Since my hEDS diagnosis last week, I’ve been trying to arrange for a number of tests that my specialist ordered.
Some of the tests I was able to do on a walk-in basis and those went smoothly. I’ve been having trouble, though, with orders that had to be faxed. I’ve only been able to schedule one of the three tests, despite repeated phone calls and a few written messages.
It’s only been a week and a half, but I’m feeling really frustrated.
After the months and months of go-rounds of various specialists, waiting to see them, and waiting for the tests they ordered, I’m impatient for more information, in hope that we might actually be able to have some options to deal with my most troubling symptoms.
Deep breath.
More waiting, more phone calls.
What’s a few more days or weeks when we are dealing with something I’ve had my whole life.
PS: After I posted, I realized that today’s prompt for #JusJoJan was “impatience” so, yeah, guilty of that, too.
Join us for Linda’s Just Jot It January! Find out more here: https://lindaghill.com/2026/01/22/daily-prompt-jusjojan-the-22nd-2026/
Share this:
Joanne Corey 
Hang in there! It seems like you’re making progress even if it’s slow.
LikeLiked by 1 person
Of course, you are right, JoAnna. I think I’m trying to make up for lost time after so many months of not being heard or taken seriously by many of my doctors.
LikeLike
I hope you’re feeling at least a little better and have more good days ahead.
LikeLiked by 1 person
Couple of important appointments coming up next week and some changes to my PT may help as we wait for the testing.
LikeLiked by 1 person