to her there, as well as an art gallery near the African Road/Vestal Middle School auditorium, which I will always think of as Angie’s Auditorium because it was a long-time dream of hers that she helped fulfill when she served on the Board of Education.

What I am thinking about today, though, is the ten years we have been without her physical presence.  The high school graduation of our daughters, the college commencements, her son’s law school graduation, passing the bar, getting married. All the little moments – hanging out in the kitchen, going out for lunch, taking the dog for a walk, attending seemingly endless committee meetings.

Because I do believe in the eternal life of the soul, I believe that Angie is still able to be present in our lives spiritually.  For those who don’t believe, Angie is still present through her role in shaping the people whom she loved and who loved her, as well as through the art she left for us to enjoy and the legacy projects I’ve already mentioned.

In some ways, we have been without her for ten years. In other ways, she has been with us all along.

SoCS: My friend Angie

I have written before about my friend Angie. I’m thinking of her today because next month will be the tenth anniversary of her death. I’m thinking about things we missed over these years, such as supporting each other as our eldest children married. If she were still alive, she would probably be on the school board still, and I’d have a clue about what is happening in the school system, something that is hard to do when you no longer have children young enough to be in K-12. She would have supported me through the health travails of our elders and I would have supported her in the same way. Even though she has been gone for a long time, I still miss her.

Friends are forever.
******

This week’s prompt is:  acquaint and/or friend.

This is a February and Linda and Bee are joining forces. First, Bee’s badge and link: https://justfoolingaroundwithbee.wordpress.com/2015/02/22/love-is-in-da-blog-february-ping-back-post-rulessuggestions-week-4/

Love Is In Da Blog

And this post is part of Linda’s Stream of Consciousness Saturdays. Please join us! You can find the rules here:  http://lindaghill.com/2015/02/27/special-edition-friday-prompt-for-socs-february-2815/

socs-badge

SoCS: Special Cents

In the US, money is denominated in dollars and cents. We still have a one-cent coin, called a penny.

People tend to ignore pennies, but they have a special meaning for me.

My elder daughter was an early reader and we were always on the lookout for stories that matched her reading ability without being too grown up in content. Her elementary principal suggested “The Hundred Penny Box.” The story is about a child and an elderly relative who has a box with a penny from every year of her life. We decided not to let our daughter read it because no other adults in the book really listened to either the child or the elder, but I loved the idea of having a penny for each year as a memento.

I have given penny boxes to family and friends for milestone birthdays or anniversaries. My parents’ 40th wedding anniversary. My friend and now spiritual mentor as a memento of her 40th birthday sweat lodge ceremony. My college roommate’s 50th birthday. I give a new penny for the current year each year on the anniversary or birthday date.

The only penny box I started that is no longer being added to was the one I gave my friend Angie for her 49th birthday. With a doctor-husband and many friends in the medical community, she was worried about turning 50, knowing that the fifties is a dangerous decade, health-wise, with many serious health conditions cropping up. Because the penny box commemorates the beginning of a year rather than its completion, the penny box for 49 contains 50 pennies. I thought it would be a good way to ease into her 50s the next year.

Within weeks of her fiftieth birthday, Angie was diagnosed with lung cancer, a shock as she had never been a smoker.

She fought hard and we added pennies for her 51st, 52nd, 53rd, and 54th birthdays.

We knew the 54th was going to be the last birthday she would celebrate.

As 2005 began, I wanted to find a new penny to add to the box while she was still alive, knowing her October birthday would not see her alive. I even went to a coin shop, hoping to find a newly minted penny, but it seemed that the mint had not yet started making them yet.

Angie died on March 25.

Later that spring, when I found a 2005 penny, I sent it to her husband to complete Angie’s penny box.

However briefly, 2005, her 55th year, was Angie’s year, too.

*********

This post is part of Linda’s Stream of Consciousness Saturdays. Join us! Details here:  http://lindaghill.com/2014/11/28/the-friday-reminder-and-prompt-for-socs-november-2914/.  This week’s prompt is sense/scents/cents/sent.socs-badge
Badge by Doobster @Mindful Digressions

Dr. Barbara Chaffee

The link below leads to a few paragraphs and a short video clip. Even if you want to ignore the text – and the rest of this post, for that matter – watch the clip. It is part of a documentary nearing completion on the life of Dr. Barbara Chaffee, Binghamton physician, mom, and community member, by her son filmmaker Tim Chaffee. Barbara was at the forefront of treating AIDS patients in Binghamton back before HIV was well understood. She was a compassionate and caring person in whatever situation presented itself and her story should be preserved and shared with the world.

Yes, this is related to fundraising and I have made a small contribution myself, but, no, you don’t have to give money to support the film. If you like the link, please do share it via your blog, twitter, facebook, ello, email, or whatever mechanism you use to get the word out.

With thanks,
JC

http://wildgeesefilms.net/news-timeline/34-just-infrastructure

54

Today is my 54th birthday. Not usually considered a milestone birthday, but it is a poignant one for me. Fifty-four is the perpetual age of my friend Angie.

Angie called us “October babes.”  She was born in 1950 and I in 1960.  It didn’t feel like we were ten years apart in age because we had children in the same grades in school, although – bonus for me – she also had a child who was two years ahead of my elder daughter in school, which meant that I had a preview of coming attractions.

We were different in a lot of ways. I’m 5′ 1.5″ and Angie told people she was 5′ 12″ because she thought it sounded less daunting than saying she was six feet.  Angie was raised in New York City and thought of our mutual home now as small.  I was raised in a New England town of 200, so our current hometown of 20,000 was as large as the city I traveled twenty miles each way to attend high school.  She was a trained artist and skilled in decorating and entertaining, with a great and quirky personal style, which included rocking her signature look – overalls. (Trust me – it was amazing.) I am not known for any of those things.  She had a great talent for storytelling, complete with different voices and accents for the characters.  I am better with the written word than the spoken word.  She had a vast array of friends in various circles of the community and was well-known, while I had far fewer friends and was more comfortable working behind the scenes.

We were, however, both personally dedicated to volunteering, and met when I joined a site-based decision-making team at our district middle school.  Angie had already been serving as one of three parent representatives and we quickly became friends.  She helped me navigate the surprisingly intricate educational world and introduced me to a lot of new people and ideas.

Even though she had many friends, she was near and dear to all of them.  She was a wonderful listener and a wise advisor. She was unfailingly kind and generous.  The kind of person everyone hopes to have in their life.

Because her husband was a doctor, she had many friends in the medical community, but had a heightened awareness of the possible health calamities that happen to people of various ages.  She talked about being worried about turning 50, because she had known so many people who succumbed to medical problems in that decade.  When she turned 49, I gave her a box with a penny from every year of her life, which meant that I gave it to her with fifty pennies in it, and the promise to give her a new penny each year on her birthday. I thought already having fifty pennies in the box might help ease her into her next birthday.

Within weeks of her 50th birthday, a nagging cough turned into a diagnosis of stage 3 lung cancer.

It was a shock.  Angie had never smoked, but through some combination of factors – growing up in a congested city when vehicles still used leaded gasoline? lung damage from infections? genetic vulnerability? secondhand smoke, as she was growing up before anyone had even thought of smoke-free rooms? – here she was with a frightening diagnosis.

Treatment was aggressive and achieved a remission. There was a big 50+1 birthday party, which served as a charity fundraiser.  But, as we all feared, there were metastases that developed and more treatment with some short breaks but then the next problem and the next round of radiation or chemo until finally around the time Angie turned 54, there was nothing else that could be done.

After the new year started, I began searching for a 2004 penny for her box.  We knew she would not live to see her 55th birthday and I hoped to get the penny to her while she was still able to realize it, but even the coin shops did not have them available so early in the year. Angie died in March.

When I found the penny later in the spring, I sent it to her husband to complete Angie’s box.

I still miss Angie and honor her memory. One of the ways I do that is by donating to the fund set up in her memory which raises money for scholarships and for the LUNGevity Foundation, which supports both lung cancer research and patients and their families.

Another way is to spread as much love as possible and to dedicate as much time as possible to caring about and serving others.

And for this year, Angie and I will both be 54.

good news from K

I wrote and posted this poem in February and re-posted it recently when it was accepted for publication.  Today, I have the best possible follow-up. I saw K this morning and she shared that her recent CT scan revealed that her tumor has not just shrunk, but disappeared. This winter and spring, she had been treated aggressively with simultaneous chemotherapy and radiation, until she nearly died from side effects and the treatment had to be halted.  She has been in a rest/recovery phase over the summer, but it was a huge and wonderful surprise that the tumor was gone. Hallelujah!

poem for K & in memory of M

I am reblogging this today because I just got news that it will be included in an anthology in Great Britain, which will be raising funds for cancer research. This will mark the first time that my poetry will be in print outside of my local area, which is a huge milestone for me. I am also pleased to be able to take part in such a worthy charitable cause.

Joanne Corey's avatarJoanne Corey

For K and M

The last time I saw you -
     layers of winter clothing
     not quite obscuring
     a bloated belly
     on your thin frame -
you felt full
eating a single egg.

I tried not to panic -
     remembering the last friend
     with a similar story
     that became a stage three
     ovarian cancer patient -
soon enough to win a couple of battles
but not the war.

You had new doctors
with your new ACA insurance -
     some blood tests done
     office visits coming
     maybe some digestive problem?
     gall bladder? -
diagnosis pending.

Yesterday, the news -
     hospital
     abdominal tumor
     entwined with multiple organs
     origin uncertain -
oncologist acquired.

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