There Will be Nothing Funny About This Whatsoever, Unfortunately

I was not aware of TTTS but want to help build awareness by sharing this post from Meg of Fisticuffs and Shenanigans.

MeglyMc's avatarFisticuffs and Shenanigans

This post is a clear departure from my usual nonsense, but it’s important to me for reasons that will be terribly clear.  My story ends happily.  It ends with the last 12 years of laughter and dirty, loud chaos that only boys can bring, but I came horribly close to an outcome too terrible to consider.

After finding out that I was carrying identical twins in my 18th week, it wasn’t long after, at 22 weeks, during a routine ultrasound, that a significant problem was discovered. Because, most of the time, identical twins share a placenta, a large number of problems can arise, and in the case of my sons, they were not sharing it equally, and had an “Asymetric Placental Share” or “Discordant Growth”. They were 18 days apart in size, and we were told there was nothing to do, but go home and wait two weeks for another…

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Dr. Barbara Chaffee

The link below leads to a few paragraphs and a short video clip. Even if you want to ignore the text – and the rest of this post, for that matter – watch the clip. It is part of a documentary nearing completion on the life of Dr. Barbara Chaffee, Binghamton physician, mom, and community member, by her son filmmaker Tim Chaffee. Barbara was at the forefront of treating AIDS patients in Binghamton back before HIV was well understood. She was a compassionate and caring person in whatever situation presented itself and her story should be preserved and shared with the world.

Yes, this is related to fundraising and I have made a small contribution myself, but, no, you don’t have to give money to support the film. If you like the link, please do share it via your blog, twitter, facebook, ello, email, or whatever mechanism you use to get the word out.

With thanks,
JC

http://wildgeesefilms.net/news-timeline/34-just-infrastructure

News from back home

I was awake early today, which usually happens when I know I have a morning flight. Because we were ready early, I called my mom, which, on Eastern Daylight Time, makes her six hours later than on Hawai’i Standard Time. (Given its latitude, Hawai’i has no use for shifting its daylight hours later.)

That morning, my mother had heard back on some tests that she had had done. It turns out that she has giant cell arteritis, a condition that often occurs with polymalgia rheumatica, for which she has been receiving treatment with steroids for about a year. This link has further information on both conditions.

A few days before we left for Hawai’i, I had been thinking how lucky we were that my dad, who has had a number of medical issues in the part year, was doing well. That same day, my mom had an appointment with her family practice doctor, who was concerned that her sed rate wasn’t staying down. She had had a couple of instances with difficulty chewing crunchy foods and he was concerned that she had developed giant cell arteritis. He wanted her to see a rheumatologist, have more blood work, and see a surgeon for a temporal artery biopsy. She wanted to wait to do the biopsy after we returned, but it turned out that it was arranged for more quickly, so she had it taken last Friday, with the results coming today, Wednesday. It was a bit of a shock to us when the biopsy came back positive, because the only symptom she had had was the very occasional jaw pain. No visual problems, no headaches, no sensitive temples or scalp. Given that it was caught early, there is little chance of any lasting damage.

Mom’s doctor is about to retire. We were joking that he wanted to go out with a bang, diagnosing a serious condition early on minimal symptoms. It shows the value of having a good family doctor looking out for all aspects of your health. Even though he is retiring, my mom will be in good hands, with care provided by her new rheumatologist and one of the younger doctors from the family practice who has been her back-up provider in recent months as her long-time doctor has been cutting back his hours to ease into retirement.

Now, nothing else is allowed to happen on the medical front, at least until we get home from our second week, now in Honolulu…