Blog – Top of JC’s Mind

Do hospitals run two-for-the-price-of-one specials?

This was supposed to be the schedule for Thursday.
5 AM: Get up.
5:30: Arrive at my parents’ apartment to get us to the ambulatory surgery unit of the hospital.
6:00: Wait in the waiting room until surgery because only one person is allowed to be with the patient in the unit.
8:00: Dad has laparoscopic hernia repair surgery while Mom and I grab breakfast at the hospital cafeteria.
9:00: Surgery complete. Talk to doctor. Mom waits for him to be brought back to his cubby in the ambulatory surgery unit while I drive to church for
10:00: Millie’s funeral, where my daughter Trinity is singing in the choir. After the funeral, attend the funeral luncheon in the church hall.
1 PM: Check in with my parents by phone to see if there is a release time set for Dad yet. Drop off my daughter at home and get to the hospital to bring my parents home and get them settled, perhaps in time to attend
4:30: Poetry workshop.
6:00: Dinner with my daughter, followed by rest, attending to email, phone call with my husband who is traveling for business this week, television, etc.

We followed the schedule until 7:35 AM.

Dad was all ready to be brought down to the operating room and Mom came to get me from the ambulatory unit waiting room so we could re-locate to the OR waiting room. As we neared Dad’s cubby, Mom got really dizzy, grabbing onto a spare gurney in the hallway for support. We were just outside Dad’s cubby, so we navigated to a recliner next to his gurney. I got her a sip of water from the bottle she had with her, hoping she was just a bit dehydrated, but it didn’t help. She started to zone in and out of responding to my and Dad’s questions and we were becoming alarmed. Just then, a transport person arrives to bring Dad to surgery and he helps me to get nurses there to help Mom.

Suddenly, we have at least half a dozen people in the tiny cubby, so I have to step out into the hall. I hear someone say her pulse is twenty. They put her on oxygen, which seems to help her pulse a bit. Her skin is clammy. She is continuing to zone in and out of awareness. Sometimes, she could answer a question from the medical team, but more often my father would. Yes, she had eaten some breakfast at 5 so she could take her meds. From the hall, I chime in to let people know that I am their daughter, that Mom has a history of TIA. The staff calls for a team to come up from emergency to bring her down for evaluation, as it is clear something is really wrong. Snatches of prayer mixed in with the jumble of thoughts in my head.

Meanwhile, the OR is waiting for my Dad. It has only been about five minutes, I think; my perception of time is distorted by so much happening at once. They ask Dad if he wants to postpone surgery, but I tell him to go, that I would take care of Mom. On a practical level, we had to get Dad’s gurney out of the cubby in order to get the transport gurney in to take Mom to the emergency room and I knew that with Dad under anesthesia in the OR, at least he would not be worrying about Mom for a little while. There really wasn’t anything he could do; we both needed to let the professionals do what they needed to do.

They lift Mom onto the gurney and attach her line to a portable oxygen tank, as they had initially attached it to the central wall unit. They rush her down a patient elevator to the ER – one of the few things my mom remembers between the initial dizziness and being in the ER was that she told them it was a rough ride – and the nursing supervisor takes me down by another route. When I arrive outside the curtained area where they are working on her, Mom is able to answer some questions on her own, but I am able to help with some of the them. Frustratingly, a new computer system had gone in to the hospital in June, so they weren’t able to bring up her information easily. I had to give addresses and contact numbers. I have my mom’s pocketbook in which she carries a complete list of her medications, which was a huge help. Meanwhile, the ER team is getting monitors attached and I hear them tell my mom within a few minutes that she is having a heart attack. I also hear her surprised reaction. She isn’t having chest pain, but does have a pain in her back.

At this point, they had IVs started and they let me go back to be beside Mom. They give her baby aspirin to chew and administer heparin and plavix. The pain in her back goes away. They tell us there are clots or blockages that need to be cleared in the cath lab, that the cardiologist on emergency call is getting ready to do that, that the aspirin and other blood thinners have relaxed the vessels enough to help the blood circulate better so that the back pain went away, that we are lucky she was already in the hospital when she had the heart attack so that treatment was started very quickly because that tends to lead to better outcomes, although not guarantees. Mom tells me I should still go to the funeral; she is worried about my sisters, who are together on a Florida vacation, and Dad. I tell her that I will handle everything, that she needs to concentrate on herself right now.

She is wheeled up to the heart catheterization lab – on a much cushier and more shock-absorbent ER gurney – and a nurse brings me first to the OR waiting room to tell them what has happened and then to the cardiac waiting room. Although it feels like a long time has passed, it’s not yet 8:30. My dad’s in the OR, my mom’s in the cath lab, and I’m alone. I call my husband, Brent. I guess the first words out of my mouth were, “I need you to come home.” Because I did. I tell him what is going on and that I would call back as I know more. He needs a couple of hours before he can leave anyway. As I wait, I am making lists in my head of how and when to tell people. I knew I couldn’t tell my daughter until after the funeral. I was hoping she wouldn’t get too worried when she realized I wasn’t in the congregation; the choir is in the front of the church, so she would be able to see that I hadn’t arrived. I post a vague Facebook message asking for prayers/good thoughts for my parents. I couldn’t be specific because I didn’t want our older daughter, six hours earlier in time zones so it was still the middle of the night, to see a post that her grandmother had had a heart attack first thing when she woke up in the morning. I needed to make sure that my sisters didn’t find out via social media, too.  And I needed to be able to give good news about what I was praying would be successful treatment. As much as I wanted company in the frightened, shocked place where I was, I didn’t want to subject anyone else to it, although I had already, by necessity, dragged my husband into it. And I wasn’t sure if I would need to be the one to tell my father after he was out of recovery. And, more than anything, I needed to have two successful outcomes to report.

Dr. T, my dad’s surgeon comes in at ten of nine. Dad’s surgery had gone well and he is in recovery. Dr. T knew what was going on with my mom and had decided to admit him for a day or two, because he is 89 and because it would be easier for us. Obviously, the plan for him to go home with my mom to look after him was not going to happen. He had tried to see if he could put them in the same hospital room, but my mom would have to go to the cardiac unit, which only has private rooms. Dr. T says that it was very lucky my mom had already been in the hospital when the heart attack happened. I call my husband with the update and resume alternately pacing or sitting, staring into space. I had reading material and my iPad but couldn’t concentrate enough to use them. The CBS morning news on the waiting area television finishes and a repeat of Queen Latifah starts. She is congratulating Boston on the successful marathon. Patriots’ Day in Massachusetts was originally April 19th. My parents’ wedding anniversary. Sixty years. More prayers.

At about 9:25, Dr. K., the on-call cardiologist comes out. Mom had had two blocked arteries that they had opened through angioplasty and that were now being held open with stents. Another report of how lucky she was to have already been in the hospital. I need to wait there and they will come get me when my mom is ready to be moved to her room. I call my husband again with the news. We are so thankful and relieved. Our conversation is brief; he needs to finish getting ready to leave. I am alone again, but feeling an intense need to talk to someone. Someone with whom I am used to sharing personal and spiritual issues. I want to call my friend and spiritual companion Yvonne, but I can’t remember her phone number, which is stored in the cell phone my husband has with him. I use my iPad – and the hospital’s free wifi – to search for her home phone and call. She is home and we speak for about ten minutes, which calms me down a bit, helpful as I have gone from the paralysis of numb anxiety into a phase where I am feeling jittery.

While I was speaking to Yvonne, my sister Kathy had called the cell phone that my husband had, because it is the one I usually carry. She was looking for news on my dad, as she had expected a call by then. He had to tell the story to her. It was a blessing that she hadn’t called until Mom was out of the cath lab, so that he could tell her that she and Dad were both okay. I missed Brent’s call while talking to Yvonne, so I call him, find out that he has spoken to Kathy and call her, using my mom and dad’s cell, which is in my mom’s pocketbook. We only speak briefly because a nurse comes to take me back to my mom, who is being moved to the cardiac care unit.

The nurse tells me that my mom and dad have met up in the hallway outside of the recovery area. They got to talk and hold hands for a moment. They got to see that they are both all right. My dad says not to make him laugh because laughing makes his belly hurt, but just saying it makes him chuckle.  The nurses all think that they are an amazing couple. I know that they are. Later, my mom, who was only under sedation in the cath lab, will remember this hallway encounter. My dad, who had been under anesthesia, loses the memory from this point in his recovery process.

I ride up in the elevator with my mom and wait in another waiting room while they get her settled in her room and attached to all the monitors. When a nurse comes to get me, I first have to stop at the desk for a phone call. Another nurse is calling to tell me my father’s room number. She had also been witness to their hallway meeting. My parents are adorable and we were so lucky that my mom was already in the hospital when she was stricken. I thank her and tell her that I know how lucky I am to have them.

Other than the fact that my mom is not allowed to move her right leg where the catheter had been threaded from her groin up to her heart and that she needs to keep her head back on the pillow and still, she is amazingly chipper. We talk about everything that has gone on and I let her know of the few people that know what has happened. I need to make more calls and I need to get to church after the funeral to tell Trinity. Mom says that she will make phone calls so I can make a visit to Dad’s room and then head to church, where I can tell Trinity and we can attend the luncheon.

Dad is resting in his room, still a bit groggy from the anesthesia. We talk about how lucky we are that Mom is okay. He says they are the talk of the hospital. They have promised to take him down in a wheelchair to visit her a bit later in the afternoon, after they have both had a chance to rest. I let him rest and head out to the church. It’s a little after 11:00.

As I near the church, I see the funeral procession on its way to the cemetery. I go into the church hall and ask the choir member who had driven Trinity to church for choir warmup before the funeral if she knows where Trinity is. She is still in church. She has a worried look on her face and I tell her that Nana and Paco are both doing fine. Then, I deliver the first of several shortened renditions of the story. Right before Paco was brought down to surgery, Nana had a heart attack. They took her to the ER and then the cath lab and put in two stents. Paco’s surgery went well. Now they are both in the hospital for a couple of days, but everything is fine. We are very lucky her heart attack took place at the hospital. Trinity gives me a long hug, which I definitely needed.

We only told a few people at the funeral luncheon what had happened. Several people that we had known for a long time. Three priests whom we asked for prayers. Most importantly, Millie’s daughter Nancy, our good friend and Trinity’s godmother. I told her I was sorry to have missed the funeral, but, of course, she understood, reminding me that her father, who was sitting close by would not have survived a cerebral hemorrhage years before were it not for the fact that it had happened while he was already in the hospital.

In  a way, even though I was not physically present at the funeral, I was there in a spiritual sense.  I had written the universal prayer that closes the liturgy of the word before the liturgy of the Eucharist begins. Nancy, all three priests, and a friend who had also participated in reading the petitions thanked me for the words I had written. I was heartened to know that my words enabled me to have a presence in Millie’s funeral in my absence.

Trinity and I leave the luncheon a bit after 1:00, which meant that our older daughter, Beth, would be up and about in Honolulu. While I drove to the hospital, Trinity calls Beth to fill her in. We go to Nana’s room to visit and to Paco’s room. Brent arrives and we alternate rooms for visiting. My dad’s room in particular can’t easily accommodate three visitors at once.

The next two days are filled with visits back and forth to the hospital. My dad gets a couple of visits to my mom’s room, which are good for both of them. They are both discharged on Saturday, a process which winds up taking over five hours.

Last night, they got to sleep in their own beds. They need to take it easy for a few days. Mom has some new meds added to her daily regimen. Follow-up visits need to be scheduled. Dad’s incisions and muscles will heal. Due to the speed of re-opening the arteries, Mom has no damage to her heart. They have very few restrictions and will be able to ease back into their social and exercise routine over the coming days/weeks. We are so thankful that they are doing so well and are very grateful for the care they received.

But my dad still wants to know, as he kept joking, if the hospital gives discounts. He thinks two for the price of one should apply.

 

 

SoCS – here/hear

I haven’t been here – that means at home – much the last couple of days because both of my parents have been in the hospital. I need to write a post about it that is not stream of consciousness. When I do, I will put a link to it here.

This is part of Linda’s Stream of Consciousness Saturday with the prompt here/hear. http://lindaghill.wordpress.com/2014/08/01/the-friday-reminder-and-prompt-for-socs-august-214/

The Friday Reminder and Prompt for SoCS August 2/14

I hope that many people will join in Linda’s Stream of Consciousness Saturday. Everything you need to know to participate is in this post which I am re-blogging. It is super fun!

I may not get to participate this week. Both of my parents are in the hospital and I need to put together a post on that, which, believe me, no one would want to read in a stream of consciousness style. Editing will definitely be required.

Linda G. Hill's avatar

One of the biggest challenges in coming up with the Friday prompt for Stream of Consciousness Saturday is finding something everyone can have in common. And yet there are so many things that transcend borders, cultures, abilities and environment that sometimes it’s hard to choose just one. Today I had so many ideas coming at me that I’ve written some down for future prompts. Here is the one I picked for tomorrow’s post:

Your Friday prompt for Saturday’s Stream of Consciousness post is “hear/here.” Be creative!

After you’ve written your Saturday post tomorrow, please link it here at the prompt page in the comments so others can find it and see your awesome Stream of Consciousness post. Don’t hesitate to join in!

Here are the rules:

1. Your post must be stream of consciousness writing, meaning no editing, (typos can be fixed) and minimal planning on what you’re going to…

View original post 281 more words

Why I will always love Harry Potter

Happy 34th Birthday, Harry Potter! Yes, I do know that July 31st is Harry’s birthday. (It’s also Joanne Rowling’s birthday, although she is a bit older than Harry.) Harry’s birthday is even marked on my calendar because he – or, rather, the books that J.K. Rowling created about him – has been very important to my family.

I bought the first two Harry Potter books on the recommendation of a friend who worked in the children’s department of the bookstore when the books were just starting to be known in my region of the US in 1999. They were an end of school year gift for my younger daughter, who was then in elementary school. She was having trouble getting into the first book, the beginning of which was too reminiscent of Raold Dahl, who was not a favorite of hers – or mine, so my husband began reading the first book aloud to her and soon the whole family was hooked.

Thus began our family tradition of reading Harry Potter books aloud. We read all of the subsequent books as a family, the four of us taking turns reading subsequent chapters. We would receive first day deliveries or go to midnight launch parties as the new books were released. Because release dates of the later books in the series were summer Saturdays, we would embark on marathon weekend reading days, getting through the bulk of the long books over Saturday and Sunday, with the exciting conclusions reserved for after my husband’s return from work on Monday. (We hid the book on a high shelf in our bedroom so no one would read ahead!)

The book launches became important events for us and the later books coincided with times when our family needed the strength of our mutual support. Order of the Phoenix (Book 5) appeared when our older daughter had just been diagnosed with an intractable migraine, after missing most of a semester of high school because she was ill and no one could figure out what was happening. Half-Blood Prince (Book 6) appeared during the three-week span between the death of my father-in-law and his memorial service. The declining health and death of Dumbledore acted as counterpoint to our own family story, as Grandpa had been a long-serving and much-loved school principal with striking white hair. When Deathly Hallows (Book 7) was released, our older daughter had just been diagnosed with fibromyalgia/chronic fatigue syndrome, giving a name to the puzzling assortment of ailments that she had endured for years, including the aforementioned intractable migraine. She was about to start her senior year in college with a semester away in Vienna. The family time we spent reading together was a precious time before she set off into the unknown.

This was especially fitting because the Harry Potter fandom had gifted her with some of her best friends who had sustained her through some of her worst times. As a precocious literary-minded secondary school student, she had joined some of the adult fandom online. She had taught herself some web design to start her own Harry Potter themed website, including an advice column in which she and Snape answered questions about both muggle and wizarding concerns. She wrote some fan fiction and engaged in literary analysis in online groups. When she became ill with what turned out to be the 8-month migraine and couldn’t leave the house, her online friends became her main social outlet outside of our family. It helped that several of her best online HP friends were in different time zones, as she often could not sleep at night and there would nearly always be someone online with whom she could chat, whatever the hour.

These women are still some of her closest friends. She has now met several of them in person. Two came to her senior voice recital in her last semester of college. She met more at a Harry Potter convention and has even spent time travelling and visiting with them in Japan.

In a way, they are even responsible for her current master’s thesis project. Some of her Harry Potter friends were also fans of J-pop (Japanese popular music), in which our daughter also became interested. Her decision to pursue a master’s in ethnomusicology and to study at University of Hawai’i – Manoa were related to this interest. U of HI is known as a center of excellence for Asian studies.

The life of our family was made richer by Harry Potter and Joanne Rowling. Happy Birthday to them both and eternal thanks for everything you have given to our family!

One-Liner Wednesday: Saint Francis quote

“Remember when you leave this earth, you can take with you nothing that you have received, only what you have been given:  a heart enriched by honest service, love, sacrifice, and courage.”
– Saint Francis of Assisi

Join in with Linda’s One-liner Wednesday:  http://lindaghill.wordpress.com/2014/07/30/one-liner-wednesday-april-13-2004/

rejection letters

I happened upon this 2010 post from the blog of Shawn L. Bird, which I have been following for several months. I love how time has made her able to accept rejection letters with such equanimity.

I chose not to send my music compositions to publishers as a young adult because I felt I would be too discouraged by rejection to keep on trying. Now, in my fifties, changing to writing essays and poetry instead of music, I am able to send things out and get rejection letters without letting it stop me from writing and submitting again.

I admit, though, it would nice to get an acceptance every once in a while.

Maybe next time…

Shawn L. Bird's avatarShawn L. Bird

In the May 20th blog entry, “Why I Love My Job” I told you that in grade 5 I switched my career goal from writing to teaching.  I didn’t tell you why.

In grade 3 and 4, I was a writing star.  I shared stories with my grade 3 class during show and tell, and I know I kept them on the edge of their seats with my brilliant prose.  In grade 4 I won a Mother’s Day contest with a poem I’d written.  My star was on fire.  I had nothing but confidence in my skills as a writer.

In grade 5, I shared a poem I’d written with my school librarian, Mrs. Alex Harbottle , and she suggested I send it in to a magazine.  She recommended a children’s poetry journal called Jabberwocky.  I sent off my poem.  In due course, I received a letter back…

View original post 613 more words

Rest in peace, Millie

It’s past bedtime, but I have just been sending out some emails about the death of a friend’s mom.

The friendship goes back over thirty years and is rooted in the parish I belonged to from 1983-2005. My friend was the music and liturgy director and I volunteered extensively in those ministries. She is godmother to my younger daughter.

Her mom has been struggling for years with Alzheimer’s, a disease that is unfortunately all too familiar. My grandfather, two aunts, and an uncle all had Alzheimer’s, so I know some of the possibilities and complications of the disease, although one of the features of it is its unpredictability. Still, my friend and her family knew that her mom’s death was imminent and were able to gather for these last few days to be with her and each other, which I’m sure gave them strength and comfort.

The funeral will be at the church where my friend currently serves and where my daughter has been singing in the choir. My friend will be playing the organ and directing the music for the funeral. My daughter will be singing with the combined choirs and I will be writing the prayer petitions that end the liturgy of the word.

When someone has been suffering for so long, it is hard to say that you are sorry to hear of their death. While I am sorry for the family to lose a wife, mother, grandmother, and aunt, in truth, they have been losing her little by little for years. What is comforting is that, in our tradition, we believe that she is in now experiencing eternal peace and joy in heaven, freed from all suffering and illness.

Millie, as the choir will sing at the funeral, “may the angels lead you into paradise.”

SoCS: Empty Nest?

We are getting ready to move our younger daughter into a house she is sharing with friends as she begins grad school in a few weeks. Unlike other places she has lived, this house is unfurnished, so we are sorting out what to send up. In fact – shameless plug! – I wrote about part of that process for last week’s SoCS: Desk Excavation.

This week, we took delivery of a new mattress and box spring, which will be paired with a maple Ethan Allen bedframe that my husband used as a child. A dresser that was a gift from my parents for the birth of our older daughter, who is their first grandchild, is slated to go, too, sans the changing table top that has now spent many years boxed up somewhere in our house but that once was secured to the top of the dresser.

Will this move mark the beginning of permanent “empty nest” for us?

 

This post is part of Linda’s Stream of Consciousness Saturday. The prompt was to end the post with a question. Visit the link to read more SoCS posts and read the rules and join in, if you are so inclined! http://lindaghill.wordpress.com/2014/07/25/the-friday-reminder-and-prompt-for-socs-july-2514/

How to suddenly increase followers

I’m having one of my try-to-learn-to-be-a-better-blogger afternoons. I actually managed to get my publicize links connected.

Next, I was doing some work on my widgets and realized that it suddenly said I had 169 followers, when I thought I had 113. Then, I realized that my follower number now included my (tiny) twitter following and my (slightly less tiny) Top of JC”s Mind facebook page followers. I think my small non-Wordpress email followers don’t get included in counts at all, other than in my heart, where I love you all!

I guess if I really want my number to jump, I can connect my personal Facebook page instead of my public page. I have about six times more FB friends than I do followers for my page. LOL

I did decide to finally list the number of followers in my sidebar. I had hesitated to do so because I was afraid that people would not want to follow or comment on a blog they knew was so tiny. If I notice a drop-off in traffic, I can always hide it again!

Just in case anyone wants to expand their ways of following me, the WordPress follow button is near the top of the sidebar to the right. The email follow widget is just below.

My Facebook Page for Top of JC’s Mind is here: https://www.facebook.com/topofjcsmind. I invite you to like my page if you are on Facebook.

I admit that I find twitter a challenge. I have difficulty containing myself to 140 characters! Those who love to follow on twitter can follow me, though. I’m @btmum.

Maybe next time, I will actually work on exciting things like finally adding a photo of myself!

What I meant to say was…

“You keep using that word. I do not think it means what you think it means.” – Inigo Montoya in The Princess Bride

I try to be clear when I write prose – poetry is not as straightforward by design – but I am running into a problem. I tend to use words assuming readers will apply standard dictionary definitions, but I am finding myself increasingly having to explain at length what I mean by a certain term, so as not to be misinterpreted, as I did in my recent post My (Feminist) Story.

I do understand the difference between connotation and denotation, but it is a pity that many words that usefully describe philosophical or political views have become so skewed from their dictionary definition as to be unusable in practical terms. For example, the words “liberal” and “progressive” are heard more often as epithets than as accurate descriptors of actual policies. Past conservative presidents like Richard Nixon would now be considered liberal, given the positions of those who now describe themselves as conservative.

The word whose misuse most disturbs me is “science.” Science is about data, evidence, observation, reason, leading to conclusions consistent with facts and repeatable by other scientists. In order for papers to be published in scientific journals, they first must be reviewed by peers with knowledge of the field to ensure that the study’s procedures and conclusions meet research standards. Yes, there are studies that later need to be withdrawn when errors are found after publication, but that is rare.

I frequently write comments on news articles about unconventional fossil fuel extraction including “fracking,” renewable energy, and climate change. In my home state of New York, we are in a continuing battle over whether or not high volume hydraulic fracturing will be permitted. The governor has said that science will be the determining factor. The problem is that both sides say they have the science on their side.

The pro-fracking side has industry studies, which are almost never subject to peer review, bold pronouncements from the industry and their allies that fracking is safe, exemptions from key environmental provisions that apply to other industries, gag orders on court settlements of damage claims, and regulatory agencies that are a revolving door to the industry and that use subcontractors that also work with the industry to draft environmental review documents and regulations.

What we on the anti-fracking side have is – well – science. There was a trickle of studies at first, because scientific study takes time with additional time needed for peer review, but there have been more and more studies, especially in the last eighteen months, documenting environmental impacts on air, water, biosphere, climate, and public health. There is a new compendium of research on fracking here. (I can’t resist posting the link to the compendium at every available opportunity.)

Anyone who knows the definition of science should be able to tell which side is using science in their argument. I can understand that some people who are hoping to profit from fracking might delude themselves into believing the industry over the scientists. I don’t understand the press giving equivalency to the remarks of a peer-reviewed independent scientist and an industry spokesperson/propagandist.

The press should be clear with the definition of science. I know it has become common for politicians at all levels of government to say “I am not a scientist” as an excuse not to understand issues such as climate change. Frankly, people do not need to understand all the intricacies of scientific inquiry to believe a strong scientific consensus. They do need to understand the definition of science and to discern what meets the standards of science and what does not.