SoCS: High/low

Serendipity is a wonderful thing. When I saw Linda’s prompt for this week, I knew I had to take a few moments to post.

My life has been all about highs and lows lately.

There is this post, “High/low“.

And this post, “Low/high“.

And life is continuing in that vein. Baby ABC is thriving, as Nana becomes more tired and weaker. Nana does have some times that are higher energy than others, though, and it is a huge blessing for all of us to be able to visit often. Of course, ABC steals the show whenever she is there!

Everyone needs a high and spending time with a precious new life is one of the best highs there can be.

It makes the lows more bearable.
*****
Linda’s prompt for Stream of Consciousness Saturday this week is high/low. Join us! Find out how here:  https://lindaghill.com/2017/08/04/the-friday-reminder-and-prompt-for-socs-aug-517/ 

 

on being a violet

Since writing this post, I have been receiving lots of support, advice, and encouragement. This trend is continuing with today’s daily meditation from Richard Rohr.  A quote:

Thérèse of Lisieux (1873-1897), an unschooled French girl who died at age 24, intuited the path of descent and called it her “Little Way.” She said (and I summarize), “I looked at the flowers in God’s garden and I saw great big lilies and beautiful roses, and I knew I could never be one of those. But I looked over in the corner and there was a little violet that nobody would notice. That’s me. That’s what God wants me to be.” [1] Thérèse knew that all we can give to God is simply who we really are; or even better, “To do very little things with great love,” which was her motto. [2] That’s all God wants from any of us. It’s not the perfection of the gift that matters to God; it’s the desire to give the gift that pleases God.

I love violets…

US Healthcare Update

Overnight, the Senate defeated the Affordable Care Act repeal bills. It wasn’t pretty, with 49 Senators willing to take health insurance away from millions of Americans, but 51 Senators stood up for us.

Now, we need Congressmembers from across the spectrum to engage with each other to craft legislation that improves and expands the Affordable Care Act so that everyone has access to affordable, quality health care. There are already some bill drafts that do that available as a starting point.

Let’s go.

finding hope in impossible times

I had hoped that my next post would be about ABC’s baptism and the family visits around that, but I haven’t been able to get organized to write it.

There has been a lot going on and a lot swirling in my head, so maybe this post will help…

My parents raised me to always do my best. I was fortunate that my best generally also stood me in good stead in school and in life experiences, as I juggled my various roles and tried to do good in the world.

When my children were young, there was a book about being a “good enough” parent. I remember bristling at the concept, because I was geared to be a “best I could be” parent – and daughter, spouse, sister, friend, citizen, Catholic, volunteer, committee member, musician, person.

The current roster of roles now includes grandparent, blogger, and poet.

And it doesn’t feel as though my best, even when I am able to muster it, is good enough.

Not even close.

With my mom in hospice care and granddaughter ABC in residence, there has been massive re-prioritizing, which is necessary and good and understandable. Some things in which I was accustomed to being very active, such as public policy and social justice advocacy, have been sharply curtailed, unfortunately at a time when my country is coming apart at the seams. I am keeping some of my poetry and blogging activities going, but in a scattershot way as I have time/brainpower available.

(It is not especially helpful to have Facebook reminding me how many days it has been since I posted to the Top of JC’s Mind Facebook page.)

I think, though, that the root of the problem is that nothing I do, whether it is my best or not, can change the fact of the mounting losses. Illness and decline and death and people moving away and rejection and running out of time and all manner of losses, anticipated or unforeseen, will keep happening, no matter what I or any of us do, think, or philosophize over.

And, yes, I know circle of life and faith and recommendations to take care of myself notwithstanding, some days are just difficult to get through without tears.

Sometimes, those days with tears string together.

I am blessed, though, with people who bring me as much support and comfort as they can when I am struggling. B to talk with and give me hugs. The warmth of ABC snuggling in my arms. E and L to step in and make dinner when I can’t wrap my head around the concept of eating, much less shopping and cooking. My sisters with calls, notes, and visits. Friends who are sending thoughts and prayers and who understand my sporadic contact.

Earlier this week, I was looking for a bell for Nana to use to call her nighttime aide. Unsure where to look, I went to a dollar store near the pharmacy where I was picking up one of Nana’s prescriptions. I don’t often go to dollar stores, so it was a bit difficult to figure out where to look. I had started to check out some possible aisles when I heard the unmistakable sound of a bell. I followed it to find a girl carrying a little bell toward the checkout where her grandmother was waiting for her.  I waited until they had finished their transactions and asked where they had found it. (The grandmother told me that the bell said “Ring for Beer” on it and that they were getting it for a beer-loving dad.) The girl cheerfully led me through the store to the shelf in the gifts aisle that held the bells. I thanked her. I chose a bell that said “Ring for Service” on it, paid $1.08, and brought it up to my mom’s, who was surprised that I had been able to find a bell so quickly.

(Feel free to insert your favorite It’s a Wonderful Life, serendipity, answer to prayer, etc. thoughts here.)

For me in that moment, it was a reminder that hope and help can appear unexpectedly in the midst of sadness and confusion and uncertainty.

I just have to listen and allow myself to be led.

 

 

climate commenting

When I was on the online rapid response team for commenting on fracking issues in New York,  I learned over time not to revisit comments on articles, even though I knew I was getting inaccurate (and occasionally nasty) replies.

Due to changing circumstances, I haven’t been commenting on much of anything lately, but I did make a comment on a recent column by Thomas Reese, SJ, on a carbon tax. This has turned into a long stream of comments from a man who does not believe in mainstream climate science with my replies and a few others weighing in.

I have decided to stop replying at this point, but I’ve spent so much time on it that I thought I would share it here:
https://www.ncronline.org/blogs/faith-and-justice/carbon-tax-revisited

20 Questions

Regular visitors here at Top of JC’s Mind know that life has been challenging for me for a number of months and that I haven’t been keeping up with visiting and commenting on other WordPress blogs as I used to. I haven’t visited my blog’s email inbox in a long time, but there are a few non-WordPress blogs that send notification to my personal email, which is how I saw this post from Eclectic Evelyn. So, I am participating in answering a series of summertime questions to link to her blog (and to have a post that doesn’t involve a lot of brainpower, which is in short supply).

The questions and my answers:
1. Favorite animal? chickadees
2. Wine or beer? neither, although I very occasionally drink a hard cider
3. Socks on/off while sleeping? off
4. One piece or two piece bathing suit? one, although I haven’t had a bathing suit on in years
5. Cooking at home or eating out? usually cooking at home, although I love eating out
6. Pepsi or Coke? neither, as medical issues make sodas unwise for me
7. Regular or electric toothbrush? regular
8. Candy or chocolate? I love chocolate, but am not eating it these days (see #6), so candy
9. Coffee or tea? I never do coffee or black tea, but once in a great while will do an herbal tea (also related to #6)
10. Music or talk radio? talk, but only on public radio which involves no screaming or name-calling
11. Chick flick, action movie or documentary? documentary
12. Regular or mechanical pencil? mechanical, so that it doesn’t dull
13. Swimming or laying out? neither, as I prefer to be indoors
14. Dog or cat? dog, although we can’t have house animals due to allergies (and that I don’t need another being to take care of)
15. What do you drive? SUV, van or sedan? I drive a minivan and our fun, fully-electric Chevy Bolt
16. Early bird catches the worm or night owl? unfortunately, both, because, insomnia….
17. If you could eat only one food for the rest of your life what would it be? pasta
18. While sleeping: Phone in room by your side or phone in another room? cellphone in another room with landline in the bedroom in case of emergency
19. Singing in the shower, yes or no? I do sing, including 35 years with the Binghamton University Chorus, but I don’t sing in the shower
20. Oreo cookies, Eat whole? Take apart and/or dunk? I haven’t had an Oreo in years. As I kid, I used to take apart; not a fan of dunking.

So, there you have it! Please visit Evelyn. If you would like to answer the questions yourself, she has a handy list in her post ready to copy and paste.

catching up

I haven’t meant to keep you in the dark about life here. I just haven’t been able to wrap my head around posting much lately.

We have made a lot of progress with care for Nana. We now have her nurse/case manager from hospice on board and have been able to pass off prescription management to her. The number of medications needed has dropped because a number of them are no longer needed. For example, she doesn’t take a statin anymore because her cholesterol level is irrelevant at this point. It makes it easier to keep track of her meds, especially because hospice has taken over the ordering of refills.

Hospice is also handling medical equipment, such as oxygen and a wheelchair. They are good at solving problems, like providing cushions to protect her ears from the oxygen tubing. Simple things like that make a big difference.

It is nice to have just one number to call. If there are any questions, we just call hospice and they contact whichever doctor or service is needed. There is always someone on duty, even in the middle of the night, to address concerns or problems.

Meanwhile, ABC is already five weeks old! She had a checkup and is now almost two pounds (0.9 kg) heavier and 2 1/2 inches (6 cm) longer than when she was born. She has outgrown her preemie clothes and can wear regular newborn sizes. She is starting to focus on her surroundings. She is playing with some of her toys and is getting more tolerant of diaper changes, baths, and getting in and out of her carseat/carrier.

She is fascinated by her reflection in the mirror.

It is a blessing to have her here with E and L, watching them become a little family and assisting with baby care and general household tasks. Most advanced economies give parents paid time off for this life stage, although, sadly, the United States does not. We are grateful that E and L are able to have this important time to bond, especially because L will have to return to the UK in mid-August. We will miss watching his tender care of her, especially when he sits at the piano with her, cradling her in one arm and singing to her, accompanying himself with his free hand.

We are also blessed to be able to bring ABC to visit Nana and Paco. Unlike the earliest weeks, ABC now stays awake for part of the visit, so Nana and Paco get to see her deep blue eyes.

Tomorrow, L’s mom arrives from the UK and our younger daughter T arrives from Missouri. We are gathering for ABC’s baptism on Sunday.

ABC will wear a tiny white dress, first worn by my older sister, followed by me and our younger sister, twenty-some years later by my daughters, and twenty-some more years later by my granddaughter.

I retrieved it from the bottom of Nana’s cedar chest last week and we will return it there next week, in case another precious baby girl arrives in our family to wear it.

 

Open letter to Congressional Republicans

Dear Republican Members of Congress,

During the Independence Day recess, please reflect on the the Preamble to the Constitution.

How well do you think you are carrying out the tasks that “We the People” have set before you?

You are in Congress to represent all of us, from my newborn granddaughter to the 108-year-old neighbor of my parents.

You do not just represent other Republicans.

Or people who voted for you.

Or your party apparatus.

Or your political donors.

“…in Order to form a more perfect Union, establish Justice, insure domestic Tranquility, provide for the common defense, promote the general Welfare, and secure the Blessings of Liberty to ourselves and our Posterity…”

Other than the common defense, these goals are mired in either inaction or regression.

Exhibit A is your attempt to repeal and replace the Affordable Care Act which would increase the number of uninsured, decrease coverage, raise premiums and deductibles dramatically for older adults, force small rural hospitals and hospitals and nursing homes that treat large numbers of lower income folks into bankruptcy, and squeeze spending on Medicaid which pays for health care for those living in poverty, people with disabling conditions, and long-term care for the elderly and ill.

It does not “promote the general Welfare.”

It is opposed by a large majority of “We the People of the United States” whom you are supposed to be representing.

Even worse, you are trying to pass it under budgetary rules, making spending cuts that will hurt millions of Americans in order to give a large tax break to the wealthiest taxpayers. And, by the way, precluding the possibility of a filibuster in the Senate.

You have also used a totally anomalous process to create this legislation, forgoing the usual months of committee hearings, expert testimony, public discussion, revision, and amendments. And you seem to have forgotten that the Affordable Care Act followed that regular order process and that the final bill included Republican amendments and met the threshold of sixty votes in the Senate.

Your excuse that you have to adjust to being a governing majority party is disturbing. You have been in the majority in Congress for years, but instead of crafting legislation that would serve the American people, pass in both the House and Senate, and be signed by the President, you chose partisanship over actual governing, eschewing the tradition of other Congresses where the majority party was not the party of the president.

You have proved in the last few months that you can’t even govern with a president from your own party, albeit a president, who, as a candidate, campaigned against much of the Congressional Washington agenda, and who, as president, sends mixed signals of his priorities and opinions.

We the People deserve better.

During your Independence Day recess, I call on you to reflect on your duty to the American people and return to Washington ready to serve all the people in a way that really does “promote the general Welfare.”

Sincerely yours,
Joanne Corey
July 4, 2017

The Magician’s Curse – Now Available for Pre-Order!

Linda G. Hill, of the Life in Progress blog, through which she leads One-Liner Wednesdays, Stream of Consciousness Saturdays, Just Jot It January, and other general awesomeness, has a novel that is about to be published. The Magician’s Curse is now available for pre-order. Check it out!

Linda G. Hill's avatar

When Herman Anderson leaves home to make a better life for herself, she doesn’t expect to meet a tall, dark stranger with whom she’ll fall hopelessly in love.

Charming and mysterious, Stephen Dagmar is a stage magician seeking an assistant. The moment he sets eyes on Herman, he knows she’s the one. He brings her home to his Victorian mansion where they embark upon an extravagant romance. Yet a shadow hangs over their love. Will the curse on his family end Stephen and Herman’s happily ever after, before it really begins?

Amidst lace and leather, innocence and debauchery, The Magician’s Curse begins the Gothic tale of The Great Dagmaru. Magic and romance await.

Official release date: June 27, 2017! Pre-order your Kindle copy today here: https://www.amazon.com/dp/B0721ZH2KN
Available soon on Kobo, and on June 27th in paperback on Amazon.

An excerpt from Chapter 2:
The moment Stephen stepped out the door…

View original post 651 more words

SoCS: baby signs

Having a baby in the house again is a revelation.

The last time I was around a newborn extensively was twenty-seven years ago when T was born.

E, L, B and I are all learning to read ABC’s signs.

It seems that every cry, squeak, whimper, wiggle, look, stretch and facial expression is trying to tell us something, if only we could discern its meaning correctly.

So far, ABC is doing well, despite her petite size. She had a bit of jaundice, but we were able to do light therapy at home. Her bilirubin count went down so well that we were able to return the unit yesterday.

It is a joy watching our daughter and son-in-law be such wonderful parents in these early days. It is a privilege to be a first-time grandparent with the baby living in our home for her first few months.

And it warms all of our hearts to see Nana and Paco with the baby, their first great-grandchild. We wish that B’s parents were still alive to meet her, too.
*****
Linda’s prompt for Stream of Consciousness Saturday this week is “sign.” Join us! Find out how here:  https://lindaghill.com/2017/06/16/the-friday-reminder-and-prompt-for-socs-june-1717/