blue Christmas

Several years ago, I attended a Blue Christmas service, led by a pastor-friend. It is a service during Advent to help those who are experiencing loss or struggles, acknowledging that the Christmas season is difficult in their circumstances.

It would have been beneficial to attend such a service this year.

I have been preoccupied with caregiving responsibilities and concerns over these last months, which don’t pause just because it is December. I outsourced nearly all the Christmas preparations to my family, even sending holiday cards and letters, which has long been one of my highest priorities. I couldn’t make myself try to sum up what has been a complex year, so spouse B and daughter T wrote a letter instead.

One of the blessings of this year, though, has been that our Christmas celebration has been elongated, starting with St. Nicholas Day on December 6th, which we observed so that we could celebrate with daughter E and granddaughter ABC before they left to spend several weeks with son-in-law L and his family in London. My older sister and her husband came to visit weekend before last. T and I attended Christmas Eve mass at 6:00 last night, with the instrumental ensemble and choir and the handbell choir. T loves handbells and ringing, so it was wonderful to hear them, especially with the new addition of handchimes.

On this Christmas morning, we opened stockings and a few presents, given that we already did stockings and gift exchange for St. Nicholas Day. We will have dinner at noon with Nana and Paco, bringing Nana over from her room in skilled nursing to the main dining room for the holiday buffet, as we did at Thanksgiving. Tomorrow, my younger sister and her family will arrive for a couple of days.

Still, it is difficult for me to feel festive. It’s hard to marvel at the wonder of the Incarnation while thinking about logistics and everyday details.

Perhaps, that is the message, though. The wonder of the Incarnation is that it arrived by everyday means, the birth of a child in complicated circumstances, something that happens around the world every day.

Perhaps, I can take that message into my own heart today, reminding myself that the spirit of Love is within and around us in our everyday experiences, if we only reflect and notice.

Wishing that spirit of Love to each of you,
Joanne

Two Poems for the Marcellus

In April 2014, I changed the original post below when I submitted my poem to an anthology. It wasn’t selected, but I never reposted with my poem included. When I ran across this copied into my drafts folder today, I figured it was time to put it back out there. It a good reminder to me that, even though there is a lot more work to do, we have made some progress since November 30, 2012.
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I had to share this link: http://www.huffingtonpost.com/sandra-steingraber/marcellus-shale_b_1428030.html, which leads to an essay and poem by biologist/poet, Dr. Sandra Steingraber.  She is one of the heroes in the fight to keep unconventional fossil fuel extraction, aka fracking, out of New York State and to rein in this and all toxic industrial activity everywhere. The poem is mind-blowing for me, partly because of its depth of composition and partly because I have spent a lot of time in the fight, too, although in the role of citizen advocate/commenter, not expert/lecturer/author.

This seems a good opportunity to share a poem I wrote, right after the announcement that the New York State Department of Environmental Conservation was putting out final drilling regulations for comment, despite the supplemental generic environmental impact statement not being complete. The good news is that we mobilized to submit over 100,000 public comments and the DEC let the proposed regulations lapse. The SGEIS is still incomplete, pending a health review from the state health commissioner, and we still do not have high volume fracking in New York State.

Novermber 30, 2012 – After DEC Regs

Watching the silent snow,
The voices recede.
The hills are shrouded,
The innocent land
Unaware of the impending attack.
The crows circle,
Seeking carrion.
The cold creeps into our bones.
The land shivers,
Resting now from the furrowing of the plow
Under its snow blanket,
Dreaming of spring.
Will the thaw bring warmth and greening
Or drilling and destruction?

The wilds of October, so far

My Facebook page of Top of JC’s Mind is helpfully reminding me that I haven’t posted in 13 days, and that post was a so-far-unsuccessful plea to get from 99 to 100 likes. My last actual blog post was on October 6, so – deep breath – here is an attempt to catch up a bit.

My mom, known here as Nana, has been under hospice care since summer of 2017 due to congestive heart failure. There have been quite a few ups and downs over that time – and quite a bit of red tape. Re-certification reviews are every two months, so, one finishes and it is time to start on data collection for the next.

As it happened, Nana’s current certification was due to expire on October 15. I was due to be out of town from the third through the ninth and thought that the re-certification decision had been deferred until the tenth; instead, the medical director decided on the fourth that Nana would no longer be covered by hospice as of the sixth. Hospice would continue to “follow” her until another suitable, safe situation could be arranged, but we were not given a date.

The situation was complicated by the fact that Nana had been in residence at Mercy House, which only houses people under the care of our local hospice, since May and could not return to her former home in an apartment with my dad, known here as Paco, at Good Shepherd Village (GSV) because her care needs were too great. Anticipating the possibility that Nana might be decertified, we had her on the waiting list for the skilled nursing unit at GSV for weeks, but they had no availability.

As soon as I returned home, it became obvious that we wouldn’t be able to wait for a room at GSV. On Wednesday, the 10th, my first day back, we were offered a room at GSV’s sister institution in the rehab unit, which we basically had to take.

I will not vex you with the details of the bureaucratic wrangling I needed to do to get the move accomplished by Friday. I will, however, say that I was disappointed that I was caught in the middle of so much red tape when so many people in the official-dom had been assuring me for weeks that transferring between institutions would be smooth and handled by the professionals rather than family.

Mom had her evaluations and was starting in with physical and occupational therapy, when, on the following Tuesday, we got word that space had opened up for her at GSV. So, we packed up her room and, on Wednesday morning, she moved again to what should be her permanent home.

We have her settled in her new room, which has a beautiful view of the valley. There are favorite art pieces, cards, and photos on display and a new sized-for-her recliner lift chair that we bought. She is making progress with her therapy and can walk short distances with a walker and a companion nearby.

I wish I could say that her heart function is improved, but that is not possible. Our goal remains to keep her as active as possible for as long as possible and to keep her pain-free. She is under palliative care protocol, similar to hospice but without the pesky obligation of trying to guess life expectancy.

The best aspect of her new home is that she and Paco are back under the same roof, albeit in separate wings. Paco can hop on his scooter and, using the turtle (3mph) rather than prohibited rabbit (5mph) setting, navigate the apartment building halls, Village Center, elevator, and Health Center halls, and be with Nana in just a few minutes. They have been married 64 and a half years, so the ease of being together is much appreciated.

We are trying to establish some new schedules and routines for Nana and Paco after so many changes in such a short time. If I am lucky, I will be able to work through my backlog and get back to writing and posting a bit more. I know better than to make promises, though. The last few years have taught me over and over to expect the unexpected and I think I may have finally learned that lesson.

One-Liner Wednesday: Bao Phi

“Sometimes not making sense and floating
are the same.”
from the poem “Adrift” by Bao Phi
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Join us for Linda’s One-Liner Wednesdays! Find out how here:  https://lindaghill.com/2018/09/26/one-liner-wednesday-clippity-clop/

“From the Boiler House” in Leaping Clear magazine

I’m pleased to share the link to “From the Boiler House” in Leaping Clear magazine. This videopoem was a collaboration of the Boiler House Poets during our residency at MASS MoCA in October 2016, edited and produced by one of our fantastically talented members Marilyn McCabe. You can hear the voices of the eight poets, each reading her own lines of the poem, with Marilyn’s videography and additional sound from Stephen Vitiello’s installation “All Those Vanished Engines.”

All the poets are happy that our work has found a home at Leaping Clear. Enjoy!

still around

Contrary to appearances, I have not (quite) fallen off the face of the earth.

Since I last posted, I have spent quite a bit of time trying to take care of people who are sick and being sick myself. Luckily, both of my sisters have visited to help take care of Nana and Paco while I was sick.

This week, I need to do a ton of catching up on paperwork and poetry. Before the end of the month, I need to prepare comments on four manuscripts and get my own together to distribute to our group. Fingers crossed that I can get my brain in gear to manage it.

Of course, all of this is happening against the backdrop of the continuing maelstrom of the news. If a television show, novel, or movie followed a plot from the current political news in the US, everyone would dismiss it as too far-fetched. Yet, here we are in a continuing succession of situations that are accurately called unprecedented.

It’s enough to make one’s head spin.

1000 followers!

Today, I reached 1000 followers!

And, yes, usual caveats of how followers does not equal readers, and some people are counted twice if they follow by email or on WordPress and also like or follow my Facebook page, etc.

This does give me an opportunity to thank all the visitors to Top of JC’s Mind, whether you visit once or often, follower or not, commenter or not.

For the record, 1,023 posts since the first on September 13, 2013. I know many bloggers would find almost five years to reach 1000 followers unconscionably slow/lazy/unacceptable, but I am more shocked to have made it this far. I am not one to check stats very often. Or someone who has been able to blog the “right way.” While I have had periods of diligently reading, commenting, and following other blogs both for edification and to garner more readers myself, as life has gotten more complicated, I have had to concentrate on posting myself and haven’t even been able to do that as consistently as I would like.

All this makes me that much more appreciative of my readers, especially the handful that have reached out and told me that it is all okay, that they believe I am worth waiting for. So, I will keep blogging, however imperfectly, with your encouragement.

With thanks,
Joanne

first-time finalist

In December, I submitted to the QuillsEdge Press chapbook contest and I am pleased to announce that I was named a finalist. Though I didn’t win publication of my chapbook, I am thrilled to have made it into the final round.

Moreover, QuillsEdge does a really cool thing! They choose a poem from each finalist and assemble a mini-anthology to accompany the winning chapbook. Given that few of my poems are available in print, I am excited to be included in an actual physical book.

While I assembled the chapbook for the QuillsEdge contest, I have submitted a slightly revised version to four other contests. Two rejections came in prior to the news from QuillsEdge. The remaining two are big contests which will draw lots of entries.

Yesterday, I received another rejection, but it was a very hopeful one. Although I did not make finalist – their top ten – I was in the top 1%. I so appreciated their encouragement, knowing that my chapbook was noticed in a field of 1000+ entries.

When things calm down a bit, I need to research more places to submit, but at least I know that there are editors – plural! – who think I am on the right track. A poet friend told me that a chapbook should be submitted to at least ten presses. Halfway there…

SoCS: initials

Sleeping has not been much of a thing this week, so this SoCS will be short.

Letter makes me think of how I refer to most family members on my blog with a letter. My spouse B, my daughters E and T, my son-in-law L. My granddaughter is extra-special because she gets three letters – ABC!

One of these days, I should update my About page to reflect all the changes.

It’s about 4,872 on my to-do list, so it will probably be a while…
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Linda’s prompt for Stream of Consciousness Saturday this week is “letter.”  Join us! Find out how here:   https://lindaghill.com/2018/05/04/the-friday-reminder-and-prompt-for-socs-may-5-18/

 

catching up – again

First, I would like to offer Passover and Easter blessings to those celebrating and sincere wishes for peace, love, and joy to all!

While regular readers might have thought I would have more time to post with daughter E and granddaughter ABC in the UK for an extended visit, and while I myself had hoped this might be possible, it hasn’t worked out that way, at least so far.

And, while I do try to write about the most salient things that are at the top of my mind, I am finding myself too overwhelmed to find words to express how I feel. Maybe, eventually, I’ll be able to. Perhaps in poetry. Perhaps years from now. Perhaps not.

In practical/physical terms, a large share of the last week has revolved around dealing with some changes in Nana’s condition. The edema from the congestive heart failure had accelerated but increasing the diuretics to address it lowered her already low blood pressure even more. We are trying to walk a very fine line to balance the two and, with her usual hospice nurse and aide unavailable for a few days, I have been trying to keep a closer eye on things and inform all the different private aides about the changes and new things we have to watch out for.

Amidst all this, it was wonderful to be able to celebrate Easter together. Daughter T and I attended Easter Vigil at church last night, which was a comforting blend of the familiar and the unique, with the once-a-year rituals of blessing the Paschal candle and welcoming new adult members to the church.

I had my pyx with me to carry the Eucharist to give to Nana today. T, Nana, and I prayed together before T gave communion to her grandmother.

We brought Easter dinner to share with Nana and Paco and Mary who is the Sunday daytime aide. My husband B made Swedish meatballs from a recipe that came to us through the Swedish landlady of my family when I was a toddler. For dessert, he made cherry pistachio biscotti and shortbreads, the latter from a recipe from his family. Not exactly traditional Easter foods, but delicious and special for us this year.

I wish there were a fast and easy way to get thoughts from my head into a post to send out to you all, but I’m afraid instead you will have to continue to put up with haphazard posts with various gaps that I may not even recognize in time to fill them. I hope to back up and write about a few things, like my second whirlwind trip to Northampton last month, as time and brainpower allow, but I know better than to make promises these days.