Progress

Yesterday, Nana had her evaluation at Columbia’s Structural Heart & Valve Center.

We had arrived in NYC the day before, expecting a three to four hour evaluation beginning at 9:00 AM. What happened was a marathon of testing and consultation that stretched from our arrival at 7:15 AM to 6:00 PM when we finally finished.

All the effort to go to New York City was definitely worth it. The advanced testing they were able to do determined that only the aortic valve needs to be replaced at this time, which can be done using a heart catheter technique, called Transcatheter Aortic Valve Replacement (TAVR). They were able to schedule the procedure for mid-October.

We were so impressed with all the medical professional and support staff. They were caring and compassionate, as well as being knowledgeable and experienced. Because we came from a distance, they did not only the diagnostic testing they needed to do but also the pre-admission testing so that there will only have to be two trips down to New York.

Tomorrow, I leave for a long-planned reunion residency of the Boiler House Poets at MASS MoCA. I feel much better going knowing that we have a positive plan in place for my mom. As I did for the original residency last November, I hope to blog every day from North Adams, so stay tuned.

 


	

Third anniverary

WordPress helpfully reminded me that today is the third anniversary of Top of JC’s Mind.

I want to take this opportunity to thank my 783 followers and all those who have visited, read, and/or commented over these past three years.

I have learned so much from blogging and plan to continue.

As my regular visitors know, 2016 has been a challenging year for me personally. I have had to cut back almost totally on my own reading and commenting and have posted less frequently than I would have liked.

Even with that, people have taken the time to read and comment and express their support, prayers, and well wishes as my family continues to navigate multiple family health issues and the mourning process after the death of my mother-in-law, known here on the blog as Grandma.

I have no timeline to get back to a more regular blogging practice. With so many variables out of my control, I have learned not to make promises.

But, please, stay tuned.

SoCS: political views

During the primaries, I supported Senator Bernie Sanders, as his views aligned most closely with my own. Although he didn’t win the nomination, many of his views are reflected in the Democratic party platform. I now support Secretary Hillary Clinton for the presidency.

Due to family health issues, I haven’t written a political post since before the conventions, so I am going to use this post to catch up a bit.

In brief:  The Republican convention was dark and scary and portrayed the United States in a way that I couldn’t recognize. The Democratic convention was much more hopeful and positive with some amazing speeches. It was also historic as the United States finally has a woman nominated by a major party  for the presidency, 96 years after women gained the right to vote nationally.

I had thought – or maybe it was more hope than thought – that the campaign in the general election phase would be more focused on policy and debate. Secretary Clinton does have policy papers on her website and does regularly speak on policy, but a lot of the press coverage is swallowed up by more subjective things, such as likability – and whatever nonsense has just been propelled from the mouth of Donald Trump.

I am very disheartened by the hatefulness and the bullying and the crudeness of Donald Trump, which is too often echoed by his staff and supporters. I am also disturbed that facts don’t seem to matter. Although the press is finally being more consistent in pointing out when Trump’s rhetoric doesn’t line up with fact, there are now millions of people who believe the lies and cannot be convinced by factual evidence.

I do find some comfort in the polls which show that in state-by-state match-ups, Secretary Clinton is leading. I hope that the upcoming one-on-one debates will clarify for voters that only Clinton has serious plans to move the country forward and deal with the very real problems that our country and the world face.

It’s odd how stream of consciousness writing takes over. Linda’s prompt this week is “view” and I wasn’t intending to participate, but as I wrote the first paragraph of this post, the word “views” appeared and I decided I would run with stream of consciousness rather than a planned, edited post.

Two birds with one stone…
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Join us for Stream of Consciousness Saturday! Find out how here: https://lindaghill.com/2016/09/09/the-friday-reminder-and-prompt-for-socs-sept-1016/.

 

re-jiggering part 3 – or 547?

One of the running themes of this blog – and my life – has been my constant need to adjust my plans. The last post that I titled re-jiggering was actually my second by that name, so this is part 3 in terms of blog titles, but some much larger number in terms of reality.

As my more frequent visitors know, we have been dealing with health issues with my mom, known here as Nana. On August 31st, she finally had the long-awaited diagnostic heart catheterization, which confirmed that she has two heart valves that are severely compromised. They need to be replaced using a technique called TAVR, which involves working through the blood vessels to get to the heart rather than cutting through the chest as in open heart surgery. Our local hospital is not equipped to replace multiple valves in this way, so we are in the process of referral to Columbia in New York City.

One of my sisters lives in NYC and the other has already offered to go the City to help Nana and Paco, so the current plan is that I will stay here to hold down the fort at their apartment in a nearby senior living community.

Timeline to be determined, but we are hoping it will be a matter of weeks. I hope that readers will send out a prayer, healing thoughts, and/or positive energy for Nana.

In the post I linked above, the other re-jiggering that was going on had to do with my writing. True to form, I wound up re-jiggering that, too.

I had expected to spend time working on my poetry collection, but, instead, diverted to a secret poetry mission. Excitement! Mystery! Or, at the very least, poetic license. All will be revealed sometime in the last third of September. Stay tuned!

Meanwhile, I have revised my plans for the Boiler House Poets reunion residency at MASS MoCA, which begins September 30. I had hoped to have a working manuscript of my collection assembled by then, but it isn’t going to happen. My new plan is to use the residency to get feedback and do revisions on some of the poems that have not yet been workshopped, write some poems that I have been planning, and be on the lookout for new inspirations, including the new works that will be on display at MoCA. In those periods when I am too exhausted/tired/frazzled to be creative, I can do further work on ordering the collection and drafting a forward and notes. My local poets feel that some of the ekphrastic poems, which is the fancy term for poems that are about a work of art, could benefit from a note about the the art piece on which they are based.

Meanwhile, in Tibet…

Sorry, a bit of Boiler House inside baseball there…

Meanwhile, I will transcribe some poems that are still only scrawled in various journals, notepads, and pamphlets into my google docs and buy a new Chromebook, as my current one is getting a bit unreliable and I need it working well for the residency. I also hope to get a few half completed blog posts out to the world. (I am not even bothering to project a timeframe to get back to my reading/commenting routine. Circumstances have pushed that even further into the realm of nebulous “someday”.)

And, of course, fulfilling my secret poetry mission…

 

 

 

SoCS: three dates

My mother – known as Nana here at Top of JC’s Mind – needs a diagnostic heart catheterization as follow-up to this fainting episode and likely prelude to heart valve replacement surgery.

The date of the heart cath was supposed to be June 28.

The week before, she had to have blood work done and the cardiologist didn’t like some of the numbers, so he cancelled it.

After weeks of doctor visits and tests, she was cleared to proceed.

The next date was August 17.

Unfortunately, the day she had to have the pre-procedure blood draw, she developed shortness of breath and wound up in the hospital overnight with a new diagnosis of congestive heart failure. She was discharged from the hospital and sent home to rest, waiting for the planned procedure on the 17th.

Except that the doctor’s office, looking at the pre-hospital rather than post-hospital blood work, cancelled it again.

I was very, very, very, very, very upset. After consulting with her primary care, the cardiologist promised to fit her in next week.

And then proceeded to give us the date of August 31st.

Which is not next week.

I’m still pretty upset, especially because the delay is what I feel got her into the diagnostic category of heart failure.

But, deep breath, and all that…

Fortunately, she is doing quite well now, although she has to take it very easy.

We are waiting for August 31st.

Third time’s the charm.

At least it better be.
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Linda’s prompt for Stream of Consciousness Saturday this week is “date.” Join us! Find out how here:  https://lindaghill.com/2016/08/19/the-friday-reminder-and-prompt-for-socs-aug-2016/

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Poem for the Boiler House Poets!

I am so excited to share this blog post from my poet-friend Gail Dimaggio!

Gail is one of the Boiler House Poets, the inaugural group of poets who gathered at MASS MoCA for a poetry residency in collaboration with Tupelo Press. It was my privilege to be part of this intrepid group of nine poets who shared an amazing, complex, rich, and creative week together.

This month, Gail is participating in the 30/30 fundraiser for Tupelo Press. She is among a group of poets writing and posting a new poem every day. Poems and sponsorship information is available here:  https://tupelopress.wordpress.com/3030-project/.

Today is day 11 and Gail has posted a poem that I sponsored, asking her to write about our experience together. She wrote an amazing poem using the technique of found poetry, in which the poet uses words from another source to create a new work. Here, Gail uses fragments of poems from the Boiler House Poets’ video in her poem “Poets Gather in the Boiler House to Read Their Work”.

Most of the Boiler House Poets will be gathering this fall for a reunion at MASS MoCA. Gail and I will both be there.

I can hardly wait!

One-Liner Wednesday: question

Why must there be such a fine line between bravery and futility?

This angsty bit of self-commentary is offered as part of Linda’s One-Liner Wednesday. Join us! Find out how here:  https://lindaghill.com/2016/08/10/one-liner-wednesday-an-earworm-for-you/.

SoCS: What’s Next?

Given how things have been going lately – well, honestly, for years now – it is tempting fate to say I have any clue of what’s happening next.

A few things are relatively safe to say.

As in, today we will pick up my sister and niece at the bus station and meet up with Nana and Paco and my other sister and her husband for dinner. The four of them will be visiting for the weekend, which is a treat because we three sisters are only together a couple of times a year.

Early in the morning on Wednesday, daughter T will be heading to the airport to fly to Honolulu to visit daughter E and her spouse L for three weeks. August is turning into sister-togetherness month!

Other things that I think are coming up next are a bit murkier.

On August 17, we think Nana will be have a procedure as part of the continuing saga of the errant CPR/fainting spell.  While we hope it will go forward, it’s been delayed and re-scheduled once already, so fingers crossed. Results from this test will help us move on to what’s next for her treatment.

As for me, part of what’s next is working on my poetry collection. I did a revision of a poem this morning. Yay, me! If my desktop computer and printer co-operate – not a given at this point – I hope to print hard copies of poems to better arrange and re-arrange and re-arrange the poems. I may have pages to represent poems that I plan to write but that aren’t yet written. Then, I can look for holes so that I know how many more poems I need to write.

Meanwhile, I will continue to workshop poems in the collection. Eventually, I’ll have to make a stab at a table of contents and probably a forward and some notes here and there.

And maybe put a call out for some readers…

Oh, and try to have it finished before the Boiler House Poets reunion at MASS MoCA which starts September 30.

Are you laughing yet?

I have my work cut out for me, but, as always, what’s next is not totally in my control.
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Linda’s prompt for Stream of Consciousness Saturday is to base the post on a word that contains “ex”. Come join us! Find out how here:  https://lindaghill.com/2016/08/05/the-friday-reminder-and-prompt-for-socs-aug-616/

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One-Liner Wednesday: Love

“Our challenge today is to trust the power of love at the heart of life, to let ourselves be seized by love, to create and invent ways for love to evolve into a global wholeness of unity, compassion, justice, and peacemaking.”
~~~ Ilia Delio

Join us for Linda’s One-Liner Wednesday! Find out how here:  https://lindaghill.com/2016/08/03/one-liner-wednesday-it-was-the-beginning-of-the-end/

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Guest viewpoint on gun control

A guest viewpoint that I wrote has appeared in the Sunday edition of the Binghamton Press & Sun-Bulletin. It is available here: http://www.pressconnects.com/story/opinion/2016/07/29/guest-viewpoint-gun-control/87703872/.  I will also copy the text at the end of this post because there is a paywall after a certain number of free articles per month.

I did not write the headline. I am not going to read comments, which, thankfully appear on a separate page on the web. I am sure some of them will be nasty; there are even a few people from my facktivist days who make it a point not agree with me about anything, including if I write that grass is green.

Regular readers here at Top of JC’s Mind will not be surprised at the content.
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Congress Should Act on Gun Control

On June 15, Sen. Christopher Murphy, of Connecticut, took to the Senate floor to lead a 15-hour marathon talk on the need for the Senate to vote on gun control measures.

While some amendment votes were held the following week, none passed; currently under consideration is a bipartisan bill, authored by Sen. Susan Collins, of Maine, on preventing those on the no-fly and selectees lists from buying guns.

On June 22, the Democrats of the House of Representatives, led by Reps. Katherine Clark, of Massachusetts, and John Lewis, of Georgia, held a sit-in with the goal of bringing gun violence prevention legislation to a vote in the House. During the 25-hour sit-in, many members told stories from their districts of those affected by gun violence; some shared personal stories, as well. Many held signs with the names of those killed by guns as they gathered on the House floor.

Speaker Paul Ryan adjourned the House early for the Independence Day break rather than hold a vote.

Many polls show that the vast majority of Americans — and of American gunowners — favor legislation to keep potential terrorists, domestic abusers, those whose mental illness predisposes them to violence, and criminals from obtaining guns. Many also oppose selling military-style weapons and ammunition clips to the public. Yet, Congress has not acted.

Some say that enacting any gun control measure violates the Second Amendment, but it does not. The Second Amendment was enacted at a time when there was no standing army; it clearly labels the context by beginning with “A well-regulated militia … .” The courts recognize this.

The Supreme Court recently upheld a federal law keeping domestic abusers from owning firearms. The ban against owning fully automatic weapons has stood for decades. No one expects to have a private anti-aircraft battery or missile silo in the backyard.

None of our freedoms is absolute. The right to free speech and freedom of the press are not license to libel or slander. The free exercise of religion does not permit human sacrifice or physical assault.

When the House reconvenes, the Democrats plan to continue their efforts to pass gun control measures. I call on my representative, Richard Hanna, to speak on the floor in remembrance of the victims of gun violence in our district, especially those who died or were injured in the American Civic Association shooting. Perhaps the fact that he is retiring will give him courage to break with the Republican leadership and vote to protect the safety of the public in accord with the will of the people, acting as a final legacy to his career as a public servant.

Our most fundamental right is the right to life. No perceived right to bear arms should trump another person’s right to live.

Joanne Corey, of Vestal, is a member of the Catholic Peace Community of the Southern Tier.

Update: While on the perssconnects website there is a photo of guns accompanying my piece, in the print edition there is a photo of Paul Ryan waving the Constitution at a press conference on why the Republicans oppose voting on gun measures. I would not have chosen either of those. A photo of the House sit-in or of Rep. Lewis would have been more appropriate to the content of the piece.